ursol Posted May 11, 2007 Share Posted May 11, 2007 Hi all, I just wanted to give an update on this trial I'm on. The first cycle of Abraxane and Rapamyacin was five weeks long and the side effects were minimal. Mainly bowel issues. My hair that began to grow back has fallen out again unfortunately. Otherwise I continued to work and have felt generally okay. Just a little tired. On the fifth week, I had another PET scan and it showed no new mets and that my Adrenal Gland tumor was less hot. Suv 11 from SUV 13. My doctor calls that good news and I get to continue on the trial. Not sure if I call it good news but at least it is not spreading. I just completed week 1 of cycle 2. Also just had a repeat Brain MRI as a precaution and Brain MRI is good-no mets. Anyhow, I'm thinking about all of you and continue to pray for the miracle cure that we all deserve. Lilly Quote Link to comment Share on other sites More sharing options...
Connie B Posted May 11, 2007 Share Posted May 11, 2007 (((((((((LILLY))))))))))))) This really sounds like good news! Your remarkable! Your in my daily prayers and I sure hope and pray all continues to go well for you. Stay Strong my Friend! Quote Link to comment Share on other sites More sharing options...
wendyr Posted May 11, 2007 Share Posted May 11, 2007 Lilly, so glad your report shows stable & let me complement you for participating in a phase 1 trial. I sincerely hope it works for you and you get a miracle cure. Good Luck & God Bless wendyr Quote Link to comment Share on other sites More sharing options...
dadstimeon Posted May 11, 2007 Share Posted May 11, 2007 Lilly--Glad to hear things are going in the right direction for you. Rich Quote Link to comment Share on other sites More sharing options...
Mendy Posted May 11, 2007 Share Posted May 11, 2007 Lilly, Thanks for the good news. I am so pleased the trial is working for you. You continue to amaze me with all you do while still going through treatment. Keep up the good work and I pray for continued good results for you. Mendy Quote Link to comment Share on other sites More sharing options...
RandyW Posted May 11, 2007 Share Posted May 11, 2007 Thank you for doing this!! Glad you are doing as ok as can be under the circumstances and that you are feeling good. Sending Prayers for continued good news and GREAT results. Quote Link to comment Share on other sites More sharing options...
fillise Posted May 11, 2007 Share Posted May 11, 2007 Sounds like good news! Thanks for the update--I will leep you in my prayers for continued good results. Susan Quote Link to comment Share on other sites More sharing options...
ernrol Posted May 11, 2007 Share Posted May 11, 2007 Lilly, That’s good news. Things are headed in the right direction. Stay positive, Ernie Quote Link to comment Share on other sites More sharing options...
sharonjo Posted May 11, 2007 Share Posted May 11, 2007 Lily, You go girl! This is wonderful news! Keep up the good work. I will keep you in my prayers. God Bless, Sharon Quote Link to comment Share on other sites More sharing options...
mamasbabygirl Posted May 11, 2007 Share Posted May 11, 2007 Thanks for the update Lilly and I am very glad it is GREAT! Quote Link to comment Share on other sites More sharing options...
Shar Posted May 11, 2007 Share Posted May 11, 2007 Great to hear things are looking up for you Lilly. You deserve this so much. Keep it up, Sharon Quote Link to comment Share on other sites More sharing options...
teriw Posted May 12, 2007 Share Posted May 12, 2007 Lilly, Praying for that miracle for you too. I'm glad the trial is going well so far. Quote Link to comment Share on other sites More sharing options...
alexan Posted May 12, 2007 Share Posted May 12, 2007 Lilly, great news, and I am so happy tha you are feeling find. You are in my prayers. a big hug bucky Quote Link to comment Share on other sites More sharing options...
Ry Posted May 12, 2007 Share Posted May 12, 2007 It sounds like the cancer is responding to the trial drugs- I am so glad for you. Quote Link to comment Share on other sites More sharing options...
carolhg Posted May 12, 2007 Share Posted May 12, 2007 Lilly I continue to pray along with you for that miracle cure for all of us. Carol Quote Link to comment Share on other sites More sharing options...
laban Posted May 12, 2007 Share Posted May 12, 2007 Great news Lilly. Continued prayers for the trial to work on your cancer and get it GONE. Laurie Quote Link to comment Share on other sites More sharing options...
trish2418 Posted May 13, 2007 Share Posted May 13, 2007 Good news, Lilly. I'm praying that the trial meds continue to knock out that tumor. Stay strong. And Happy Mother's Day. Trish Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.