JenkazMrs Posted March 16, 2007 Share Posted March 16, 2007 Hi, I woundered if anyone else was fighting for or been refused this drug in the UK? Thanks in advance D x Quote Link to comment Share on other sites More sharing options...
dtay Posted March 16, 2007 Share Posted March 16, 2007 As soon as I mention Tarceva as treatment for my Dad the Onc says no straightaway - I think it all boils down to cost. It is licensed in Scotland, so why not the rest of us ?? Dawn Quote Link to comment Share on other sites More sharing options...
JenkazMrs Posted March 16, 2007 Author Share Posted March 16, 2007 Hi Dawn, I am in the process of fighting for this Drug for my husband. I have involved our local MP who has contacted the PCT in our area asking why my hubby cannot have this drug.They came back with this, "Dr has not asked the PCT for this drug", they said that the drug only suits certian people. The oncologist was willing to write us a prescription for us to buy this drug ourselves so there fore he must meet the criteria, he in fact said that he was a good candidite. But said that NICE guidelines had not approved the drug. My MP said that the decision is not down to NICE the decision is the PCT's I am now chasing it up. I will let you know how it goes. D x Quote Link to comment Share on other sites More sharing options...
dtay Posted March 16, 2007 Share Posted March 16, 2007 Thanks - let me know how you get on. Everything is always such a battle isnt it - I wish life was more simple !!! They told me that because my Dad has Squamous cell NSCLS and is an ex-smoker(30yrs ago he gave up)that it wouldnt help him - I have read posts here tho of similar cases to my Dad and Tarceva has helped !! Best of luck to you and your husband in your fight, Dawn x Quote Link to comment Share on other sites More sharing options...
RandyW Posted March 16, 2007 Share Posted March 16, 2007 If I can help with anything from the other side of the pond drop me a note. Will be happy to do what ever I can to help. I am apalled at this whole issue but do not know what I can do. Hate to just sit by and watch this unfold this way. Sending Prayers for good luck getting this through the system. Quote Link to comment Share on other sites More sharing options...
j ross Posted March 16, 2007 Share Posted March 16, 2007 hello I have been involved with this for awhile now. Obtaining tarceva on the nhs is difficult. I have lobbied my mp had letters from ministers and have been exchanging emails with NICE. Have made little progress. I was at a function at the House Of Lords this week in connection with the Roy Castle Foundatin (uk lung cancer charity) I spoke to a quite a few people on this issue. There needs to be a noisy co-ordinated campaign. Tarceva is not the only issue. Avastin is showing promising results for some, no chance in the uk. I would be happy to share, help organize etc. PM if you have any interest. Jennie Quote Link to comment Share on other sites More sharing options...
JenkazMrs Posted March 30, 2007 Author Share Posted March 30, 2007 Hiya Jennie, Just wanted to say thank you and that it was lovely talking with you today. You were so informative and ever so helpful. Thank you for checking out the website and for your support x Randy, Thank you for your support too! If anyone else fighting for Tarceva on the NHS would like to check out the support website I have put together fighting for this cause please take a look. http://www.lc-action4life.co.uk Take care all Deanne xxx Quote Link to comment Share on other sites More sharing options...
dtay Posted March 30, 2007 Share Posted March 30, 2007 Hi Have just looked at the website and signed the petition. You have done a remarkable job with your website - well done and keep up the fight. Best wishes Dawn Quote Link to comment Share on other sites More sharing options...
JenkazMrs Posted March 31, 2007 Author Share Posted March 31, 2007 Hiya Dawn, Thanks for checking out the site and your support x Take care Deanne xxx Quote Link to comment Share on other sites More sharing options...
dtay Posted April 5, 2007 Share Posted April 5, 2007 Dad just been prescribed Tarceva - had to get it on a private script tho -- totally gutted that he has to pay for this. Best wishes Dawn Quote Link to comment Share on other sites More sharing options...
JenkazMrs Posted April 5, 2007 Author Share Posted April 5, 2007 Hi Dawn, I have sent you a PM honey. Deanne x Quote Link to comment Share on other sites More sharing options...
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