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Hello - I'm new to this forum


Tanner

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Tanner,

It breaks my heart to hear of another young person with this nasty disease. I am sorry you had the need to look for us but so glad that you found us. I will keep you, your wife and children in my prayers. This is a wonderful place for information and support. Keep us posted.

Nina

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Hi Tanner, and welcome to the site. I am so sorry finding us was needed.

My heart goes out to you and all the families with young children having to cope with this awful disease.

I was diagnosed in Apr 2005 with NCSCL IV,(lge upper left lung tumor, mets to brain,spine, clavicle and pelvis). I have had the clavicle and two spine mets radiated and am pain free. I also have had brain mets treated twice with radio surgery (similar to cyberknife). What I can tell you is that I have felt well 95% of the time since being diagnosed. Other than requiring more sleep then usual, I have been well. You can see below what treatment I have recd. I'm now on Tarceva but haven't been on longer enough to see if it's effective, but again, I have very minor side effects and feel healthy.

I hope that your wife will be able to handle the chemo without too much difficulty. I do encourage her to make sure she gets any additional meds needed to deal with effects (like nausea,etc).

Best wishes.

Mary

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Hi Tanner,

You found the best place for support and useful information. It's a horrible shock to the system when that diagnosis comes. I'm so sorry for you family having to go through this. I wish you all the best. Every time I look on this message board, I find an inspiring story. I'm sure you will too!

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