Jenny G. Posted September 28, 2003 Share Posted September 28, 2003 The National Familial Lung Cancer Registry was established at The Johns Hopkins Medical Institutions in September 1993. The goals of the Registry are: 1) to further our understanding of the causes of lung cancer (beyond smoking), and 2) to serve as an educational resource for persons at risk for lung cancer. Over 270 lung cancer families are registered to date. So far, research with these families includes studies of DNA repair capacity and genetic markers and their relationship to environmental factors. If two or more people in a family have been diagnosed with lung cancer, the family is eligible to be part of the Registry. Family members and patients can refer themselves to the National Familial Lung Cancer Registry, as well as those referred by physicians. Each patient/family referred will be sent a family medical and smoking history questionnaire. In addition we will need to obtain a consent to release medical records on family members with lung cancer. This will allow us to review the medical records and pathology slides of each affected family member to confirm all cases. Family members who have participated in our study have written letters describing how lung cancer has affected their families and the families' experience with our research study. We urge persons from families in which more than one family member has had lung cancer to register their families. http://www.path.jhu.edu/nfltr.html/ Quote Link to comment Share on other sites More sharing options...
Ry Posted September 29, 2003 Share Posted September 29, 2003 Several members on here have mentioned parents or other family members dying of lung cancer. I hope they see this. Quote Link to comment Share on other sites More sharing options...
Jenny G. Posted September 30, 2003 Author Share Posted September 30, 2003 I noticed too that there seems to be many on here with family members. This could be important research and in 10 years they only have 270+ signed up. Think what this might mean to our children.. Jenny Quote Link to comment Share on other sites More sharing options...
lynn Posted October 3, 2003 Share Posted October 3, 2003 Thanks for the info...I signed up. Curious to see what this entails. I would have prefered to qualify for a free toaster or something! Have a nice weekend all, Lynn Quote Link to comment Share on other sites More sharing options...
Connie B Posted October 6, 2003 Share Posted October 6, 2003 Hi De Ho All, Well, I did it, I am all signed up on the Registry. My grandfather, father, mother, sister an Uncle and MYSELF!! Wow, didn't think I would have enough room to write it all on there. Hehehehe! Quote Link to comment Share on other sites More sharing options...
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