marym Posted October 20, 2006 Share Posted October 20, 2006 Well I met with the spine surgeon, who says that there is no reason to think about spine surgery. If and when we have pain that cannot be more easily remedied, then we can talk. The bad news is that he thinks the leg weakness is associated with the brain lesions (radiosurgery in July with a followup MRI yesterday). The neurosurgeon said the lesions could not be causing the weakness and that they are all smaller - and responding as expected. So I just don't know. I spoke to the neurosurgeon's nurse and she said that they would include it in tumor board today and get me an answer on Monday. So I'll just have to wait. Mary Quote Link to comment Share on other sites More sharing options...
mamasbabygirl Posted October 20, 2006 Share Posted October 20, 2006 Mary, Are they saying it is brain swelling from the radiation or necrosis (dead tissue)? Quote Link to comment Share on other sites More sharing options...
Cheryl Ferguson Posted October 21, 2006 Share Posted October 21, 2006 Mary, Laurie could be right. The brain has always been my biggest fear- getting mets, and that happened. Howevever, I have had them 1 year and 10 months now, with no serious effects. you can live with them too. Great news that no surgery on spine, thats a good sign. Cheryl Quote Link to comment Share on other sites More sharing options...
marym Posted October 22, 2006 Author Share Posted October 22, 2006 They say that the lesions that were treated with radio surgery in July are all smaller and there is some necrosis. They plan a new test called a MR Spect. It's the latest and greatest. Lets them see the lesions, but also allows visualization of activity - blod flow, tumor growth etc. I have to ask if anyone else has had this and is it the enclosed machine like an MRI, translate...do I need my valium? Mary Quote Link to comment Share on other sites More sharing options...
cindi o'h Posted October 22, 2006 Share Posted October 22, 2006 Hi Mary, I haven't heard of that test, so I don't know what's involved. But, gee, any little excuse for a Valium sounds good to me no matter what. Kinda like a martini in pill form, right? Very good luck with this. Cindi o'h Quote Link to comment Share on other sites More sharing options...
karen335 Posted October 23, 2006 Share Posted October 23, 2006 Hi Mary, I answered on your other post... I don't think you'll need your valium. Prayers, Karen Please keep us posted Quote Link to comment Share on other sites More sharing options...
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