Welthy Posted June 17, 2006 Share Posted June 17, 2006 My husband Tony just finished a 14 day run of prednisone two days ago. He is now feeling very tired and is emotionally down. Is this a typical reaction to coming off steroids? If so, how long will this last before he snaps back. He was put on them to try and help with his breathing. Also is on lasix to help with the water retention as a result of long-term use taxotere reaction. Nebulizer too. Had 800 cc's of pleural effusion drained last week. Additional tests showed no blood clots in the lungs and no fluid around his heart. After all of this, SOB hasn't improved very much at all. What the heck is going on here? This "chemo holiday" is turning into crap because of his breathing issues. Damn cancer... Thanks for any info, I'm so frustrated for him. Welthy Quote Link to comment Share on other sites More sharing options...
dadstimeon Posted June 17, 2006 Share Posted June 17, 2006 Hi Welthy, Sorry to hear Tony is having a hard time of it. Can only speak about my experience with Prednisone. I have been on Prednisone (usually start out 60 to 80 mg a day) many times and when I do stop it I taper off of it slowly over a period of weeks. My understanding is one should not just stop it abruptly of course everyone is different. Sounds like Tony just stopped right off the bat might be why he is tired and is emotionally down. Was he on a high dosage? I do hope he gets his SOB under control. Hopes this helps. Prayers for the best. Rich Quote Link to comment Share on other sites More sharing options...
shineladysue Posted June 17, 2006 Share Posted June 17, 2006 Hi Welthy, Love your pic... thanks for sharing it with us. As for your question about prednisone and withdrawl... First of all, there are so many possible causes for his symptoms and only a doctor can answer those questions, but I will tell you that my husband was on steroid therapy of all kinds during his treatment and yes there are definite withdrawl symptoms. Steroids oftentimes give a person a false sense of wellbeing , but when they are discontinued there is a mental and physical withdrawl period. You didn't state whether he was on step down or not , which is usually the way, but even with that it does take a few days or maybe more than a few days for the body to adjust. When Mike was on steroids, he was totally mentally and physically wired and going off of them had the total opposite affect. It's a big adjustment for the body. My advice, is to insist on seeing the doctor especially due to the fact that there may be other issues involved. I do feel your frustration and will keep you in my prayers. Hope things improve soon. Sue Quote Link to comment Share on other sites More sharing options...
Welthy Posted June 18, 2006 Author Share Posted June 18, 2006 Oops -- he was on a step down program with the steroids. Sorry, I forgot to mention it, just assumed everyone does steroids that way. Yes, his SOB is a real head-scratcher for the Docs. Just wondered if anyone out there knew of this kind of situation. Thanks Welthy Quote Link to comment Share on other sites More sharing options...
tnmynatt Posted June 18, 2006 Share Posted June 18, 2006 Have the doctors thought about doing a bronchoscopy on him to see if they can see what is going on? Quote Link to comment Share on other sites More sharing options...
cindi o'h Posted June 18, 2006 Share Posted June 18, 2006 hi Welthy. So many things can cause SOB. Of course, all stemming back to lc, or treatment. Heart is another avenue not to overlook. Pericardial effusions are not uncommon. Some anemias can cause the heart to be overworked. Pneumonitis is another. And well, the list goes on and on. ER docs are sometimes the best diagnosticians of the SOB thing. no kidding. They have all the equipment right there at their disposal. No *ickin around. Cindi o'h Quote Link to comment Share on other sites More sharing options...
teresag Posted June 18, 2006 Share Posted June 18, 2006 Welthy, I love your pic, too. When they tapped the pleural effusion, they should have tested the fluid for infection and for cancer cells. Find out what the results were and you'll have more ammunition in understanding this. If the docs are baffled, my guess is that the pleural fluid was negative for both infection and cancer cells, but it's good to double-check. Sorry you're going through this on the "holiday." (Have I mentioned lately that lung cancer stinks?) Quote Link to comment Share on other sites More sharing options...
Welthy Posted June 18, 2006 Author Share Posted June 18, 2006 I haven't heard what the test results were from the effusion tap. We see the Doc on Tuesday, but I figured "no news is good news". Will keep everyone updated. Quote Link to comment Share on other sites More sharing options...
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