Fay A. Posted September 19, 2003 Share Posted September 19, 2003 Supplemental Oxygen for one thing...... during my Pulmonary Function Tests on Monday I inhaled very deeply, and felt the bottom part of my lung open up... At first, I thought that the Prednisone I was taking (to counter allergic reactions to the dye used on the CT scan scheduled after the PFTs) was making it easier to breathe, and that may have been the case at first, but the partially collapsed lower lung opened up and has stayed open. I was tested again 3 days later and I still didn't need the Oxygen. It doesn't mean I can walk all that fast...nor does it mean I can climb stairs easily, nor sing an aria, or recover easily from any physical exertion. It just means that I can now do things without supplemental oxygen. And it is my intent to be able to walk up stairs, sing arias, and walk fast at some point. But for now I still end up breathing like a prank phone caller....but I'm doing it on my OWN steam! One of the large skin nodules (size of a quarter) has shrunk and is now smaller than a pencil eraser since I started chemo a few weeks ago. This may not seem like a big deal, but since I have had to sit on this particular lump for the past few years it's kind of neat for it to be going away. The other thing is quite a bit of my hair fell out today...I have a lot of it, so it doesn't really seem that obvious yet, but I figure by this time next week I shall have the perfect pate for an interesting henna tattoo. My white counts fell, and I did pick up an infection, so I'm back on antibiotics again, but all things considered I'm doing okay..... Red counts fell and I needed a shot, but that's no big deal, either. I am counting my blessings today....and there are many. I count you among them. Fay A. Quote Link to comment Share on other sites More sharing options...
lynn Posted September 19, 2003 Share Posted September 19, 2003 Fay, So glad to hear of your losses...the oxygen and the skin nodule! The other losses,hair and blood cells, can be dealt with thankfully. Keep on hanging in there...you are quite a trooper! Regards, Lynn Quote Link to comment Share on other sites More sharing options...
Don Wood Posted September 20, 2003 Share Posted September 20, 2003 Thanks, Fay. Things sound like they are going well for you. Good deal! Don Quote Link to comment Share on other sites More sharing options...
beckyg Posted September 20, 2003 Share Posted September 20, 2003 Yea, Fay! I know how wonderful it is to be without oxygen. It's good to hear things are going well for you. Becky Quote Link to comment Share on other sites More sharing options...
LindaMRG Posted September 20, 2003 Share Posted September 20, 2003 Im glad youre without the supplemental oxygen and the skin nodule!!!! That is GREAT news!! The hair will come back; the white blood count will come back!!!! Quote Link to comment Share on other sites More sharing options...
Cindy RN Posted September 20, 2003 Share Posted September 20, 2003 Fay-You sound like things are going great!! Congrats! As for the hair-I have had mine fall out 2 different times, the first time in April 2001 I told my kids I was going to have 2 eyes tatooed on the back of my head-Then when the hair grew back in I could say, "I have eyes on the back of my head", and nobody would be able to see them. Ha! I did not do it but I sure thought about it. I am the last person you would think had a tatoo. BUT since the cancer I HAVE thought about it. Quote Link to comment Share on other sites More sharing options...
norme Posted September 20, 2003 Share Posted September 20, 2003 Fay, Just read your post and am so happy for you.. That feeling of your lower lobe opening up had to be a great early Christmas present to yourself. It seems things are finally going your way which is terrific. Quote Link to comment Share on other sites More sharing options...
Tiny Posted September 21, 2003 Share Posted September 21, 2003 Dear Fay- What a lung-opener!! Things sound generally positive for you. I'll be praying that this upward trend continues! Quote Link to comment Share on other sites More sharing options...
kimblanchard Posted September 23, 2003 Share Posted September 23, 2003 Fay I never thought I'd be sending a post to congratulate you on your losses. But here it is. I can't imagine life without an oxygen tank. I'm grateful its available for me but it gets tiresome lugging it around. Keep up with you great losses - even the hair will grow back. Sue M Quote Link to comment Share on other sites More sharing options...
karen335 Posted September 24, 2003 Share Posted September 24, 2003 Fay, Keep up the good work. These are things that are truly not missed. You are in my prayers everyday. God Bless Karen Quote Link to comment Share on other sites More sharing options...
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