Guest chillsey Posted April 27, 2007 Share Posted April 27, 2007 Hi, Chillsey here, can anyone give me some advice for my mum who looks a younger 77 years old and has NSCLC?. She has total collapse of the left lung with a 3cm tumour blocking her airway. She has had 10 treatments of palliative radiotherapy nearly 8 weeks ago to control the symptoms of the tumour. The coughing of blood has stopped to a beigey mucus and now is sometimes pinkish or clear but her cough has become more progressive to a point that she developed a severe chest infection with 2 weeks of antibiotics. Since then she has suffered regular shortness of breath, cough much worse at night and cannot go to bed and lay down as mucus collects on her chest and makes her cough uncontrollaby. I am waiting for an adjustable bed to arrive for her. She is very weak and is exhausted all the time and can walk no more than 10 yards without stopping, she refuses to go in a wheelchair. I know radiotherapy cannot work for everyone but are these symptoms normal and as she cannot sleep very well at night is taking all her energy up. She has been told she will need chemo and is awaiting another ct scan to see what the tumour is doing. I don't think she is strong enough to have chemo now, how long can she wait before it is too late to have it? Are these sypmtoms normal after radiotheraphy? Obviously it is worse as she only has her right lung. I'm praying she will slowly improve as she had better quality of life before the treatment. I feel her doctor doesn't support her because she is has been classed as terminally ill. She will soon have a respiritory nurse to assess her. I'm very stressed and worried for her but want to get her the best help and treatment I can. Chillsey. AUG 06- mum has pain left side of ribs, coughing blood,cough that never goes away, xray reveals left collapsed lung with retained fluid. SEP 06- mum to have lung drained waits to dee doctor for it for 7 hours! After going back again 2 days later has the drain & was in a lot of pain. FEB 07-changed hospitals broncosopy & ct scan done, 3cm tumour confirmed in left airway, lung still collapsed & damaged.Cancer not spread to major organs. Surgery not an option only palliative radiotherapy to control symptoms. MAR 07-10 treatments of radiotherapy & given steroids for appetite. I'm told by consultant doing the mapping that "treatment only gives a dignified ending" & "mums lung is so badly collasped she thought it was removed" I went home and cried for days, nothing like kind words of support!! MAR 07-mum very tired, gullet sore.Bleeding stopped to beige phlegm. Xray Check up at hosp showed some air getting in past tumour lung was not as white and cloudy as before. APR 07-cough worsened & had severe chest infection, 2wks antibiotics given. Mum has stopped steroids as feels bloated & uncomfortable. Appetite decreasing again. Shortness of breath has worsened can only now walk 10 yards without stopping. Feels exhausted ALL the time. Urgent CT scan arranged to see what the tumour is doing, waiting time 4-5 WEEKS. I am sending her private hopefully will be done next week. Quote Link to comment Share on other sites More sharing options...
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