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lyleanme

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Hello and welcome. Glad you found us.

Do you know that people who have lung cancer are more prone to blood clots. The cancer upsets part of the clotting mechanism. The drug of choice for those with lung cancer and clots is Levenox ( low molecular weight heparin ) usually 1 or 2 times daily by injection into the abdomen. Warfarin ( or Coumadin) does not treat these people adequately.

I know this is a difficult time for you- all the tests and doctor visits and setting up plans for treatment. Please keep us posted.

Donna G

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Hi. When I was first diagnosed with the blood clots in October they put me on Lovenox when I was in the hospital and I injected myself 2x a day for about a week then they put me on Coumadin. One Dr recently told me that blood clots in the lungs can be a warning of tumors yet to come...This is all so confusing at times! :roll: I had myself all ready for the surgery, or so I thought, now I don't know what i'm dealing with! Not knowing is so much worse than knowing for me anyway. I was actually relieved when the surgeon told me he was going to operate! :lol: But tomorrow is Monday, i'll call my Dr. first thing in the morning and find out what we have to do next. Two months ago the Dr told me that one of the tumors in my lung was the size of his fist! That was the one that was pressing against my heart, i'm sure it has grown since then! I just want them out...or gone!...Sorry, i'm being a bit negative, I shouldn;t let it get me down, i'm just tired iof all of this. I think i'd feel better if they'd just start my SSI, not as many worries then.

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Lylenme,

Do you mind if I ask where you are from in South Dakota? When my dad was diagnosed in Yankton they were going to wait a week to see a "Lung Specialist" then go from there. We had him transfered to Mayo and they did everything the first day because he had SVCS which compomises the heart. They told us that we didn't have weeks, let alone days.

You have a different kind of cancer so I am sure this is not the case. Don't be afraid to be aggressive though, as for some reason, things just seem to take longer here. We are a small state, and I am sure that has something to do with it.

I wish you the best, and by no means are you being negative! Don't think like that...We find more and more that we need to take control of our own health care anymore, and you are doing just that.

God bless you and best of luck!

Jen

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Hi!

It's me again!

See if you can get a social worker at the hospital to expedite your application process for medicaid if you haven't already.

By the way, I understand the feeling of knowing what you are dealing with and a treatment plan in place. Hang in there. We are still with you in this.

Cindi o'h

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I'm from Aberdeen. My Dr. is a cancer patient himself, So i'm hoping he knows exactly what is best. As far as my SSi, medicaid goes I actually applied over a year ago for PTSD, anxiety and depression, I had to hire an attorney about 6 months ago, i'm not sure she is doing her job tho'. When I was first diagnosed with cancer I called and told her but they didn't seem to concerned so I called the SS office about a week later with the new information and they knew nothing about it but took down the new info and said they would notify the people who are reviewing my file. If I get medicaid I will find a way to go to rochester if it looks like I have to, right now i'm having a hard time finding reliable care for my 2 handicapped children. Hopefully that won't be the case if I do need to go out of town. And you are right about things being a little slower around here :) but sometimes that's a good thing.

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You are right about that! I wouldn't change the fact that things are slower around here for nothing...except when it came to this with my dad! It was flat out scary. I hope so much that you get some answers. God bless you and stay in touch!

Jen

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I am sorry for your diagnosis and the losses in your family. I hope your surgery goes well.

I have only been hear a short time, but the support you will find is amazing. Everyone hear is wonderful.

dani

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Hi again; Sorry to hear of all the confusing probs. I had my surgery in Aberdeen...St. Lukes hospital. It was pretty straight forward...xray showed mass in lung, bronchoscopy and needle biopsy confirmed adenocarcinoma, surgery scheduled within a couple weeks. Dr. Conklin is the Oncologist there, Dr. Iwerks did the surgery. While they are not very personable, I guess they get the job done.

Dunno if you are being treated there or another place, or why so much confusion, ...must be more complicated than my tumor was, maybe.

Anyway, hope u get answers and good treatment...we certainly understand your frustration with the med. process.

Take care and good luck....Rich B.

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My Dr. called yesterday, surgery is scheduled for July 7th. Dr. Iwerks will do the surgery, glad to hear you had him too, personally I like him. He has a sense of humor but he's also very serious when he needs to be...This is scary for me, I have had 3 surgeries in the past (hysterectomy, appendics, and gallbladder) and I know this one's gonna hurt! :cry::? and I don't like pain meds,but I will be SO relieved to finally get it done! They done some hormone testing and found that it is not a carcinoid tumor...So, I told my kids that when I start chemo we can have some fun with my hair, i'll let them cut it! That was brave of me! :lol: I think they'll give me a mohawk and spike it before they cut it off completely...Anyway, i'm trying to find ways to make this not as scary for them, it's a challenge, isn't it? My son is 19 but functions at a 5 year old level so he has lots of questions...he got our Mayo Clinic book out and wanted me to show him what lungs were and how they work. Now he is asking me about everyone, if they are going to die and why they will die and when...Their father don't want our daughter if anything should happen so i'm trying to find a place for her to go, she';s 17 and developmentally delayed, I have 1 sister in texas but she is 63 and not in the best health herself, it is all such a challenge! But I know we will all be OK. I plan for the worst and hope for the best...that way i'm not surprised! :lol: [/b][/i]

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just got a call from Dr. Iwerks office...now my surgery is changed to July 10th! :? this is so frustrating! But it was for a good reason! i'm not irritated with the Dr...just the situation.

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Ok...glad u got things set up...yea, its painful but probly not much worse than the others, I wouldnt think. Slow healing process tho..patience is needed there. I had to sit up for 9 mos., took nearly 2yrs. to get healed up well. Hit us up for advice post surgery, if u want too. Good luck....Rich B.

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Hi Lyleanme, This operation can be very painful, more for some than others. Just depends.

For me,it made my hysterectomy feel like a mosquito bite, but then I can't take pain meds either. :)

Best of luck lyleanme. I will praying for you on then 10th. Barb

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Does everyone go thro' all the emotional stuff? One minute i'm fine with the whole thing, :) then i'm crying, :cry: then i'm angry, :x then denial, :lol: crying, scared, positive, etc...etc...I think this whole thing would be a lot easier without all the emotional things! I guess most of it is from not knowing what's going to happen!I mean, if your gallbladder is "bad" you have to have it taken out, end of story...but this surgery next week is just the beginning! Guess I need to go talk to someone about it. My roommate came by yesterday, first time in a week! She said she hasn't been here because she is scared. She sais she has always seen me as this really strong, independant person who never needed anyone or anything and now I have cancer and she said it has turned her whole world upside down. I guess I can understand that, doesn't make it any easier tho'.

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Hi lyleanme, It is a tough time - waiting for the operation. Have you asked your docs for xanex and ambian? It is important to get your rest now.

It looks like two others on this site will be going in on July 10 too. You are in my prayers lyleanme. Barb

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Yea, folks have curious and differing reactions to our illness. I was afraid my neighbors would find out before I went into hospital...not sure why, heh. But these issues seem to resolve themselves after you get back home, then I didnt care who knew. But yes, if u need a tranquilizer or something to get ur rest, Id sure ask Doc.

Hang in there...once surgery is over u can relax and concentrate on recovering comfortably as possible.

Take care...Rich B.

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