Linda661 Posted June 16, 2006 Share Posted June 16, 2006 I just don't know what to say, mom was readmitted to the hospital overnight -- O2 sats dropped again was reason for new trip to ER overnight. As of today, mom is nuttier than a fruit cake -- I have never seen her so bad. Blood work doesn't explain this one either, for the first time -- electrolytes are fine and she was eval'd for stroke (nope, not that either). They are doing a procedure to remove fluid from her lungs (for comfort) and we are supposed to discharge tomorrow as it is seen now. We have the same hospital onc. we had last time (really like him) and he is supposed to debrief me on whether disease progression can cause such a change in mental status......I can't understand her sentences anymore (she puts words together that don't make any sense, doesn't know where she is, and exhibits what are like obsessive/compulsive repetitive actions now).....she's calm though, not angry or aggressive at the moment. I watched this get worse during the day today......at least I know she wants hospice now once we discharge tomorrow, that helps....but this rots big time.....what the heck happened over the last 48 hours? I have two head CT scans that say it's not brain mets (the last one done real recently). Really hurt to have to leave her today so I could get to her safety deposit box at the bank in time to retrieve the original of her will per attorney recommendation.......would be too late if something happens overnight -- I would be locked out of her box if she passes overnight and I need that document if she passes.....this rots -- I can't be everywhere I want or need to be at once!!!!!!! That's only a drop in the bucket of the stretch I am under too....no point in going into more details now.....hopefully things will be different tomorrow. Linda Quote Link to comment Share on other sites More sharing options...
EastCoastLadi Posted June 16, 2006 Share Posted June 16, 2006 Linda, I am so sorry about what your mom is going through. With nature of this disease everyone lives from moment to moment. I know with my dad when he was hospitalized with his cancer, there were moments he was incoherent, his was a combo between the cancer metasizing to his brain and the incredible amounts of meds. he was on, he lived for about 2 months after this. is it the cancer w/ your mom, I wish I could tell you, but she is being taken care of now. And I completely understand about running around and getting things taken care of before it is too late, I ran around so much in the final months for my dad... I'm praying for you and your mom tonite... Grace Quote Link to comment Share on other sites More sharing options...
RandyW Posted June 16, 2006 Share Posted June 16, 2006 Linda sent you a pm whenever not important right now. Dad went in for routine knee surgery. We know he built up a small amount of fluid in Lungs probably Sepsis not sure. On life support for 5 days. Removed and thought he was on a Boat. NG TUbe out yesterday And Fine today. All numbers were good for the whole time but O2 ANd life support turned him around almosrt normal. Sending PRayers for You and Mom for quick recovery time! Quote Link to comment Share on other sites More sharing options...
Don Wood Posted June 16, 2006 Share Posted June 16, 2006 Prayers comin'. Quote Link to comment Share on other sites More sharing options...
mamasbabygirl Posted June 16, 2006 Share Posted June 16, 2006 Linda, Hang in there. Seems like you are being your good reliable, calm self. You are such a natural caregiver. I also understand how much your mom means to you. Prayers for both of you tonight. HUGS Quote Link to comment Share on other sites More sharing options...
ztweb Posted June 16, 2006 Share Posted June 16, 2006 Oh Linda, I am so sorry. This is terrible news. You need to be with your mom. God bless you for being a wondeful daughter, and doing everythign you need to do, even if it stretches you into a thousand different directions. I will say a prayer for your mom. Dear Lord, please provide your warmth and protection for Linda, her mom, and their family as they go through this latest hurdle. Please grant them your peace, your strength, and your warmth. Lord, I ask that you make Linda's mom be free from pain, and be clear of mind and heart. God bless you Linda and your family. Quote Link to comment Share on other sites More sharing options...
melindasue37 Posted June 16, 2006 Share Posted June 16, 2006 Linda, It sounds like you are handling things so well considering the circumstances. Thinking and praying for both of you right now. Warm Hugs, Melinda Quote Link to comment Share on other sites More sharing options...
purplelady47 Posted June 16, 2006 Share Posted June 16, 2006 I am sending prayers and positive thoughts your way for both you and your Mom. Pam in FL Quote Link to comment Share on other sites More sharing options...
