Linda661 Posted May 24, 2006 Share Posted May 24, 2006 Things have changed drastically since last Friday for mom and I am just beside myself dealing with this turn of events. First, the good news is that it looks like she finally beat C-diff woes after two repeat bouts with it (3 tests show negative now so that's good). The bad news is she continues to have uncontrolled runs, she is so weak she is now pretty much bedridden, she quit eating solids over the weekend, she is significantly "wasting" in appearance, she is more confused than ever, she is dehydrated from how bad those runs got over the weekend, she appears to have fluid in her lungs, shortness of breath,.....anyway, a lot has changed. We saw the onc. on Monday (two days ago). He said labs showed low sodium and high potassium. He discounted the potassium because the sample was hemolyzed (yet the lab had a good draw, they told me). Anyway, he ordered two days of hydration therapy to improve the sodium numbers and get her back on her feet. He also ordered a new med. to get the runs under control (the one she was on wasn't doing the trick). Radiation was cancelled for Monday too after I insisted that crew evaluate her condition as well (I swear they would have done it without hesitation, no matter how weak she was) -- mom's blood pressures were running lower than usual. I got a copy of the labs and noticed that for the first time, numbers indicated that her kidneys were having some trouble (onc. didn't mention that one) -- lab info. indicated that to conclude that would be premature with one number. When I get mom back to the nursing home, one of her nurses takes me aside and tells me have I ever considered hospice, that mom is going downhill.....was more to that conversation, but hospice isn't something mom has been mentally ready for so far, so I have just been following her treatment wishes..... So, anyway, I get a call at 2:30am on Tuesday from the nursing home: they are sending her to ER as she is having trouble breathing (O2 sats dropping). She was admitted by 9:00am on Tuesday morning and that's where I caught up to her yesterday -- been through this hospital stuff 3 times now and I know to collect and take my updated information on mom as staff never seems to have everything straight, no matter how much info. travels between offices! She's getting IV hydration, she's on a heart monitor, and she's cathetarized when I get there. She can't answer their questions and doesn't even know why she's there when the doctor asks her questions during his evaluation. Her sodium numbers have improved from the hydration therapy that was done at the cancer center on Monday. Doctor doesn't know how long this stay will be. The doctor took me aside and told me that kidneys may indeed be in trouble and that they may have to drain the fluid from her lungs.....too early to tell at that point. Potassium is high as well on their sample. The doctor even took me behind the nurses' station counter to show me their ER CT scan -- I was impressed that this doctor actually took that kind of time with me in the hospital. I had quite a conversation with this doctor about our treatment course, what our understandings have been along the way, and I was able to answer his questions about head CT scans, test results to date, dates of treatment everything, etc. as I think he thinks she must be further along in this disease than our info. shows. Now, so far, mom has wanted resuscitation/intubation....efforts made to save her along the way: this doctor says that is not called for. During this stay, this doctor is going to see to it that we are properly informed for where we are at -- I don't know what that means yet, but he doesn't think she's got a lot of time left. So, to say the least, I am a bit shaky at the moment. I have a mom who may just get hit with a ton of bricks when reality sets in any day now: she is gonna' have to decide whether to continue on or do hospice and this is gonna' hurt her bad (she's not prepared for that from what I see). I talked to my attorney yesterday to at least be sure that the doctor's can't turn to me for something like a DNR decision to override mom's wishes....thank goodness....this is so uncomfortable right now. At least I know from here that things can be different in a week -- that this ride has up times and down times, so I haven't lost it completely. Just hanging on, day by day. Linda Quote Link to comment Share on other sites More sharing options...
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