kamataca Posted May 10, 2007 Share Posted May 10, 2007 I feel like I've been a ghost lately--Mom's still in the hospital, and we've been hit with a lot lately. I think about you all constantly, and you are in my prayers. An MRI last week showed five new lesions, scattered throughout Mom's brain. She can't do Gamma and, for her own reasons, refuses to do WBR at this stage. We have been very clear that we support her in her decisions, whatever they are. If/ when Mom leaves the hospital, she will begin hospice care immediately. I have heard such wonderful things about hospice, and I know they will manage her pain for her. No crystal balls, but the drs are saying weeks, maybe less. I just want quality for her right now---we've had quantity. The drs originally gave her 12-18 months to live, and she has given us 26 months---most of those good months. She amazes me. We've emphasized to her that she is NOT giving up--she is simply chosing something else. I'm thankful that she is lucid enough to make these decisions. She has had very little control over what has happened in her body these last two years--she does have control over these choices. I'd be lying if I said I wasn't heartbroken and absolutely terrified. My mom has been amazingly strong for my brothers and me all our lives, and it is time for us to do the same for her. Please pray for us--I'll try to update as time goes by. Love to you all. Kelly Quote Link to comment Share on other sites More sharing options...
mary colleen Posted May 10, 2007 Share Posted May 10, 2007 Of course you will have prayers. Quote Link to comment Share on other sites More sharing options...
StephanieJane Posted May 10, 2007 Share Posted May 10, 2007 praying for peace and comfort for your mother and your whole family. -stephanie Quote Link to comment Share on other sites More sharing options...
laban Posted May 10, 2007 Share Posted May 10, 2007 My prayers are with Mom and your family. She sounds like a very brave and faithful woman. God will take care of the little things and give her peace. Laurie Quote Link to comment Share on other sites More sharing options...
RandyW Posted May 10, 2007 Share Posted May 10, 2007 Always a prayer and a Cyber hug for everyone. Quote Link to comment Share on other sites More sharing options...
melindasue37 Posted May 10, 2007 Share Posted May 10, 2007 Kelly, I keep typing and erasing because I know how difficult all this must be for you. There is just no words that seem appropriate. I'm so sorry that it is time for hospice to enter your lives. I'm thinking of all of you and saying a prayer for peace and strength for you, your Mom and family. Warm Hugs, Melinda Quote Link to comment Share on other sites More sharing options...
tiredmom959 Posted May 10, 2007 Share Posted May 10, 2007 I will keep you and your family in my prayers. You mom sounds like a wonderful woman. Quote Link to comment Share on other sites More sharing options...
tnmynatt Posted May 10, 2007 Share Posted May 10, 2007 Kelly, This is hard. I have been a part of your journey the whole way (since you came here). I've always been amazed at how well she has done in spite of all the setbacks. She has been an inspiration and continues to be an inspiration!!! I'm praying for her and you and your whole family. I know how tough this is for you. We are here for you. I've not been very active lately, but I continue to read and pray. Take care. Quote Link to comment Share on other sites More sharing options...
Kasey Posted May 10, 2007 Share Posted May 10, 2007 (((Kelly))), You AND Bev have been amazing examples of how to deal with this terrible disease. I am glad she can make these decisions......hard to accept though they are. I remember Bev answering to the setbacks she has received......and though it may be differenet this time......my hope will not cease that she can share more quality time with her family. Much support, Kelly, and love too. Kasey Quote Link to comment Share on other sites More sharing options...
Littlegirl Posted May 10, 2007 Share Posted May 10, 2007 So sorry it has come to this. Hang in there! Karen Quote Link to comment Share on other sites More sharing options...
ginnyde Posted May 10, 2007 Share Posted May 10, 2007 Kelly, no words - can't find them. Your dear Mother and your whole family's approach to this dreadful disease is very inspiring. The love and respect you show for each other is amazing. I will remember you all in my prayers. I wish you laughter with your tears. Cherish each minute. Quote Link to comment Share on other sites More sharing options...
dchurchi Posted May 10, 2007 Share Posted May 10, 2007 Kelly, Both you and your Mom have shown such strength during your mom's battle with the beast. Alan and I will keep your family close in prayer. Quote Link to comment Share on other sites More sharing options...
