mary colleen Posted September 4, 2007 Share Posted September 4, 2007 I've just returned from the hospital, where my husband had an appointment to see the Oncologist. He saw her just 3 weeks ago, and had a clean CT. However, he has had a sudden decline since then. He has lost over 14 pounds, stopped wanting to eat, and has declined neurologically in several ways - balance problems, etc. He failed his 'mini-neuro" exam today, couldn't follow the doctor's finger or follow her directions. He is having a brain MRI later today, and a lumbar puncture tomorrow if that is negative. Best case, and I really hope probable, scenario is that he is having some kind of late inflammation and swelling from his WBR that ended 2 months ago. The doctor seemed to think that was possible. Hoping for the best here! Quote Link to comment Share on other sites More sharing options...
trish2418 Posted September 4, 2007 Share Posted September 4, 2007 Sending lots of prayers your way. Trish Quote Link to comment Share on other sites More sharing options...
Kasey Posted September 4, 2007 Share Posted September 4, 2007 I'm hoping for the best here too, M.C. May it all be due to inflammation that just has to settle itself down. Please let us know about the MRI ASAP. Many prayers and positive vibes for you guys. Kasey Quote Link to comment Share on other sites More sharing options...
J.C. Posted September 4, 2007 Share Posted September 4, 2007 Radiation keep working after they are stopped, coul dbe inflammation. Prayers Jackie Quote Link to comment Share on other sites More sharing options...
Maryanne Posted September 4, 2007 Share Posted September 4, 2007 Praying along with everyone else thats is just an inflamatory infection from the WBR. I know how scared you are... just keep a positive attitude. Maryanne Quote Link to comment Share on other sites More sharing options...
fight Posted September 5, 2007 Share Posted September 5, 2007 Expect the best! It is so easy for our minds to wander to the worst case...I'll be praying that it is just an inflammation and nothing else. Take Care, Rachel Quote Link to comment Share on other sites More sharing options...
Don M Posted September 5, 2007 Share Posted September 5, 2007 I am hoping for the probable inflammation too. don M Quote Link to comment Share on other sites More sharing options...
Nushka Posted September 5, 2007 Share Posted September 5, 2007 Prayers headed your way. Nina Quote Link to comment Share on other sites More sharing options...
laban Posted September 5, 2007 Share Posted September 5, 2007 Mary Colleen, I know how it is to think the worst. My prayers go out to you for the Dr's thought of inflammation. Hang in there. Quote Link to comment Share on other sites More sharing options...
teriw Posted September 5, 2007 Share Posted September 5, 2007 MC, Thanks for updating us. Praying for the "best case." Hugs, Quote Link to comment Share on other sites More sharing options...
Welthy Posted September 5, 2007 Share Posted September 5, 2007 Mary Colleen, Prayers and hopes for a clean MRI. Radiation does work for 4+ weeks after the final treatment, so let's think it is going to be related to that. I'm sorry you have to go through another dip in the road. Hang in there. I know how hard it is at these times. Many Hugs, Debi Quote Link to comment Share on other sites More sharing options...
mary colleen Posted September 5, 2007 Author Share Posted September 5, 2007 Well, I just heard from the Oncologist, who told me that my husband's brain MRI showed no recurrence. I'm tremendously relieved. The next step is to get scheduled for a lumbar puncture to ensure that there are no cancer cells in the spinal fluid. She is doing this because she cannot readily explain his recent deterioration based on WBR completed over two months ago. I know the problem isn't really resolved yet, but I am still allowing myself to be relieved for today. We'll deal with the rest as it comes. MC Quote Link to comment Share on other sites More sharing options...
trish2418 Posted September 5, 2007 Share Posted September 5, 2007 Take one thing at a time; today just celebrate the clean MRI. I'm praying for continued good results. Take care. Trish Quote Link to comment Share on other sites More sharing options...
hockeyma Posted September 5, 2007 Share Posted September 5, 2007 Hi Mary Colleen, I am crossing my fingers that all will start to improve soon for you and your husband. Keep up the hope and the faith. Heather Quote Link to comment Share on other sites More sharing options...
nyka69 Posted September 5, 2007 Share Posted September 5, 2007 So frightening, but I'm glad today was good news. I hope the next step can be scheduled quickly. I will be thinking of you both. Quote Link to comment Share on other sites More sharing options...
Welthy Posted September 6, 2007 Share Posted September 6, 2007 MC, Glad to hear about the clean MRI. Hoping and praying for a resolution. I hate these times where nobody seems to know what the heck is going on. Sorry you are in one right now. Hugs, Welthy Quote Link to comment Share on other sites More sharing options...
J.C. Posted September 6, 2007 Share Posted September 6, 2007 Clear MRI, that is good, hope the rest will be also all clear. prayers on the way. Jackie Quote Link to comment Share on other sites More sharing options...
teriw Posted September 7, 2007 Share Posted September 7, 2007 Clean brain MRI is definitely news for celebration. I know it's not over, but rejoice in the good news, as I know you are. Stay strong. Hugs, Quote Link to comment Share on other sites More sharing options...
Maryanne Posted September 7, 2007 Share Posted September 7, 2007 Just for the heck of it, when he has a blood test tell them to check his T (thyroid) levels. After Joel's first operation he developed an over active thyroid that made him deteriorate. He was like a zombie, didn't care and had no motivation and lost so much weight. Just had a Onchologist nurse who suggested they check his T levels and found it was off the wall, very high. Anyway long story short, They had to kill the throid with radioactive pill then it became underactive which they can fix with medication. He has been fine every since. So like I said, just have his T levels check. They can do that during routine blood work. Keep us posted... Maryanne Quote Link to comment Share on other sites More sharing options...
mary colleen Posted September 7, 2007 Author Share Posted September 7, 2007 Good idea Maryanne, thanks. He is feeling really poorly tonight with head pain, I just hate this. It's obviously SOMETHING. Thanks Quote Link to comment Share on other sites More sharing options...
fillise Posted September 7, 2007 Share Posted September 7, 2007 I'm thrilled for the clean MRI, but hope you can find and fix the cause of the problem soon! Susan Quote Link to comment Share on other sites More sharing options...
laban Posted September 7, 2007 Share Posted September 7, 2007 Continued prayers for you and your hubby. Enjoy the good news. We all know that the "one day at a time" motto is where we have to be right now. Blessings to your family. Quote Link to comment Share on other sites More sharing options...
Bev'sSister Posted September 7, 2007 Share Posted September 7, 2007 Prayers that all will be fine. I have a feeling they will be. Take care, Bobby Quote Link to comment Share on other sites More sharing options...
Ry Posted September 7, 2007 Share Posted September 7, 2007 I hope they are able to come up with a diagnosis soon. Keep us posted. Rochelle Quote Link to comment Share on other sites More sharing options...
mary colleen Posted September 8, 2007 Author Share Posted September 8, 2007 Thanks all. I hope so, too Ry! He is really in serious head pain for the last 2 days. Just a few more days until we have seen all the docs. Quote Link to comment Share on other sites More sharing options...
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