ursol Posted January 3, 2007 Share Posted January 3, 2007 I started chemo last thursday 12/28th (cisplatin and Gemzar). managed to get through Saturday okay but not feeling well by New Years Eve. Stayed in bed and managed to watch the ball drop with one eye with all the kids on my bed. Was supposed to go back to work on Tuesday and could not, lost ability to hydrate. My mouth is full of mucotitis, I'm trying to force water down now. Went to clinic for hydration yesterday and now trying to work from home today. Next chemo in two days and I just don't know how to stay strong through this. This morning I started vomiting so I'm hoping they can find another med to help. I'm just so tired, I want to crawl in bed and stay there. My kids don't want to be near me now as they see me as too sick. I know it will get worse before it gets better and I have to do this to stay alive, as you all know, it's hard some days. hope everyone else is doing well into this new year. Love and hugs for all Lilly Quote Link to comment Share on other sites More sharing options...
raneyf Posted January 3, 2007 Share Posted January 3, 2007 I'm sorry Lilly - I hope they find some anti-nausea meds that work for you before the next chemo. Quote Link to comment Share on other sites More sharing options...
trish2418 Posted January 3, 2007 Share Posted January 3, 2007 Hi Lilly, I'm sorry you're going through such a tough spot right now. But you're super strong and you will get through this. I hope the doctors can prescribe a drug that will take care of the nausea. Once that's resolved you'll feel much better. In the meantime, drink as much as you can and show your children what it means to be a fighter. Stay strong. Trish Quote Link to comment Share on other sites More sharing options...
joanie55 Posted January 3, 2007 Share Posted January 3, 2007 I know how hard it is to drink water. I became dehydrated twice. You can try ices, jello, ensure, carnation liquid breakfast drink, gateraid, etc. Also, as far as eating, my doctor says when you're going through chemo, all bets are off. Whatever you feel like eating , eat. Quote Link to comment Share on other sites More sharing options...
Heather_T Posted January 3, 2007 Share Posted January 3, 2007 I am sorry you are going through this. I know this is hard on the kids it is on mine. Just try to stay strong I know those days were you want to stay in bed all day. That is were I wil probably be this weekend after my treatment. I hope you start feeling better and good luck on future treatments. Heather_T Quote Link to comment Share on other sites More sharing options...
sharonjo Posted January 3, 2007 Share Posted January 3, 2007 Lilly, So sorry you are having such a rough time right now. Do what you can to take in fluids so you don't dehydrate, and hopefully the doc will have something for you to quell the nausea. I am praying that you will get some relief soon. Hang in there and stay strong! God Bless, Sharon Quote Link to comment Share on other sites More sharing options...
Don Wood Posted January 3, 2007 Share Posted January 3, 2007 Hang in there, Lilly. As you say, it is something you need to beat back the beast. Don Quote Link to comment Share on other sites More sharing options...
ernrol Posted January 3, 2007 Share Posted January 3, 2007 Lilly, Sorry to hear that you are having such a hard time with the chemo. I just try to think why I had no problem at all and others have such a hard time. I wish I could figure out why and wrap it up and send it to you. I will pray that they find that med that will help. Stay positive, Ernie Quote Link to comment Share on other sites More sharing options...
mary colleen Posted January 3, 2007 Share Posted January 3, 2007 Lilly, I am so sorry you are having such a hard time! Hang in there! Quote Link to comment Share on other sites More sharing options...
Welthy Posted January 3, 2007 Share Posted January 3, 2007 Oh (((Lilly))), You have gone through so much surgery, treatment, & radiation in such a short period of time. This new one is really hitting you hard coming on top of all of the rest. I'm so sorry -- I just hate that this is happening to you. Hopefully you will get a new anti-nausea med to help. Hang in there -- I know you are a tough cookie. You will prevail!! Welthy Quote Link to comment Share on other sites More sharing options...
Ry Posted January 3, 2007 Share Posted January 3, 2007 Sorry you are feeling so crappy. I hope they get the nausea settled down -- keep drinking whatever you can. Remember many foods help with dehydration such as rice and pastas that absorb water so if those are easy to keep down try those. Quote Link to comment Share on other sites More sharing options...
TracyD Posted January 3, 2007 Share Posted January 3, 2007 Hi Lilly, It sounds like everthing is just the pits right now, but you are so strong, I just know you will get through it. I was looking at the picture of your beautiful children as I read your post, and I could just picture you all together watching the ball drop, it made me smile. Hang on to those moments, they will give you the strength you need when you feel like you're just too darn tired to take anymore. Fight, fight fight!! Hugs and prayers for you and your family. Tracy Quote Link to comment Share on other sites More sharing options...
