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I'm so not happy


palves

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We expected my dad to start a new trial of a drug previously used to treat other cancers (in trials as well). Found out today that more than likely there is not an opening right now. The choices are to wait or to possibly start maybe Alimta or Taxotere - but I'm not sure as my dad didn't take a good message. Mom is going to call tomorrow to find out more. I'm just disappointed - being that w/in 6 weeks it had started to grow again I'm not sure we should wait (my mom doesn't want to and I don't think my dad really has expressed his opinion at all on this at this point).

Not expecting any comments, just venting I suppose.

Thanks for listening.

Paula

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Your frustration is understandable. I am so sorry that the clinical trial did not work out for your dad. I hope and pray that a trial or plan is set in place to help him very soon.

Carol

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Hey Paula,

I'm sorry about the trial. Have you gotten any new news today? Are there other trials you guys can try? emergingmed.com has a clinical trial matching service you guys might take a look at.

I'm hoping for some encouraging news for your dad soon. Talk to him. See what he wants to do.

Hugs and Prayers for your dad and family.

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So maybe he can start in another month. They are finishing up this dosage level, then they will start the next level. It sounds from the information i'm getting 3rd hand here that maybe each hospital participating gets to name a player to join the study and they do this in rotation. So the rotation for RWJ won't be again until something like end of Dec. Decision - wait a month or move forward w/ something else. I think my parents have decided to wait it out. And thats ok, but they can't drive me nuts then w/ continual thoughts that its growing and being down. I was pretty short about it yesterday and even more so when my dh said again aren't there any stage 3 trials. Ok hon, its hard enough for me to deal w/ my parents and trying to sort out the information, and work full time, and do the family and home stuff, yes, i need to work another 24 hrs a day finding a trial for my dad. Thanks ... So of course the guilt comes into play, maybe i'm not doing enough research .. urghhhh.

Continuing the waiting, wondering, and hoping ....

Paula

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