Joe B Posted November 1, 2006 Share Posted November 1, 2006 ok. I have alot to report. CT scan and MRI last Saturday. 1. Good news; CT scan is stable since last scan (5months ago) all 10-12 nodules remain very small (6mm or less), and I haven't even tried tarceva yet 2. Bad news; Large mass 6CM x 4CM X 4CM shows on on brain MRI. We we were at first devastated...(only had a CT of head once back when this all first started 3 + years ago. 3. However, More good news !! yesterday after reviewing films with two seperate highly respected Radiation oncologists.... the mass is encapsulized and may not be a met at all (may be benign or a separate primary indolent brain tumor(in fact it is certainly very atypical to have a single large Met associated with BAC. Both belive it is "highly resectable" (meaninng surgery looks to be the way to go, and that it is in an easy spot to get at (back of the head near the edge of the skull) that doesnt affect personality or cognitive functioning (which explains why I have no symptoms). WORST case is that it is in an area to is associated with vision, and I may lose some field of vision in one eye-- but that would be worse case. So... we are very encouraged and are praising God that it is operable and in a good location and is a single tumor. Probably will have surgery next week after meeting with various neurosurgeons the end of this week and early next week. All in all things are looking very positive, and the lungs really are not a concern to anyone at all. I am doing great and in very good spirits I'll keep you posted as dates develop. Joe Quote Link to comment Share on other sites More sharing options...
Andrea Posted November 1, 2006 Share Posted November 1, 2006 I love your attitude Joe. The brain sounds encouraging and I look forward to good news from surgery! Quote Link to comment Share on other sites More sharing options...
Mendy Posted November 1, 2006 Share Posted November 1, 2006 Wow... That must have been a lot to take in when getting your results. Your prognosis sounds great and I wish you a highly successful surgery with no negative side effects. And if your worst case scenario does come true, I will let you know that I have lived most of my life without vision in my left eye and you learn to adjust. Good luck and I look forward to reading about how well it went. Mendy Quote Link to comment Share on other sites More sharing options...
Sheri Posted November 1, 2006 Share Posted November 1, 2006 Only on this site, is brain surgery good news! Sorry to hear about the nasty bugger though and I hope you get through surgery seemlessly. Good luck Joe! Quote Link to comment Share on other sites More sharing options...
Ry Posted November 1, 2006 Share Posted November 1, 2006 I am so glad that they can get that bugger out! What a relief! Let us know when the surgery is scheduled-- I am so happy things turned out well. Quote Link to comment Share on other sites More sharing options...
Don Wood Posted November 1, 2006 Share Posted November 1, 2006 Sounds like a good report overall, Joe. Glad to hear it. Keep the faith. Don Quote Link to comment Share on other sites More sharing options...
sharonjo Posted November 1, 2006 Share Posted November 1, 2006 Joe, Glad to hear the mass is resectable. Hope all goes well with your surgery and you are up and about very soon. Hang in there and stay strong! God Bless, Sharon Quote Link to comment Share on other sites More sharing options...
MEA Posted November 2, 2006 Share Posted November 2, 2006 Prayers for a successful surgery and recovery. God bless, Mary Quote Link to comment Share on other sites More sharing options...
carolhg Posted November 2, 2006 Share Posted November 2, 2006 I have been so thinking about you and praying for you. When people stay on my mind the next thing is that I hear from them and voila here you are. I pray that this surgery goes well and that you have no further complications. Thank you for the update. I will be keeping you in prayer. Quote Link to comment Share on other sites More sharing options...
Nushka Posted November 2, 2006 Share Posted November 2, 2006 Joe, Prayers being said. Let us know asap how you are after your surgery. Sounds like you will get great results. Nina Quote Link to comment Share on other sites More sharing options...
Doughnut Posted November 2, 2006 Share Posted November 2, 2006 I hardly ever post anymore but I check in on everyone several times a week. Today I considered that I was having a bad day generally. I have just read this and feel so ashamed at my whining. Your attitude and strength are amazing - good luck with the surgery! Quote Link to comment Share on other sites More sharing options...