Maryanne Posted January 4, 2007 Share Posted January 4, 2007 Lilly, I am sorry you are feeling so rotten. I really hope they can give you something that will help that neasuea. That has to be horrible. Hang in there, concentrate on those beautiful kids of yours and one day soon this will be all behind you. Meanwhile, try to get some liquids down, rest when you have too and don't feel guilty for not being there for your family. You must take care of yourself. Take care honey, I really hope you start to feel better. Maryanne Quote Link to comment Share on other sites More sharing options...
Shar Posted January 4, 2007 Share Posted January 4, 2007 You are a fighter Lilly, that is a fact! Hopefully they will find something for you to ease the nausea. That part is so unfair. I'll be thinking of you, Sharon Quote Link to comment Share on other sites More sharing options...
Linda661 Posted January 4, 2007 Share Posted January 4, 2007 Lilly: Sending prayers for a speedy answer to those nagging issues that are plaguing you. You have been through so much since dx. As others have said, eat and drink whatever you can and don't let up on the doc. until s/he finds an appropriate anti-nausea med. to help you. Keep us posted too -- I didn't see where you might have mentioned what meds. you are taking. Perhaps if you posted those, others could suggest an alternative that has worked for them during difficult times so you could perhaps nip this in the bud all the quicker. Linda Quote Link to comment Share on other sites More sharing options...
Chanwit Posted January 4, 2007 Share Posted January 4, 2007 Lisa know nausea and vomiting all too well. Kytril anti-nausea seems to work the best for her. You take one 1mg tablet and you are good for 12 hours. It's worth the price of the drug. The stomach acid producing cycles get all out of sync during chemo and cause unpredictable results like nausea. The Kytril should help you injest food and liquids without the nausea. Lisa also did protein drinks with soy when she couldn't get down solids. Good Luck in 2007 Quote Link to comment Share on other sites More sharing options...
Don M Posted January 4, 2007 Share Posted January 4, 2007 Lilly, I am sorry your are having a hard chemo. Make sure the oncologist knows about your nausea and get something that works. They should be able to come up with something. Don M Quote Link to comment Share on other sites More sharing options...
marym Posted January 4, 2007 Share Posted January 4, 2007 Hi Lilly, I'm sorry you are having such a tough time. I had gemzar and carboplatin. It made me tired and in order toavoid nausea, I took the anti-nausea pills before I felt sick. Usually on day 3. The added benefit is that the anti-nausea put me to sleep. Do make sure you get fluids. I hope it gets easier on you. Make sure the doctor knows how badly you feel. And check that the redblood count is okay. You might need some aranesp. (I actually was transfused twice do to low red blood count and had aranesp every month.) One other thing that made me very tired was low potassium. I had some fluid retention so the doctor prescribed a "potassium sparing" diuretic. In my case, it didn't spare the potassium and I became dangerously low. Good luck Mary Quote Link to comment Share on other sites More sharing options...
dihen Posted January 4, 2007 Share Posted January 4, 2007 {{Lilly}} Hoping you are feeling better today and continue to feel more and more better each and every day. Quote Link to comment Share on other sites More sharing options...
Tanner Posted January 4, 2007 Share Posted January 4, 2007 My wife is on 2 different anti-nausea drugs. Ativan, and Compazine. She has taken these every day since chemo began in Sept. She hasn't been nauseaous except for the one time that I forgot to call in the scrip for the ativan and we ran out for a day. She also takes Dolesetron for 5 days following the chemo treatment. We have been lucky. I hope you find the right mix of pills to help you too. Tanner Quote Link to comment Share on other sites More sharing options...
joanie55 Posted January 4, 2007 Share Posted January 4, 2007 EMEND worked wonders for me for chemo. The only problem is that it is quite expensive and I would see if it is covered by insurance. You only need 3 pills, one the day before chemo, the day of and the day after. After chemo I used compazine which was good, but not EMEND. But, I think everyone may react differently to different meds, but definitely worth looking into. Joan Quote Link to comment Share on other sites More sharing options...
hopeandstrength Posted January 4, 2007 Share Posted January 4, 2007 Just sending you hugs and prayers. Cathy Quote Link to comment Share on other sites More sharing options...
nonni Posted January 5, 2007 Share Posted January 5, 2007 Dear Lilly....I am so sad that you are going thru this...stay strong honey...you can do this....praying that you will feel better quickly. hugs...PamS. Quote Link to comment Share on other sites More sharing options...
pewjumper Posted January 5, 2007 Share Posted January 5, 2007 Lilly, Hang in there. I know it sucks. Quote Link to comment Share on other sites More sharing options...
nikkala Posted January 5, 2007 Share Posted January 5, 2007 Continued prayers for you Lilly. Hope today finds you feeling better. Quote Link to comment Share on other sites More sharing options...
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