Shar Posted December 12, 2006 Share Posted December 12, 2006 Lilly I feel for you and your family. It sucks, it really does, you have done nothing to deserve this. Just read how many people on here have survived with brain mets, you can do this. I will be thinking of you, Sharon Quote Link to comment Share on other sites More sharing options...
ma's kid Posted December 12, 2006 Share Posted December 12, 2006 Lilly, Prayers and gentle hugs. Take some time to let this latest development sink in and KNOW that we are here for you...to listen or to help in anyway we can. Love, Libby Quote Link to comment Share on other sites More sharing options...
Mendy Posted December 12, 2006 Share Posted December 12, 2006 Oh Lilly...I am heartbroken at your news. This must be incredibly frightening. You have been so strong with the treatment you have had to endure. I know you will continue to be strong as you and your doctors come up with your new treatment plan. Others have done very well with brain mets and I pray you do as well. Even when we think we have had enough there is more strength within to deal with what we are faced with. Give your children a few extra hugs and kisses and I am sure you will find strength. I am praying for your continued health. Hugs, Mendy Quote Link to comment Share on other sites More sharing options...
Maryanne Posted December 12, 2006 Share Posted December 12, 2006 Keep a positive attitude, try to keep out those negative thoughts. Thoughts are things, and that anxiety can cause too much stress. You certaintly do not need that. Hang in there, you will be find. Maryanne Quote Link to comment Share on other sites More sharing options...
ursol Posted December 13, 2006 Author Share Posted December 13, 2006 Met with the neurosurgeon and the radiation oncologist that runs the Gamma Knife at Yale. The two lesions in my brain are very small and deep which is common with metastatic cancer of the brain. The larger is smaller than 1 cm. Therefore traditional surgery is not an option because they would not be very visible. We discussed WBR as an alternative and for preventative care but the neurosurgeon discussed cognitive issues with WBR and with someone so young they think to hold off unless they have not other alternative to controlling the recurrence. 9 out of 10 patients do not have any recurrence in the first year. 8 out of 10 do not have any recurrence in the second year. The stats are pretty good so now I'm hoping I'm on the good side of the stats as opposed to the bad side. I also got an opinion from Duke regarding whether I am risking anything by not looking into cyberknife vs Gammaknife. The opinion from Duke is the difference is minimal. So I'm confident that I can move forward. Duke's opinion was that I need to make sure I have a whole plan...(I believe they meant what will be done with the adrenal, plus chemo etc,) I'm still trying to get a handle on the entire plan and need to speak to my oncologist tomorrow. I'm feeling so much better after talking to them today. Anyhow, the gammaknife procedure is happening this Thursday at 3:00 PM. I will go home afterwards and can go to work the next day but the doctor recommended I stay home as my head may hurt a little from the weight of having the frame attached. Also my wig came in and I just got it fitted and it looks wonderfully natural. It was a new style from the Raquel Welch collection ($310.00) and is well worth it. Feels very light weight and very natural looking. I feel almost normal again. The hats were making me too hot in the office at work. Anyhow, thanks for listening to me and being here through all of this. Quote Link to comment Share on other sites More sharing options...
Nick C Posted December 13, 2006 Share Posted December 13, 2006 Sounds like a plan. God bless you!!!!! Quote Link to comment Share on other sites More sharing options...
carolhg Posted December 13, 2006 Share Posted December 13, 2006 Good it is good to hear that you have a plan and strategy for ridding yourself of this awful disease. Carol Quote Link to comment Share on other sites More sharing options...
nikkala Posted December 13, 2006 Share Posted December 13, 2006 Oh Lilly, I am so glad there is a plan . Now you can put your fightin gloves on and kick some cancer butt. I wonder if I get one of those wigs if i could look like Racquel Welch. Hang in there girl. Quote Link to comment Share on other sites More sharing options...
marym Posted December 13, 2006 Share Posted December 13, 2006 Hi Lilly, I have had the SRS twice and bothe times was a piece of cake - not even a headache afterwards. Mary Quote Link to comment Share on other sites More sharing options...
TracyD Posted December 13, 2006 Share Posted December 13, 2006 Sounds like a good plan is coming together, so glad to hear it. You hang in there, you're going to come through this with flying colors. Glad to hear you like your wig, every little (or big) thing that makes us feel better is a good thing. Tracy Quote Link to comment Share on other sites More sharing options...
Welthy Posted December 14, 2006 Share Posted December 14, 2006 Lillian, So sorry about the mets, what a scary time. I am glad to have caught your latest post about a game plan. It's amazing how comforting a game plan in place can be. You will be in our thoughts tomorrow. Keep us posted and glad you'll be feeling stylish in that new 'doo! Welthy Quote Link to comment Share on other sites More sharing options...
mamasbabygirl Posted December 14, 2006 Share Posted December 14, 2006 Praying for you to feel good after your procedure today. I know it is a long day, but I hope you feel great tomorrow. Many prayers and hugs hugs hugs. Quote Link to comment Share on other sites More sharing options...
cindi o'h Posted December 15, 2006 Share Posted December 15, 2006 Lilly, So glad you are in greatest of care and you like your new doo... Cindi o'h Quote Link to comment Share on other sites More sharing options...
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