Kasey Posted November 2, 2006 Share Posted November 2, 2006 May all go well, Joe. Prayers for succesful surgery and recovery. Kasey Quote Link to comment Share on other sites More sharing options...
Dazy Posted November 2, 2006 Share Posted November 2, 2006 Well, Joe, certainly NOT what we wanted to hear, but I am glad that they found it - with the lack of symptoms, it could've gone unchecked for some time longer - now you have options, and the ability to have it resected. I pray your surgery will go well, and that you will suffer NO long term effects! Your wonderful attitude is truly a testament to your strong faith - I just KNOW that strength of faith will bring you through this, too! Prayers for healing!!! Stacey Quote Link to comment Share on other sites More sharing options...
dchurchi Posted November 3, 2006 Share Posted November 3, 2006 Joe, sorry you are facing surgery, but not sure glad is a good word here, that surgery is possible and that this mass is not thought to be a met. Please keep us updated on your progress Quote Link to comment Share on other sites More sharing options...
trish2418 Posted November 3, 2006 Share Posted November 3, 2006 Joining in the prayers for successful surgery and recovery. Trish Quote Link to comment Share on other sites More sharing options...
stand4hope Posted November 4, 2006 Share Posted November 4, 2006 Yikes! Joe, that is a large mass. I am so happy they found it and will pray for skilled surgeons, a successful operation and quick and easy recovery. God bless you! Love, Peggy Quote Link to comment Share on other sites More sharing options...
daggiesmom Posted November 4, 2006 Share Posted November 4, 2006 Joe, keep up that wonderful attitude. I so admire you for your positive thinking. I'll be praying for you. Joanie ((())) Quote Link to comment Share on other sites More sharing options...
Maryanne Posted November 4, 2006 Share Posted November 4, 2006 I love your attitude and I love your results so far. You certainly have come a long way. I could imagine your demeaner when your first heard the distressing news now it being change for positive results... That is GREAT new! Maryanne Quote Link to comment Share on other sites More sharing options...
Nick C Posted November 4, 2006 Share Posted November 4, 2006 Only on this site, is brain surgery good news! Sorry to hear about the nasty bugger though and I hope you get through surgery seemlessly. Good luck Joe! I teared up on 2...reminded me of the news when I heard it about mom...and my heart warmed to read three. Yes, only on this site is brain surgery good news. But I am sure this is all still a lot. And I am impressed with the attitude which comes through your post. Bless you and may we all exhibit the faith and thankfulness you have. In the face of challenging news, you took time to see the blessing. Awesome! Quote Link to comment Share on other sites More sharing options...
jang Posted November 4, 2006 Share Posted November 4, 2006 Joe - I love your positive attitude. Good Luck with the surgery and keep us up to date. Quote Link to comment Share on other sites More sharing options...
ma's kid Posted November 5, 2006 Share Posted November 5, 2006 You really have a great attitude ((((Joe))))) Prayers for the best outcome possible with the surgery! Libby Quote Link to comment Share on other sites More sharing options...
blaze100 Posted November 5, 2006 Share Posted November 5, 2006 Power on Joe. You are in my prayers. Barb Quote Link to comment Share on other sites More sharing options...
Don M Posted November 6, 2006 Share Posted November 6, 2006 Good luck with your surgery Joe. Don M Quote Link to comment Share on other sites More sharing options...
Treebywater Posted November 6, 2006 Share Posted November 6, 2006 Praying for you Joe. I hope all goes super-smoothly and recovery is a piece of cake for you. Quote Link to comment Share on other sites More sharing options...
nonni Posted November 7, 2006 Share Posted November 7, 2006 Joe....sounds like the doc's have a good plan for you.....I will have you in my thoughts and prayer's....good luck and God bless....Great looking family by the way.. PamS. Quote Link to comment Share on other sites More sharing options...
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