spicysashimi Posted October 30, 2007 Share Posted October 30, 2007 Hey Folks, Overdue for an update. Last time I wrote I had just got back from my honeymoon only to hear news of more mets in my liver and new brain mets. So we switched to single agent Taxol - which has been, at least, tolerable - though I am now noticing dry skin and neuruopathy. I have ongoing pain in my neck and intermittent pain in my back and hip. For this I take Fentora primarily which I recommend wholeheartedly. It attacks the pain, doesn't make you feel that druggy, works quickly - and you can poop on it! In other news I have developed a frequent/uncontrollable urination problem. While they make drugs to stop up the other end (loratadine), there is NOTHING that will help you stop or slow your pee. Doctor's were a little stumped. Blood levels were ok. Sent off to Renal doctor who said could have Diabetes Insipidis which has nothing to do with regular diabetes but that my brain probably from the active mets keeps sending a hormone to my kidneys and my kidneys can't recognize that I have enough fluid. Something like that. So I end up with excessive thirst and urgent urination every 30 minutes. So I always have to be near a bathroom and, once again, I've turned into an insomniac. My Mom, who's a nurse, brought home condom catheter bags from her work - which are GREAT. You attach a tube and bag to your goods at night and whenever you get the urge to pee-pee, you lay right back down and just let it go into the bag. I have my sleep back! And so does Julia! My eyes seem to be a tiny bit better. I'm losing balance. I am looking forward to starting WBR with a focus on the eyes starting Monday, And a chemo break to boot! Ordered the max on movie channels (totally indulgent!) and thinking about what I want for my birthday in 2 weeks. How's that for an update? aaron[/i] Quote Link to comment Share on other sites More sharing options...
teriw Posted October 31, 2007 Share Posted October 31, 2007 Aaron, It's great to see you post and keep that amazing attitude of yours. You and Julia must be one special couple. I'm glad to hear your pain is managed and that you're starting the WBR. Take care, Quote Link to comment Share on other sites More sharing options...
RandyW Posted October 31, 2007 Share Posted October 31, 2007 whenever I hear Feist I think of you FOlks!! Glad to hear of plans for everything going on right now!! Quote Link to comment Share on other sites More sharing options...
raneyf Posted October 31, 2007 Share Posted October 31, 2007 I'd say a big "Thanks Mom!" for sure. It always feels good to be doing something against the stupid cancer. Take care, Raney Quote Link to comment Share on other sites More sharing options...
shineladysue Posted October 31, 2007 Share Posted October 31, 2007 Aaron, thanks for the update. Wish it was a bit better, but I know that no matter what you will make the best of it. You have such a wonderful attitude and you truly inspire me. Many prayers coming your way . Sue Quote Link to comment Share on other sites More sharing options...
Ry Posted October 31, 2007 Share Posted October 31, 2007 What do you want for your birthday? Your mom is one smart lady-- glad she fixed you up. Hang in there Spicy. Quote Link to comment Share on other sites More sharing options...
Barbb Posted October 31, 2007 Share Posted October 31, 2007 I say whatever it takes to get some sleep! Thank goodness for Moms. Wishing you good things. What is on your "I want" list??? Barb Quote Link to comment Share on other sites More sharing options...
mary colleen Posted October 31, 2007 Share Posted October 31, 2007 Aaron - Thanks for the update. You just rock. Nothing but good thoughts. MC Quote Link to comment Share on other sites More sharing options...
ladybug Posted October 31, 2007 Share Posted October 31, 2007 Hi Aaron. I'm glad your pain meds are doing the trick. From your posts I can tell what an intelligent and insightful person you are. I'm also inspired by your positive spirit! I wish all the best for you and hope you have a peaceful and fulfilling birthday. Many good thoughts. Michele Quote Link to comment Share on other sites More sharing options...
carolhg Posted October 31, 2007 Share Posted October 31, 2007 Good to see your post. Thanks for the update and keep right on fighting! Carol Quote Link to comment Share on other sites More sharing options...
fillise Posted October 31, 2007 Share Posted October 31, 2007 Thanks for the update Aaron. Sounds like your mom is one smart lady! Good luck with the WBR. I'll keep saying prayers that it kills those nasty mets! Susan Quote Link to comment Share on other sites More sharing options...
dadstimeon Posted October 31, 2007 Share Posted October 31, 2007 Aaron, Glad to see things are improving for you. Rich Quote Link to comment Share on other sites More sharing options...
trish2418 Posted October 31, 2007 Share Posted October 31, 2007 Hi Aaron, It's so good to see you post. I'm sending lots of prayers that the WBR and Taxol work well for you. You might want to look into Neurontin for the neuropathy. Good luck and keep us posted. Trish Quote Link to comment Share on other sites More sharing options...
Suzie Q Posted November 1, 2007 Share Posted November 1, 2007 Promise you will visit Kasey's pub for a birthday drink? I will bring the chocolate cake (or whatever your is favorite)! ~Karen Quote Link to comment Share on other sites More sharing options...
J.C. Posted November 1, 2007 Share Posted November 1, 2007 Aaron, Your posts are always so good to read, your problem and the solution are right there. Mom's are smart and yours deserve a medal. Jackie Quote Link to comment Share on other sites More sharing options...
Shelley (MLC) Posted November 1, 2007 Share Posted November 1, 2007 Hi Aaron, it was good to hear from you. I'm glad you're getting a break from chemo. Good luck with the WBR! Happy pre-Birthday!!! Shelley Quote Link to comment Share on other sites More sharing options...
barbara5452 Posted November 2, 2007 Share Posted November 2, 2007 Aaron good to hear from you, same problem here only depends have been added to my pharmacy cost, I think I have coughed so hard and deep after radiation and the pneumonia it caused that my bladder to fall. Oh well it could be worse. I'm a depends lady and well you are a baggy man...HA HA Hope your honeymoon was good despite all you have been through. Keep us posted. Quote Link to comment Share on other sites More sharing options...
Don M Posted November 2, 2007 Share Posted November 2, 2007 Thanks for the update Aaron. I hope the taxol works better for you. Enjoy your birthday and your full nights of sleep. Don m Quote Link to comment Share on other sites More sharing options...
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