michellem Posted August 28, 2007 Share Posted August 28, 2007 my mum has pancoast tumor. a form of lung cancer. it has spread to spine. Anyone know anything about this type of tumor. she is now getting chemo.. gemcitabine carboplatin please anyone reply with anything they know thanks Quote Link to comment Share on other sites More sharing options...
Donna G Posted August 28, 2007 Share Posted August 28, 2007 O yes, there are several of us who have had Pancoast tumors. We even have a "Pancoast Tumor Meetings" here, but haven't for a while. It took about 6 months of treatment , starting with chemo and radiation for me. I have more detail in the "My Story section of this site. How long ago was she diagnosed? Are they giving her radiation? Keep us posted Donna G Quote Link to comment Share on other sites More sharing options...
michellem Posted August 28, 2007 Author Share Posted August 28, 2007 Hi my mum was diagnosed about a month ago, but she had had pain for a while, probably 6 months. they did a pet scan and it showed up that it has spread to the spine (bottom). The information on the internet gives little hope. But we are determined to fight it with mum. I will look at your story. Thanks so much for your reply michelle Quote Link to comment Share on other sites More sharing options...
Ellen B. Posted August 28, 2007 Share Posted August 28, 2007 Hello Michelle. Several people here with pancoast. Henk is one of them. He's inoperable b/c 3 vertebrae are involved. He was in severe pain before the chemo/radiation treatment, but after 2 weeks of radiation the pain was gone. Ask the doc about the radiation! Ellen. Quote Link to comment Share on other sites More sharing options...
Calintay Posted August 28, 2007 Share Posted August 28, 2007 Hi Michelle - My mom also had a pancoast tumor. She went through some radiation and chemo then she did have surgery and more chemo. She is now doing well. There is hope and I am glad to read you guys are determined to fight this. Best of luck and my prayers are with you and your mom doing this difficult time. Heidi Quote Link to comment Share on other sites More sharing options...
wendyr Posted August 29, 2007 Share Posted August 29, 2007 Not real sure on this but didn't Kasey have a pancoast tumor wendyr Quote Link to comment Share on other sites More sharing options...
Kasey Posted August 29, 2007 Share Posted August 29, 2007 Yep, I did, Wendy. I'm in contact with Michelle. I replied to her other post and we have PM'd. Of course she needs to check her mailbox for what's there NOW ! Kasey Quote Link to comment Share on other sites More sharing options...
michellem Posted August 30, 2007 Author Share Posted August 30, 2007 Thanks very much for your replies. And I got your pm Kasey, I am going to speak to the doctors on Monday and my familey. cheers, Quote Link to comment Share on other sites More sharing options...
DrWest Posted September 17, 2007 Share Posted September 17, 2007 Michelle, I suspect you've received several answers to some key questions you had. Basically, Pancoast tumors are at the top of the lungs and can be in a difficult place to do surgery. With it going into the spine, that means that surgery would be at least very complicated and maybe not feasible, but if it's all contained in one place, chemo and radiation (sometimes with surgery as well) can be curative in some cases). -Dr. West Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.