alexan Posted May 19, 2007 Share Posted May 19, 2007 We went to Duke yesterday & they confirm my 4 mets in the brain, the bigest one is 6mm, so we decide to go with the WBR since they are more than 3. I will have 14 days. is that normal??? The were really positive so I have to be to. The great news is tha my lungs are on remission, no cancer there . My oldest daughter & Isabella are here fron dallas so I am really happy having all my chicks together. We will need to posponed our family trip to Mallorca, but at this point that the list important thing. I trying really hard to be positive like Ernie said but is hard. Thanks to all of you. love bucky PD HOW BAD ARE THE SIDE EFECT O WBR????? THANKS Quote Link to comment Share on other sites More sharing options...
raneyf Posted May 19, 2007 Share Posted May 19, 2007 Hi Bucky, I don't know anything about WBR, but I'm happy to hear you sound so much better after your meeting with the docs. Good luck that this will be a great success. Have fun with your family in town. Raney Quote Link to comment Share on other sites More sharing options...
laban Posted May 19, 2007 Share Posted May 19, 2007 You might experience fatigue, but hopefully that is all. My husband had PCI which is the basically the same thing and he did very well. He had 17 rounds. He seems to have some short term memory loss, but not sure if that is from the radiation or old age. Blessings to you and enjoy your chicks. Quote Link to comment Share on other sites More sharing options...
trish2418 Posted May 19, 2007 Share Posted May 19, 2007 I love your attitude, Bucky! Haven't had WBR myself, so can't comment on that. But with your attitude, I'm sure you'll do well. Glad you got your girls with you. Trish Quote Link to comment Share on other sites More sharing options...
RandyW Posted May 20, 2007 Share Posted May 20, 2007 3 cheers for remission. Sounds good at least partially. Let me know if ya need anything!! Quote Link to comment Share on other sites More sharing options...
daddyslittlegirl Posted May 20, 2007 Share Posted May 20, 2007 Hi Bucky, That's good news about your lungs being in remission. Now you just have to get over this next hurdle. My dad has his last of 13 rounds of WBR on Monday. He'd been real tired but pushed himself to chug along. He's been a little off balance and has some hair coming out. I'm praying that you both have great success! Quote Link to comment Share on other sites More sharing options...
karen335 Posted May 23, 2007 Share Posted May 23, 2007 Cyberknife is sooooo worth checking out, not WBR. This is from articles written and documented @ Stanford University in California. WBR is antiquated treatment. Whatever you decide, wishing you the best and sending up prayers....... Karen Quote Link to comment Share on other sites More sharing options...
Julienyc Posted May 23, 2007 Share Posted May 23, 2007 My mom managed well with 3 weeks (15 sessions) of WBR. She finished at end of Feb. loss of hair and sensitivity to head were most noticable... flush of face and fatigue as well... but not awful. Mom does get tangled in her words from time to time now- I think this is resiudal of tx but overall I think benefits are well worth risks, at least so far... good luck with WBR... I've been doing research about cyberknife as well seems really fabulous as well... at least for lung lesions... not sure about brain...good luck with all... Julie Quote Link to comment Share on other sites More sharing options...
karen335 Posted May 24, 2007 Share Posted May 24, 2007 Had two open surgeries, SRS for residual after 1st surgery...Had CK in SEPT. 2006, UCLA says tumor in brain is so dead and gone (YEAH!!!) Sending prayers and please keep us posted. Karen Quote Link to comment Share on other sites More sharing options...
alexan Posted May 25, 2007 Author Share Posted May 25, 2007 Karen congratulations, am so happy that the tumor is dead Hugs & prayers bucky Quote Link to comment Share on other sites More sharing options...
Connie B Posted May 27, 2007 Share Posted May 27, 2007 That is great news to hear your Tumor is Long Gone Karen!! AWESOME NEWS! Bucky, if I had a brain tumor the first person I would run to is Karen. She knows her stuff when it comes to brain tumors and she's done her homework, not to say she has walked the walk. Congratulations Karen. Quote Link to comment Share on other sites More sharing options...
karen335 Posted May 27, 2007 Share Posted May 27, 2007 Thanks Connie, We're talking long term... Love ya and sending prayers Quote Link to comment Share on other sites More sharing options...
dchurchi Posted June 1, 2007 Share Posted June 1, 2007 My husband Alan had WBR and had very good success. Almost 2 years since it ended. Lost his hair and does have some sort term memory issues, but other than that lives very good quality of life. I hope and pray all goes well for you. Quote Link to comment Share on other sites More sharing options...
fillise Posted June 1, 2007 Share Posted June 1, 2007 Bucky--Congrats on the rprimary tumor being gone! Now to zap those little mets and have it all gone--you are on your way!!!!! Susan Quote Link to comment Share on other sites More sharing options...
Leslie Posted June 1, 2007 Share Posted June 1, 2007 Hi Bucky-- My dad had SRS for three tumors and is in the middle of WBR for four incipient ones. He has had 13 and has two more to go...Thus far, he has been very, very tired and has lost his appetite. Some of his hair (didn't have much to begin with...) is also coming out. I wish you strength. Leslie Quote Link to comment Share on other sites More sharing options...
Maryanne Posted June 4, 2007 Share Posted June 4, 2007 You just keep fighting, you are doing fine. Don't know much about WBR but so many people on here have had much success. Good luck! Maryanne Quote Link to comment Share on other sites More sharing options...
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