Hebbie Posted August 18, 2007 Share Posted August 18, 2007 Hi everyone, it's been a while since I have initiated a post of my own - there are so many new names/faces here (which saddens me), but also many old friends, which is heartwarming. As you can see from my signature, I'm in my third month of Tarceva. So far, so good on the chemo front. However, I've had some pretty rough issues with plueral effusion pain; I've had the fluid drained 3 times now and they are scheduling the talc procedure to perminately seal off that area. I am SO nervous about this procedure and wanted to reach out to anyone out there who has had success with it. They have told me that it has a high success rate in keeping the fluid from coming back, but it will probably NOT do anything about the pain I seem to have in that area (due to inflamation of the lining of the lung). I feel like I have been in a fog of painkillers for the past year. (Motrin, then Percosets; most recently the Fentanyl patch was tried for about 18 hours and I thought I was going to die before I ripped it off my arm -- with my doctor's consent, of course ) I've also struggled with my weight quite a bit. I've been on a strict macrobiotic diet for two years; however, when starting the chemo, my appetite changed and the food was completely unappealing (I always enjoyed it before). I'm pretty skinny at this point (scary skinny if you ask me!) At this point I have fallen off the macro bandwagen and am just trying to follow a "no sugar/no red meat/no dairy/no white carbs rule and eat like a more-or-less normal person. Of course, this is causing a frenzy in my small macro community -- they are even discussing planning an "intervention" for me and telling me that if I go back to my old way of eating, that will be it for me. Can you imagine the pressure??? It's causing all sorts of unexpected stress and second guessing in my life.....I'd like to hear other people's perspectives on diet/cancer. After 4 1/2 years of this rollercoaster ride, you would think I would be some sort of a quazi-expert -- but I'm a mess right now! Quote Link to comment Share on other sites More sharing options...
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