tkelley Posted July 19, 2007 Share Posted July 19, 2007 Well, dad just got the news from Hopkins that the PET scan showed that the spot between the lungs grew from 1 to 5 and that there are 3 new lymph nodes showing up. His oncologist is not recommending chemotherapy because it has never been effective very long. He mentioned 2 clinical trials. One is the MDX-1106 that seems to have tons of side effects and doesn't look that promising yet (Phase 1) and another vaccine therapy (not sure of the name of it yet). Anyone have any other suggestions of treatments??? I may have to email Dr. West... Just trying to digest everything. My dad is such a fighter and has been so depressed lately. I'm afraid that this is going to kick him in the gut. He does want to try something though so I guess thats good....... Quote Link to comment Share on other sites More sharing options...
wiesia Posted July 19, 2007 Share Posted July 19, 2007 If your father is still IIIB, the vaccine could be stimuvax. It had sensationa; results in phase II trials: average survival was over 3 years. So it would be worthwhile to try it especially that the side effects are nil. Quote Link to comment Share on other sites More sharing options...
shineladysue Posted July 20, 2007 Share Posted July 20, 2007 (((Tammy))), This is not the news we wanted to hear. I'm so sorry the news isn't better and I do hope there is a clinic trial he can try. I'm sent you a PM. Just know that my prayers are with you and your family. Love and Prayers, Sue Quote Link to comment Share on other sites More sharing options...
RandyW Posted July 20, 2007 Share Posted July 20, 2007 Stimuvax is the vaccine trial and has hadgood results. Try these 2 links; Stimuvax :http://clinicaltrial.gov/ct/show/NCT00409188?order=1 MDX 1106 http://clinicaltrial.gov/ct/show/NCT00441337?order=1 THIS SITE IS ALSO THE SITE TO FIND ALL CLINICAL TRIALS CURRENTLY ACTIVE. NO RESULTS IN HERE JUST STATUS. Click on the home button at the top and you can search by disease or drug if you know what it is. site will tell you requirements for enrollment. If I can help in here more drop me a note. SAying a prayer. Stimuvax info also in Clinical trial forum Plainly marked foir easy finding. Quote Link to comment Share on other sites More sharing options...
tkelley Posted July 20, 2007 Author Share Posted July 20, 2007 Thanks everyone! I appreciate the info and good wishes. We're researching all of our options... Quote Link to comment Share on other sites More sharing options...
ztweb Posted July 20, 2007 Share Posted July 20, 2007 Urgh!!!! I am so sorry to read your post. On the upside...I am glad he is willing and ready to fight. Keep us posted! Blessings, Jen Quote Link to comment Share on other sites More sharing options...
Kasey Posted July 20, 2007 Share Posted July 20, 2007 No advice........just to let you and Dad know that I'm rooting for you guys. Hope the tx decided upon does the trick for a long time. Kasey Quote Link to comment Share on other sites More sharing options...
KatieB Posted July 21, 2007 Share Posted July 21, 2007 Sending lots of positive thoughts...I can't imagine what you and your dad are feeling. Remind yourselves that hope is still alive...maybe read more survivor stories- there is a great video at www.lungcancerpartnership.org about clinical trials and survivors of clinical trials. Please keep us updated. I am sending lots of prayers and I hope the trial is a complete success. Quote Link to comment Share on other sites More sharing options...
Welthy Posted July 21, 2007 Share Posted July 21, 2007 Sorry to hear of the progression -- we know the feeling all too well. Give my best to your Dad and good luck on finding a great trial. Stimuvax fascinates me and I'd go for it if he is still a 3b or less. Hang in there -- there will be better days ahead! Welthy Quote Link to comment Share on other sites More sharing options...
tkelley Posted July 21, 2007 Author Share Posted July 21, 2007 Katie, THANK YOU!!! I pm'd you! What a great resource and inspiration at a time like this. You truly are an angel! Tammy Quote Link to comment Share on other sites More sharing options...
john Posted July 23, 2007 Share Posted July 23, 2007 Maybe look into ... ingn 241 hki-272 I didn't see any clinical trials of these in the maryland area though. You can go to clinicaltrials.gov and do searches there take care Quote Link to comment Share on other sites More sharing options...
Treebywater Posted July 23, 2007 Share Posted July 23, 2007 Ahhh man... I'm just seeing this. Blah. I have no advice to offer, but I am praying for you guys. I hope you find just the trial. Quote Link to comment Share on other sites More sharing options...
carolhg Posted July 23, 2007 Share Posted July 23, 2007 Praying for your Dad and hopeful that he becomes a participant in the stimuvax trial which I have read very positive reports on. Prayers for a return to health. Carol Quote Link to comment Share on other sites More sharing options...
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