Welthy Posted June 16, 2006 Share Posted June 16, 2006 Hope things will be going better for you soon. Don't you just wish "other" things going on at the same time would just disappear???? Can't anyone see that we have enough on our plate with just the whole cancer thing??? Wishing you peace and the best. Welthy Quote Link to comment Share on other sites More sharing options...
jhllal Posted June 16, 2006 Share Posted June 16, 2006 Linda - we had a similar experience with my dad several weeks ago with the nonsensical speech. It turned out to be mini-strokes. I was told that the damage to the brain from the strokes may not show up on the scans for a couple of days, which turned out to be the case for my dad. I will keep you in my thoughts and prayers. Lynn Quote Link to comment Share on other sites More sharing options...
MsC1210 Posted June 16, 2006 Share Posted June 16, 2006 Linda, Just wanted to let you know you and your mom are in my prayers. Love, Chris Quote Link to comment Share on other sites More sharing options...
Linda661 Posted June 17, 2006 Author Share Posted June 17, 2006 Thanks all for your support; if it's not mini-strokes as Lynn experienced, then it's not enough O2 getting to the brain (even with great O2 sats readings) from the way mom breathes -- she's still SOB even after the fluid was drained from her lungs on Thursday. Hospital onc. says "yep, part of the disease progression" as well. They called part of the phenomonena "word salad" : nonsense sentences (that, on top of when she does talk "coherently," most of the information is false). Once she didn't recognize me and, with most other staff at the hospital, she didn't know what they were there for. Oh, the term "sundown syndrome" was used at one point as well. I know someone else had mentioned a doc. using that term with their parent and everyone disagreed, as the term is generally used for alzeimer's. At least our team doesn't mean she's got alzeimer's: it's a general term to describe what's happening as a class of symptoms (behavior and neurological function). Mom seemed "better" on Friday morning (though she didn't remember my being with her the day before), but when our attorney came in for her to sign some papers, she couldn't spell her own name. She's still seeing animals where there aren't; by yesterday afternoon, she was as loopy as Thursday. We discharged back to the nursing home late yesterday afternoon -- I hadn't been home last night for two hours when I got a call that she fell out of bed. She's now got padding all over the floor around her bed to protect from hurting herself. We're going hospice at this point -- appointment on Monday morning to sign up, unless they get a cancellation over the weekend and call me to come in earlier. She really needs that kind of support at this point. Linda Quote Link to comment Share on other sites More sharing options...
MsC1210 Posted June 17, 2006 Share Posted June 17, 2006 Linda, I am sorry things are not better. I am glad you will be using Hospice though, it should enable you to have a little bit of a break for yourself. I continue to keep you and Mom in my prayers. Wish there was more I could do. Sending hugs and prayers and positive thoughts, Chris Quote Link to comment Share on other sites More sharing options...
adela Posted June 17, 2006 Share Posted June 17, 2006 Linda, I am so sorry. The running around and trying to stay calm and taking care of buisness is so hard. You are a wonderful daughter and everything you do now is what is needed for your Mother. Adela Quote Link to comment Share on other sites More sharing options...
Don M Posted June 17, 2006 Share Posted June 17, 2006 Linda, you and your mom have my prayers. Don M Quote Link to comment Share on other sites More sharing options...
cindy0519 Posted June 17, 2006 Share Posted June 17, 2006 Linda, Sorry to hear about the recent turns with your mom. And praying that hospice will be as "comforting and peaceful" for your mom as it has been for my dad. If they have a "hospice home" available in your area vs. a hospice location at a hospital, I would highly suggest giving it a try. The hospice house that Dad is at as been a WONDERFUL experience! Please PM me if you need to talk or have questions that I might be able to help with regarding our hospice experience. Praying for mom, yourself and wishing you comfort and peace!!! Cindy Quote Link to comment Share on other sites More sharing options...
RandyW Posted June 18, 2006 Share Posted June 18, 2006 Sending Prayers for everyone I know you all have been through a lot and I pray that hospice helps in many improved quality of life ways. Quote Link to comment Share on other sites More sharing options...
MilliBr1 Posted June 18, 2006 Share Posted June 18, 2006 Sending prayers. Quote Link to comment Share on other sites More sharing options...
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