SandyS Posted October 22, 2003 Share Posted October 22, 2003 Weren't you supposed to get some results on Monday? I hope everything is okay............ Hugs and prayers, SandyS Quote Link to comment Share on other sites More sharing options...
Jay Posted October 22, 2003 Share Posted October 22, 2003 Hi Sandy, Thanks for the post. Yes, I went to the doctor yesterday, but I wasn't able to come online because my connection to the internet was acting up. I was able to get into the board but then it would get dissconnected and I didn't get enough time to post. Anyway, never mind that. Now that I can post.... well, I went to the doctor and we are going for gamma knife. I have several mets and for what he explained, I think that's the best option for now. I was hoping you guys could explain me from your experiences how this procedure is. He already told me but I want to know from a patient's point of view. I suppose that having LC as a primary tumour is common to have mets, but isn't a biopsy needed to confirm the diagnosis of the mets? I should have asked him that, I always go blank when I go to my appointments. I'll have to start writting my questions down. Quote Link to comment Share on other sites More sharing options...
mhutch1366 Posted October 22, 2003 Share Posted October 22, 2003 Dear Jay, Yes, write things down, or else bring someone with you to write things down. Also write down the questions you have. I think the mets thing is pretty well assumed and they seldom do biopsies on those. What would they do after gamma knife? If someone would explain how the gamma knife is supposed to work, I'd be appreciative, I don't know much about it. Jay, you're a good kid and a tough kid, so hang in there and we'll help you get through this step too. You are well regarded here, in case you haven't noticed. Let us know what goes on, please. Warmest Regards, XOXOX MaryAnn Quote Link to comment Share on other sites More sharing options...
lenr8 Posted October 22, 2003 Share Posted October 22, 2003 Jay, I had the gamma knife in July. They may give you a video to watch to explain the procedure. Basically they screw a head frame into the skin, its tight but not into the skull, it does leave 4 small indentations two in front and 2 in back that are permanent. The frame feels tight but doesn't really hurt. The give you local anesthetic when the screw it in. You'll have on for several hours. The actual gamma knife is relatively short mine was 45 min. You don't feel any thing and won't lose you hair. Then they take it off and you leave I went to work the next day. Your forehead will probably swell up for a couple of days. Just remember all this is better than surgery. Hope this helps Quote Link to comment Share on other sites More sharing options...
norme Posted October 22, 2003 Share Posted October 22, 2003 Hang in Jay, you will be fine. For some reason, treatments work well on the brain. They were going to do radio surgery on Buddy after the whole head radiation but since it shows clear, don't need to. Quote Link to comment Share on other sites More sharing options...
LindaMRG Posted October 23, 2003 Share Posted October 23, 2003 Hi Jay, Its always good when there is a plan in place. When I take my father to the doctor I have a list of questions or thoughts I want to discuss with him. Fortunately, he lets me email him too, so if I go home and think of something else, I can email him. Why not ask your onc if you could have that option. The best thing would be to take someone with you, even a friend, because sometimes the other person hears and understands more than the patient, because after all, its YOU that everything is happening to. It can be overwhelming. Please keep us posted. Quote Link to comment Share on other sites More sharing options...
stephnewyork34 Posted October 23, 2003 Share Posted October 23, 2003 Hi Jay, a couple of things, One I hear Gamma knife is great, my mom is getting Cyber Knife soon, and we don't know the difference, but both suppose to be great. Also My dear departed friend Dave Gimpel, who I worked with had brain cancer, primary and he lived to be in his early thirties, and that was BEFORE Gamma knife, so there is always hope!! Hang in there, you seem like a fighter, besides anyone who plays soccer is amazing! *hahaha* Quote Link to comment Share on other sites More sharing options...
SandyS Posted October 24, 2003 Author Share Posted October 24, 2003 Jay - I know they've had some wonderful success with the gamma knife, but I don't have any personal experience with it. Drill your doctor with questions until you're comfortable with everything. You're in my prayers and thoughts daily Sweetie! Hang in there, Hugs, SandyS Quote Link to comment Share on other sites More sharing options...
kimblanchard Posted October 25, 2003 Share Posted October 25, 2003 Jay, Glad to hear you are a candidate for this type of surgery. Bill had it and it was very successful. You'll do just fine! Blessings to you, Peg Quote Link to comment Share on other sites More sharing options...
Jay Posted October 31, 2003 Share Posted October 31, 2003 Thank you all. (((((((((((((((EVERYONE))))))))))))))) Quote Link to comment Share on other sites More sharing options...
Don Wood Posted October 31, 2003 Share Posted October 31, 2003 Like your new picture, Jay. Hang in there! Don Quote Link to comment Share on other sites More sharing options...
mhutch1366 Posted October 31, 2003 Share Posted October 31, 2003 Jay, Love the new photo. Gamma knife it is!! You will be in our prayers. Can't wait until your birthday, we'll disney magic artist you one heck of a birthday card, complete with goofy and donald to music. Tell me if you want to color it yourself?.. lol... You're a good guy, Jay. Take heart. Have Faith. XOXOXOXOX MaryAnn Quote Link to comment Share on other sites More sharing options...
stephnewyork34 Posted November 2, 2003 Share Posted November 2, 2003 Jay, Love the new photo! Did you get that book I told you about? If you want I have a copy of it, I can send it to you if you can't find it. I hope all is going well. *hugs* Quote Link to comment Share on other sites More sharing options...
Guest Posted November 7, 2003 Share Posted November 7, 2003 Has anyone heard how Jay's surgery went today? Where is the surgery being performed? Quote Link to comment Share on other sites More sharing options...
Karma1976 Posted November 7, 2003 Share Posted November 7, 2003 I know i have been thinking of him all day Quote Link to comment Share on other sites More sharing options...
Jay Posted November 10, 2003 Share Posted November 10, 2003 Thank you all, I love you! Quote Link to comment Share on other sites More sharing options...
Marge Posted November 10, 2003 Share Posted November 10, 2003 Jay, How are you? Glad to see you posted. Been thinking about you.... Hope the Gamma Knife went well. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.