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Posted

Hi All,

I wanted to update some of you on Whole Brain Radiation and what I've gone through the last few weeks. I was really afraid of going through this, as I know a lot of us are. I had never hard anything good about having id done or going off the accompanying medications (especially decadon).

My actual treatments lased 2 minutesd. Start to finish was about 5 minutes. My biggest problem was that constant hungar plagued me all day long. I could not stop eating. It was insane. Eventually I just gave in and enjoyed my food. I guess in the last week I gained 8 pounds.

I had no sleep poblems that I know some have had. As far as the weight I know it will come off and I'm probably better of a little heavier.

I do feel great. No headaches,,,,which was my original problem.

Well, my job now is to keep on fighting. I go for lots of scans over the next two weeks. Brain, CT, etc. Hopefully WBR has done its job for me until something better comes along.

Wishing you all the very best in your own fights. It makes me so sad that so many of us need to be doing this.

Joan[/i]

Posted

It is sounding pretty good, Joan. You know I have been rooting for you, and hearing that you feel well does my heart good. I will start up the prayers for more than good scans and will wait anxiously until you post. Weight is an issue that can be dealt with at some later date, right Joan? For now.......get yourself in as good a shape as you can as far as LC is concerned. I am 2 sizes larger than before all this started, BUT feel great and look healthy. That is what's important.

Love and very positive vibes coming north to you.

Kasey

Posted

Joan,

So glad that the WBR was pretty easy for you and that you are feeling well. I am keeping you in my thoughts and prayers for good scan results and continued good health and spirits!

God Bless,

Sharon

Posted

Joanie,

I hope your next round of scans show the WBR to have

been a success. Yes it is a scary treatment to go through, but the results can be good.

Please keep us up to date and continued prayers your

treatments have gone well.

Posted

Thank you for the update Joan. Your treatment and your response to the treatments sounds very encouraging. Praying for complete healing for you.

Carol

Posted

Joanie you are such the trooper!!!! I was having a bad day and then I read your post, you put a big smile on my face! :D

I've seen my husband go thru WBR, and the first time he had it, his overall results were fantastic! I know you are going to have the same success.

You probably already know, but don't be suprised if you become really fatigued, I've told and still telling my husband do what your body tells you to do. Don't feel guilty if your too exhausted to do anything, just what you have been thru is beyond exhausting...

I'm so very happy for you!

Grace

Posted

Joanie,I am glad you handled the wbr well.It wasn't all that bad for me either except for all the other things that are plaguing at the same time.

Hang in there and good luck with upcoming tests and scans.

Posted

Keep fighting Joanie!!! We love you so much here!!!

You are a breath of fresh air!!!

I'm always praying for you!

GOD BLESS!!

Jamie

Posted

Go Joanie! Your fighting spirit is such an inspiration. Prayers this week for some good scans....you have to stay strong to lift that rol-poly little grandbaby.

Posted

Joanie, I am so glad to hear you're feeling good after the treatments. You have my prayers that the WBR does what it's meant to - kick those cells to the curb! You are never, ever far from my thoughts.

Posted

Joanie,

I am so glad to hear you are strong and handling all so well. Girl, you enjoy those ice cream sundaes! While you are at it, have one for me!!!!

God bless,

Jen

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