Andrea Posted August 31, 2006 Share Posted August 31, 2006 I was on my way to work, my parents got a phone call to be at pulmo office, so off we went. He came in just for us. And the nurse wondered why my dad's blood pressure was off the roof. "Is it serious?" he asked when he got the call. "Well I am sure the dr has a good reason to call you in" she said Anyway, upon further review, the biopsy sample yielded atypical cells. 5 different pathologists are confused and conclude it as a low-grade malignancy, but it was sent to Mayo clinic for further evaluation. He is calling it a LC until told it is not b/c it is not normal to have atypical cells in a lung nodule. Tomorrow is PET and Wed is Brain MRI. He called my mom's onc, but it figures, he never takes a vacation and now he is on one. Nothing he can do right now anyway. The big concern is the multiple nodules. Best case is the rest are something weird, and just this one is cancer. But the chances of that, who knows. We are still in shock, hasn't hit us yet. Quote Link to comment Share on other sites More sharing options...
Donna G Posted August 31, 2006 Share Posted August 31, 2006 Andrea I am so sorry. I know the whole family is upset. Low grade sounds good to me, but of course there's that "atypical part". Please keep us posted. Please keep us posted on what the next opinion and plan is. Donna Quote Link to comment Share on other sites More sharing options...
MsC1210 Posted August 31, 2006 Share Posted August 31, 2006 Andrea I am sorry to read this news. Please know you and your family are all in my thoughts and prayers. Chris Quote Link to comment Share on other sites More sharing options...
cathy Posted August 31, 2006 Share Posted August 31, 2006 Keeping you and your family in my thoughts and prayers Andrea.. Quote Link to comment Share on other sites More sharing options...
Ry Posted August 31, 2006 Share Posted August 31, 2006 OMG Andrea-- shock doesn't even describe it. I am so truly sorry this is happening. I am just dumbfounded by the number of couples that are diagnosed--what is going on? I hope the tumor is somewhere easily accessible so it can be removed...and that the nodules are nothing...if there is anything you need -- just ask. Quote Link to comment Share on other sites More sharing options...
Don Wood Posted August 31, 2006 Share Posted August 31, 2006 Enough, already! So sorry, Andrea. Don Quote Link to comment Share on other sites More sharing options...
Andrea Posted August 31, 2006 Author Share Posted August 31, 2006 Thanks. What I need now is tolerance. This has NOTHING to do with LCSC people, this is in regards to someone not involved with LC: I know people mean well, I really really do. But telling me to focus on that 3% chance, and informing me that you read on the internet from Mayo Clinic that atypical cells are not cancer so I am worried for nothing and that if I allow darkness in, it will enter, just frustrates me. If the doctor was not serious, no way would he have summoned us today when we had an appointment set for tomorrow (he came in just for us,he was at the hospital today, no office visits),no way would a PET be ordered for the next day, a brain MRI set, and a call made by the pulmonologist to an oncologist immediately. I am entitled to be upset and grumpy today and not have a desire to go to work Ok, done whining Quote Link to comment Share on other sites More sharing options...
gail Posted August 31, 2006 Share Posted August 31, 2006 You may whine for the entire night my dear. It's times like this when I don't answer the phone. You KNOW people mean well, they just don't know. That said, visualize shaking them silly, write to us here, and WHINE AWAY!! hugs and hugs gail Quote Link to comment Share on other sites More sharing options...
Kasey Posted August 31, 2006 Share Posted August 31, 2006 Oh (((((Andrea))))), I am so sorry about this. And I DO so understand what you are saying about people and all their 'advice'. To that I say.........let it just roll right off your back. They have NO clue, for sure. Of course you are upset and SHOULD be so. We are all upset with you. We hope and pray for the best, but never just assume everything is okay because we all know better. You know the rule...............step back and breathe and allow us to carry some of that worry. Rant, whine all you want. We are all the chorus! Kasey Quote Link to comment Share on other sites More sharing options...
tnmynatt Posted August 31, 2006 Share Posted August 31, 2006 Andrea, I am so sorry to read this post. Praying for the best possible PET and MRI results. Take care. Keep venting...that's what we are here for. Quote Link to comment Share on other sites More sharing options...
joanie55 Posted August 31, 2006 Share Posted August 31, 2006 Oh Andrea, I can't even believe I'm reading this. I'm just so sorry that you are all going through this. I just wish for good results. Joan Quote Link to comment Share on other sites More sharing options...
