Shar Posted May 31, 2006 Share Posted May 31, 2006 Hi Guys, Just got my results from my scan today and everything is still stable!!!!!!!! What a relief!!! It's been almost 14 months on Tarceva for me now and what a lucky b**** I am!!!!!! Seriously though, I DO know how lucky I am to still be here and am grateful for the opportunity to watch my kids grow, something I was sure I wasn't going to be around to see. The side effects Tarceva has given me in the past month are now going to be the subject of a conference of oncologists here tomorrow. Maybe one of them has some advice for controlling them a bit better. I am being referred to a Urologist to try and do something about the inflammation of the bladder lining. I find that is becoming a little unbearable, so much so that my onc has insisted I take a break from tarceva for a week to see if it calms down. He is worried the tissue in the lining of the bladder will be permanently damaged. The scalp pain is just something to live with I guess, nothing I have tried has relieved that at all. Oral antibiotics did their job for a while, but no more. I now have a huge burn down the back of my neck and behind my ears which is so painful, only ice relieves that. I would go through ten times all of this if it meant survival. None of the pain really matters in the big picture. Bring it on if it means its working!!! Thanks to everyone for their thoughts, Sharon Quote Link to comment Share on other sites More sharing options...
hollyanne Posted May 31, 2006 Share Posted May 31, 2006 CONGRATS. GOOD NEWS IS JUST SO, JUST SO GOOD!!! Quote Link to comment Share on other sites More sharing options...
cindi o'h Posted May 31, 2006 Share Posted May 31, 2006 Well, Let's Hit Cindi's Pub, Aussie-style! Would love to know how to do that, since the only "down under" I have done, is when I have passed out down under the bar! I am sure I would have to wear jeans, a ragged light cotton shirt with the sleeves cut off, a straw hat with one of the sides curled and leather straps here and there and a knife to cut the nuts off anyone who tried to mess with me! Well, all the more fun at the party! Aussie Aussie Aussie! Oi oi oi!!! love, Cindi o'h Quote Link to comment Share on other sites More sharing options...
eppie Posted May 31, 2006 Share Posted May 31, 2006 YOu are a Lucky witch and I love ya for it!!! YOu deserve this and this news makes me so happy to hear!!! I wish you many many more clean scans and kisses from children! Much love, Eppie Quote Link to comment Share on other sites More sharing options...
gail p-m Posted May 31, 2006 Share Posted May 31, 2006 Sharon -- So very glad to read of your good news again. Please keep it coming -- we need more of this on this board. gail p-m Quote Link to comment Share on other sites More sharing options...
RandyW Posted May 31, 2006 Share Posted May 31, 2006 Hoist a fosters and "throw a shrimp on the Barbie" mate. Congrats and always love to hear good news. Quote Link to comment Share on other sites More sharing options...
Frank Lamb Posted May 31, 2006 Share Posted May 31, 2006 Sharon,stable is good and worth celebrating.I'm heading to the pub for a Fosters. Quote Link to comment Share on other sites More sharing options...
Don Wood Posted June 3, 2006 Share Posted June 3, 2006 Great news, Sharon! Whoo Hoo! Quote Link to comment Share on other sites More sharing options...
myrnalu Posted June 4, 2006 Share Posted June 4, 2006 Wonderful Quote Link to comment Share on other sites More sharing options...
Nushka Posted June 4, 2006 Share Posted June 4, 2006 Great news. I am happy for you. Let us know what the meeting decides. You are really having some strange side effects. Sorry for the painful things going on but so glad you are doing well with the cancer. Nina Quote Link to comment Share on other sites More sharing options...
joanie55 Posted June 4, 2006 Share Posted June 4, 2006 Shar, This is wonderful news!!!! Gives lots of others here hope. Hope they can figure out something for your bladder problem. Joan Quote Link to comment Share on other sites More sharing options...
karenl Posted June 5, 2006 Share Posted June 5, 2006 Hey Shar - "Aussie aussie aussie, oi oi oi!!" (only you will understand that!!) Great news, Karen Quote Link to comment Share on other sites More sharing options...
TracyD Posted June 5, 2006 Share Posted June 5, 2006 Way to go! Now go give those kids some extra, extra hugs! Tracy Quote Link to comment Share on other sites More sharing options...
Jyoung20 Posted June 5, 2006 Share Posted June 5, 2006 So glad to hear your news!!!!! CONGRATS!! Jamie Quote Link to comment Share on other sites More sharing options...
Carleen Posted June 5, 2006 Share Posted June 5, 2006 Shar that is such great news! Love that Nerd. I wish it didn't come with so many side effects, but as you said, they are nothing in the grand picture of things. You are surviving and one luck B****H Quote Link to comment Share on other sites More sharing options...
daggiesmom Posted June 5, 2006 Share Posted June 5, 2006 So happy to hear your great news! Let's celebrate at Cindi's!!!! Joanie Quote Link to comment Share on other sites More sharing options...
j ross Posted June 5, 2006 Share Posted June 5, 2006 Good news for one member is good news for all members. Great Jennie Quote Link to comment Share on other sites More sharing options...
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