palves Posted September 28, 2003 Share Posted September 28, 2003 Hi I'm new to this forum and to LC. My dad was recently dx with NSCL, adenocarcinoma. We are waiting the results from the PET scan and a 2nd meeting w/ the onc. to determine stage and treatment. His bone scan and brain MRI came back clear - thankfully .. Just waiting on pins and needles, trying to deal with every day life, and trying to learn as much as I can before our next appt. What initially sent him to the Dr was a "feeling of faintness" at times, low blood pressure, high pulse rate. They first thought it was pneumonia and my mother thought it was diabetic neuropathy. He has also lost about 20 lbs. He looks VERY thin ... He says he is having shortness of breath now as well and his leg is bothering him which maybe from a pinched nerve or something like that. An u/s this week showed no blood clots. Wondering too if he will be denied participating in any clincial trials due to his (insulin dependent) diabetes. Does anyone know anything about that? Warm hugs to you all. Paula Quote Link to comment Share on other sites More sharing options...
Don Wood Posted September 28, 2003 Share Posted September 28, 2003 Hi, Paula, and welcome to the boards. Don't know anything about the insulin, but there is plenty of info and support here. Keep us posted on your dad. Don Quote Link to comment Share on other sites More sharing options...
BarbaraL Posted September 29, 2003 Share Posted September 29, 2003 Paula, I sent you a PM (private message) because we live so close to one another. Check the message link at the top right of this page. I can't help with your specific questions, but we might be able to support each other locally. Barb Quote Link to comment Share on other sites More sharing options...
stephnewyork34 Posted September 29, 2003 Share Posted September 29, 2003 Hi, I have no answers for you. I am learning as I go too, but welcome! This is a great place for support and to get some answers! *hugs* seriously I often find myself with no one to talk to about my Mom and I lean on this board, infact they all got me through the last two weeks when Mom went through surgery. Quote Link to comment Share on other sites More sharing options...
niececola Posted September 29, 2003 Share Posted September 29, 2003 Hi Paula, Welcome! Sorry for the reason you are here, but know that you are going to have tons of support here and meet people who really understand what you are going through. Quote Link to comment Share on other sites More sharing options...
Andrea B. Posted September 29, 2003 Share Posted September 29, 2003 Paula, Welcome...sorry you have to be here. But this is a great group of people! You will find lots of support here. Sorry I am not able to answer any of your questions regarding insulin and trials. Please keep us posted on how your dad is doing. All my best to you, Andrea Quote Link to comment Share on other sites More sharing options...
norme Posted September 29, 2003 Share Posted September 29, 2003 Hi Paula, You will find some great reading on this disease by going to www.blochcancer.com and www.chemocare.com. Sorry to hear about your dad. This lc is a hard road to go down but hopefully after they get your dad on track, he can start the road to remission.... Quote Link to comment Share on other sites More sharing options...
Guest Posted October 2, 2003 Share Posted October 2, 2003 Went to see the onc today. Good news is that it has not spread at all - staged at 3B. 2 options given chemo/radiation for 6 weeks or clinical trial of 3 drugs - Carboplatin, paclitaxel (Taxol) and Gemzar. So torn at what to do. Radiation on the one hand will really help to kill the suckers, but will stink as far as going every day and the throat effects. Plus its a more standard therapy. Or do we try something new that might not be so agressive. We are thinking of going w /the clinical trial as it might be a bit easier on dad, he needs to get his nurishoment and I'm quite concerned about the radiation effects that might preventing him from eating and stuff like that. I honestly don't think he can handle going for treatment every single day. He has to be first tested further for acceptance into the trial. Any thoughts would be appreciated. If you had a choice, how did you decide? Paula Quote Link to comment Share on other sites More sharing options...
natalie Posted October 2, 2003 Share Posted October 2, 2003 Paula, if I were you, I'd try to push for surgery or inquire about it. If they say that your Dad is not a candidate inquire about Radio Frequency Ablation (RFA) to the lungs. From what I've been reading, the best way to beat this thing is to surgically remove the primary tumor. Keep us posted and good luck! Quote Link to comment Share on other sites More sharing options...
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