SLT Posted April 29, 2006 Share Posted April 29, 2006 Good morning everyone! Well my Dad has officially made it 2 years since diagnosis! This board has had some sad news the past week which just makes my heart ache, but I do have good news to report today. First, I have to be so thankful that after 2 years, I'm lucky enough to still have my father with us. It really goes to show statistics mean nothing! Dad was given 9 - 12 months to live. He was diagnosed at 72 so he opted for "quality of life" and chose not to undergo harsh treatment. So he had radiation to the tumour and attempted Navelbine 1.5 years ago and had to stop due to temporary bowel paralysis. Other than that - he's had little treatment. He has played lots of golf for two summers and has played in a pool league the past two winters. I'm so thankful we've had Dad longer than expected and he has had good quality of life in the past 2 years. The brain lesion has been a major setback, but were fighting our way through that... It has been about 5 weeks since Dad completed WBR. I have to say, it really knocked Dad for a loop. It drained every last morsel of energy from Dad's body and at the same time Dad's legs started swelling. Well, one leg ended up HUGE and the next thing we know, he has a blood clot in his leg. So he was treated for that. During all of this, Dad was getting a lot of pain in his legs and started over medicating himself. He was nodding off all day long and could not sleep at night and would just roam. He got really, really dopey and we began to wonder what the radiation actually did to his brain. Well, he had to be hospitalized to get his leg straightened away and as soon as they started controlling Dad's medication, the old Dad we know and love returned. He was completey over medicated and his brain is actually working just fine!! Well the good news is this...he had a brain, chest and abdomen scan done. The lesion in his head has shrunk significantly and there is nothing new showing on the chest and abdomen scan! YEAH!! Dad's legs are no longer swollen and he's starting to get back on his feet and trying to regain some strength. Hopefully, Dad can start Tarceva soon! We will also discuss using SRS on whats left of the brain lesion at Dad's next oncology appt. I do have a question...have any caregivers had problems administering pills to their loved ones?? Dad insists he can do it for himself and we've realized that he shouldn't be. He won't listen to my mother at all! I created a daily spreadsheet that he can record times he takes meds and printed him off a bunch of sheets, but that only worked until he was too dopey to know what he was doing!! He's aware of the mess he got himself into recently, but who's to say it won't happen again? He doesn't want to give up his independence and he's so stubborn!! Thanks for reading. Sherri Quote Link to comment Share on other sites More sharing options...
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