Jyoung20 Posted August 31, 2006 Share Posted August 31, 2006 Andrea, I am so sorry to hear this!!! Prayers for you and your family. GOD BLESS! J-me Quote Link to comment Share on other sites More sharing options...
kamataca Posted August 31, 2006 Share Posted August 31, 2006 Dang. I was really hoping, for your sake, to read that you had received good news about your Dad. I certainly hope they can come up with a certain dx and treatment plan very soon. You and your family are in my prayers. Much love to you! Kelly Quote Link to comment Share on other sites More sharing options...
marym Posted August 31, 2006 Share Posted August 31, 2006 Andrea, I'm so very sorry at your news. Mary Quote Link to comment Share on other sites More sharing options...
Treebywater Posted August 31, 2006 Share Posted August 31, 2006 I am just stunned... pissed off... and so terribly sorry, Andrea. Please know I am sending you so very many prayers... As for those people--they say things to make themselves feel better, I think. They mean well... but part of the words are spoken just so they can feel like they did something to comfort you, without having to look at how scary this thing really is. Quote Link to comment Share on other sites More sharing options...
Don M Posted August 31, 2006 Share Posted August 31, 2006 Andrea: I am sorry you got this disturbing news. It is interesting that the pathologists don't know for sure what it is. At least things are on the fast track now. I remember reading about aspergillus some time ago and how it can present as multiple nodules in the lung. It is a serious disease in itself. I wonder if they tested for that? Aspergillus is a fungus that can cause big troubles when the spores are breathed in. Here is a link from UCLA that discusses a case: http://www.med.ucla.edu/modules/wfsecti ... ticleid=53 I hope the docs get to the bottom of this soon. Don M Quote Link to comment Share on other sites More sharing options...
Geri Posted September 1, 2006 Share Posted September 1, 2006 Well crap, this was not what you were supposed to hear. I shall be keeping you in my thoughts and hoping that the news is better tomorrow. Take care Geri Quote Link to comment Share on other sites More sharing options...
Andrea B. Posted September 1, 2006 Share Posted September 1, 2006 Dearest Andrea, Keeping positive thoughts for your dad. I am sorry you all have to go through this. I am glad there is quick action being taken. Hugs to you. Love, Andrea Quote Link to comment Share on other sites More sharing options...
Littlegirl Posted September 1, 2006 Share Posted September 1, 2006 Andrea - I am SO sorry to hear this! Whine away sister, you have every RIGHT! (I'm sure those hormones are not helping!) Prayers that things start looking up for you and your family! Karen Quote Link to comment Share on other sites More sharing options...
Snowflake Posted September 1, 2006 Share Posted September 1, 2006 Well, Andrea, I have to state the same again, sh*t! Here's hoping "atypical" is actually only PRE-cancerous, like what a PAP test is designed to catch. IF this is cancer, may it be so early that treatment is 100% effective and quick. xxoo, Becky Quote Link to comment Share on other sites More sharing options...
RandyW Posted September 1, 2006 Share Posted September 1, 2006 Even with all the rain, I say aprayer out the back door at nite for you and Family. I also have big dry shoulders and a Block of smoked Gouda so whine away. I send prayers for all tonite. Quote Link to comment Share on other sites More sharing options...
Calintay Posted September 1, 2006 Share Posted September 1, 2006 Darn it! I hate this. I am sure he will beat and overcome. Hoping and praying for all of you Quote Link to comment Share on other sites More sharing options...
Suzie Q Posted September 1, 2006 Share Posted September 1, 2006 damn!damn!damn! Hope Mayo gets to the bottom of this SOON! ~Karen Quote Link to comment Share on other sites More sharing options...
MEA Posted September 1, 2006 Share Posted September 1, 2006 Andrea, Whine away...it is so hard when some one we love is going through this. You are a remarkable daughter and advocate for your parents. Praying MAYO is able to diagnosis and a plan is put into place to successfully treat you Dad. Mary Quote Link to comment Share on other sites More sharing options...
Welthy Posted September 1, 2006 Share Posted September 1, 2006 Unbelievable!! This just plain sucks eggs. Hope they get to the bottom of this soon and get a game plan in place. You and yours will be in my prayers. Welthy Quote Link to comment Share on other sites More sharing options...
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