Don Wood Posted May 10, 2007 Share Posted May 10, 2007 Kelly, thanks for the update on your mom. She sounds amazing. I'm walking with you. Don Quote Link to comment Share on other sites More sharing options...
ztweb Posted May 10, 2007 Share Posted May 10, 2007 OH Kelly. I am so sorry to read your post. I have followed your mom's story since I joined LCSC. Please know you have my prayers, of course, and please know that God is watching out for your mom, with his arms wrapped around her through all of this. Your's too! Bless you, Jen Quote Link to comment Share on other sites More sharing options...
fillise Posted May 10, 2007 Share Posted May 10, 2007 Kelly,my prayers will be with you and your Mom during the coming weeks. I love the picture of her at the crowning. I hope her remining weeks are peaceful and loving. Susan Quote Link to comment Share on other sites More sharing options...
Judy-OK Posted May 10, 2007 Share Posted May 10, 2007 Kelly: Sending prayers and good wishes over the internet highway and also zooming one down the Oklahoma Turnpike. I, of course, have followed along with your moms story and I must say the two of you have amazed me. Thinking of you in a special way and saying an extra special prayer for your mom. Quote Link to comment Share on other sites More sharing options...
daddyslittlegirl Posted May 10, 2007 Share Posted May 10, 2007 Kelly, I'm so sorry about your mom. I know how it feels when they say that's it. My dad said he's not doing anything else after he completes his WBR. How scary that sounds. I guess we do have to let them make their own decissions. He promised he wasn't giving up too and I wondered, How can you say your not giving up but you're also not doing anything else? It didn't really make sense until I read your post. Your mom has surprised the doctors thus far and I pray she continues to surprise them and you have some more quality time. Hang in there. Quote Link to comment Share on other sites More sharing options...
Ry Posted May 10, 2007 Share Posted May 10, 2007 I hope your mom gets out of the hospital soon and back home. I am sorry for what you are going through. You've been such a great advocate for your mom. Quote Link to comment Share on other sites More sharing options...
dadstimeon Posted May 10, 2007 Share Posted May 10, 2007 Prayers for your mom and you Kelly. Rich Quote Link to comment Share on other sites More sharing options...
Tanner Posted May 10, 2007 Share Posted May 10, 2007 My heart goes out to you and your mom and your family. My prayers for you as well. Tanner Quote Link to comment Share on other sites More sharing options...
Treebywater Posted May 10, 2007 Share Posted May 10, 2007 Kelly, I am just heartbroken to read your post. I'm sorry you guys are at this point, but I'm so glad that your Mom has been so empowered in her decision-making. I hope you know that there are many of us who have been down this road who are here to lean on. I'm one, and I'm here anytime. love, Val Quote Link to comment Share on other sites More sharing options...
Connie B Posted May 11, 2007 Share Posted May 11, 2007 Oh Kelly, I am so sorry. I will pray for peace and comfort for you and your mom and your family. This is a very difficult time. (((((((((((((((((KELLY & MOM))))))))))))))) Quote Link to comment Share on other sites More sharing options...
Nova Posted May 11, 2007 Share Posted May 11, 2007 Kelly, I'm too new to all of this to know any "wise words of comfort"-- other then what my heart tells me, which is that I don't blame you at all for being scared and very sad... Please know I'm thinking of you and saying a prayer for comfort for your mom. Nova Quote Link to comment Share on other sites More sharing options...
sharyn Posted May 11, 2007 Share Posted May 11, 2007 Dear Kelly, May you find peace with your Mom during this time. Your family sounds like it has an amazing "strength" and so much love to help carry you through this time. I know it takes courage to let Mom make these final decisions, and I admire you for allowing her that. Sometimes as caregivers, we become so consumed with "keeping our loved ones with us" that we forget that they have a choice in this too. I am sure your Mom appreciateds you standing back and allowing her to make her choice, and supporting her through it. May God bless you all and make this time pass gently. Love, Sharon Quote Link to comment Share on other sites More sharing options...
sharonjo Posted May 11, 2007 Share Posted May 11, 2007 Kelly, God Bless you and your family. I will keep you all in my prayers. Sharon Quote Link to comment Share on other sites More sharing options...
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