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My worst fear


dcorey33

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Yes Dani, I can understand hubby's reluctance. Family will be calling with the "did ya hear yets". Plus you can bet the radiologist will give the usual gloom and doom cyoa report ...your other docs will have to read the PET scan it to get the real story.

Prayers for you Dani and extra good luck on Sunday's PET. :)

Barb

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Dani.. it is so very scary isn't it??

I will be praying for a clean PET scan and thinking about you on Sunday.. I, along with the others, agree on waiting to tell the family later. For me it was easier if it was just me waiting and worrying rather than knowing everyone else was doing the same.

Good luck!!!

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I think this is even scarier than when I found out about my lung cancer because that was so cut and dry. It was surgery and it was gone. This is different. I have no idea what could happen or what the treament would be. Heck, I don't even know what it is LOL.... I am just praying (really hard) that this will turn out to be nothing. I have close friends who know, my mom, grandmother and my husband of course my Bishop. Between their prayers and all of yours, I think I am covered :wink:

Thank you so much for your support.

Danica

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Thank you :) Even for carcinoid it is uncomon, and I know that. That is why I am not really freaking out to much about it.

My Dr.'s are just a little concerned because I still have carcinoid syndrome and they are not able to find the tumor responsable for it. I guess in time.

dani

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Today being Thanksgiving and all, I really am thankfull. Today I will be going and spending the day with my husbands family. In itself not a bad thing, but I realy wanted to see my folks who are just 3 hours away. Thats OK though. I think what I am fighting with is I realy don't feel like being around all that food. Food and me don't get along and i know I am going to get bombarrded with questions and coments like you are to thin you need to eat and things like that. They may mean well but they are so critical. In my state of mind and being that we have not told anyone what is going on I am going to look bad in their eyes. Don't get me wrong I love the holiday. I just wish I could quietly skip it or pospone it until next week LOL.

Sorry about the vent.

I just did not sleep well and I am overly emoutional for some reason today.

THanks for listening.

Danica

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Dani, I too am thinking about you. I hope you can find someone to intervene and nicely tell everybody to stop bothering you. After what you've been through I can understand you being emotional.

Hope your day is nice and you can at least enjoy a little turkey and maybe mashed potatoes or whatever you can eat.

Try to have a nice day.

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Thank you Lilly I send you warm wishes as well. I hope all goes well. Let me know :)

Tomorrow morning before I go in I will be writing out my Christmas cards that I picked out today. My scan isn't untill the afternoon so it is a good thing I have a huge family (9 brothers and sisters) then there is my husbands family. However they are not as into cards as my family is. Thats OK it is more for me anyway. It will give me something to do beside think about the scan ahead of me. I am however extremly more nervous about this one than any of the others for some reason....

Well I am really tired. and I have rambled on enough. LOL...

I'll wish they could give you results right there (I guess in a perfect world).

Danica

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Hi Danica,

I will be keeping you in my prayers that these scans show no cancer in your pancreas or anywhere else for that matter.

I've done a lot of research on Atypical Carcinoid as well, since that is what my husband had. I was just wondering if your doctors have talked to you at all about Sandostatin. It helps control the carcinoid syndrom but also has helped suppress mets and even shrank tumors in some patients.

There are also 2 doctors that are considered the top 2 specialists for carcinoid Dr. O'Dirisio at the University of Iowa and Dr. Lowell Anthony (Used to be at LSU Mercy Hospital in New Orleans, but not sure since hurricaine Katrina). If your scans do show anything suspicious, I would highly recommend Dr. O'Dirisio. and try to get in to see him. There is one very promising trial specifically for Atypical Carcinoid (Ytrium trial) for which Dr. O'Dirisio prequalifies patients for. And he can work with your existing oncologists to get many of the tests done.

Anyway, I hope and pray that this information is unnecessary, and that all your news is good. I am so sorry you are going through all of this, but glad to know you have such a wonderful and supportive network of family and friends.

God Bless

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Thank you Carleen :) I have a great Dr. unfortunantly the oncologists I have in the health plan I have will not refer me outside of the health plan to see a specialist. As far as they as concerned I don't have a real form of cancer and they treat me very poor. The only reason I get the tests I get is because my generalpractitioner is willing to go above and beyond. I know that eventually I will have to go through arbutration with my health Ins. Co. I just don't have the time, money or resorces right now to do it. I am praying that this latest scan is negitive and I can hold off for a while. I know of that drug you mentioned, however getting my health ins. co. to pay for it is another story. That will take time as well. For now I take it day by day.

Thank you Maryanne :)

As for the scan I should know in 2-3 days some results.

Danica

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OK day 3 still no results. I guess no news is good news LOL :D

Actually Kaiser (my health provider) contracts out to anouther company to do these scans. If I remember corectly (sorry can't spell worth beans :oops: ) the first scan I had took forever too :roll: I am just getting impatiant.

dani

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I am SOOOO EXCITED TODAY!!! All my scans came back CANCER FREE!!!! So tonight I celibrate with my DH and my DD.

I do have to go in for more testing to find out what the real culprate of my mysteriouse illness is, but at least it's not cancer. At least not this time. My Dr. did say I have to repeat the same scan in 3 months, but I am not thinking about that right now. Right now I am looking forward to the best Christmas. Then an end to one of the worst years of my life and hopefully a good start to a better New Year :wink:

Thank you for all your prayers....

Danica

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