nancyf267 Posted December 26, 2006 Share Posted December 26, 2006 14 1/2 months ago I was dx with limited SCLC (biopsy taken from broncoscopy). I went through chemo, radiation, and PCI. October of this year, I was coughing up a little blood, so in I go for another biopsy. I was trying to avoid the results, but ran into my doctor while visiting someone in ICU at the local hospital. He told me the news...it came back SCLC...says it looks just like it did a year ago, how can that be after all the chemo and rad. After all the scans, it's still limited. He then sends me up to Portland to see this doctor that is suppose to be the very best in the Northwest. My husband and I were very impressed. He asked that I go in for another biopsy so that he could have his specialist look at it, she only deals with chest cancer. I go in for the biopsy (I think he tried to remove my lung, it was terrible). I got a call on Thursday from the Portland doctor...."Mrs. Forte', Merry Christmas, you do not have SCLC, you have a carcinoid tumor ~ you were misdiagnosed last year!" You can imagine how that phone call changed my life! I have to have it removed (my right upper lobe and part of my windpipe)which he said is going to be very difficult because it's in my large bronchi and I have had so much radiation there...causing a lot of scar tissue. The survival rate for this type of cancer is remarkable! Without a doubt, I have been blessed. I almost feel guilty posting this, but I'm trying to make the point that doctors and labs are sometimes wrong. I can't complain because the news is so good, but all of my treatment was for nothing ~ a carcinoid tumor doesn't respond to rad or chemo! I should have had this removed in Nov of last year. I could have saved thousands and thousands from co-pays and deductables, and my body did not have to endure the nasty treatment...I keep thinking they fried my brain for nothing! We won't even mention the middle of the night panic attacks..you know what I'm talking about..my oh my, what goes through our heads! I will no longer accept a dx from any one lab in the future, I will demand two labs be involved...I allowed the medical community to have way too much control! I continue to pray for each and every one of you and your family! Quote Link to comment Share on other sites More sharing options...
Don Wood Posted December 26, 2006 Share Posted December 26, 2006 Great news, Nancy! Have a great 2007! Quote Link to comment Share on other sites More sharing options...
P.S. I Love You Posted December 26, 2006 Share Posted December 26, 2006 No need for any guilt, this is just terrific news! You deserve it! Quote Link to comment Share on other sites More sharing options...
blaze100 Posted December 27, 2006 Share Posted December 27, 2006 Great news Nancy. I'm wondering though, did this tumor go away with radiation and chemo and then come back this year? Or was it there the whole time after treatment, just hidden by so radiation scar tissue? Barb Quote Link to comment Share on other sites More sharing options...
nancyf267 Posted December 27, 2006 Author Share Posted December 27, 2006 They say it never did go away, it was assumed to be scar tissue after the treatment. Quote Link to comment Share on other sites More sharing options...
karen335 Posted December 27, 2006 Share Posted December 27, 2006 WOW! Will you have any side effects from the chemo, PCI and radiation? Especially since you didn't need any of those treatments... You are so blessed Prayers and hugs, Karen Quote Link to comment Share on other sites More sharing options...
Nushka Posted December 27, 2006 Share Posted December 27, 2006 Great news Nancy. I wish you a smooth surgery and quick recovery. I sent my path slides to 2 places. They both agreed so I needed my treatment. Your case lets me know I did the right thing by insisting on two lab reports. Nina Quote Link to comment Share on other sites More sharing options...
Frank Lamb Posted December 27, 2006 Share Posted December 27, 2006 Nancy,that is great news but sorry you had to endure all the other treatments and side effects. Good luck with the surgery and wishing you a speedy recovery. Quote Link to comment Share on other sites More sharing options...
blaze100 Posted December 28, 2006 Share Posted December 28, 2006 Hi Nancy, Have you read nyka69 posting. Her hubby recently dx'd with very large sclc tumor.... Are sclc tumors normally very large? Barb Quote Link to comment Share on other sites More sharing options...
Maryanne Posted December 28, 2006 Share Posted December 28, 2006 Nancy, So happy for your good news. You must be trilled, but I feel bad for all you went through all that torture and how scared you were.... But hey, you are LC free and that is incredible and a big congrats...to you. Now you can relax and get on with your life. This is certainly a Happy New Year for you!!! Maryanne Quote Link to comment Share on other sites More sharing options...
kamataca Posted December 28, 2006 Share Posted December 28, 2006 There's a reason why we have the Good News forum--we all love to celebrate with you! So glad you got what passes for good news in this crazy world. We're rallying behind you. Keep us posted! Kelly Quote Link to comment Share on other sites More sharing options...
kbroo2 Posted January 2, 2007 Share Posted January 2, 2007 Please don't feel guilty! That is Great News - you are blessed! Keep us posted and Happy New Year! Kevin Quote Link to comment Share on other sites More sharing options...
Connie B Posted January 3, 2007 Share Posted January 3, 2007 O H M Y G O D!!! ((NANCY)) I'm very glad to hear it's not SCLC and that you don't HAVE SCLC. I hope all turns out well for you. I hope this tumor can be removed with very few problems. WOW, I'm in shock I can't imagine what you must feel like! ((((((NANCY)))))))) Keep us posted and know we're here for you. Quote Link to comment Share on other sites More sharing options...
karen335 Posted January 3, 2007 Share Posted January 3, 2007 Congrats Nancy. Glad it was good news for you, what a blessing. Wish we had some news from Nancy B... Quote Link to comment Share on other sites More sharing options...
ernrol Posted January 3, 2007 Share Posted January 3, 2007 Nancy, That’s great news. Don’t feel guilty. This is good for people to hear. This points out why a second or third opinion is so important. Stay positive, Ernie Quote Link to comment Share on other sites More sharing options...
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