twodogs Posted November 1, 2007 Share Posted November 1, 2007 I sent the following email to many of my close friends and relatives and decided to share it with my friends here also. Marilyn,(Mabel), is my wifemate, lifemate of 44 years and caregiver and Lori is my daughter. **************************************************** The day started with the now usual 6:00 AM alarm but we were both awake well before then. Weather was foggy and 28 degrees with icy lawns and prairies but good roads. We managed to clear the house by about 6:50 but realized we were low on gas so stopped and filled up at the local pumps, $2.899 for 87 octane regular. The ride in was uneventful and we chit chatted about the upcoming deer season which opens tomorrow. Decided we’d likely skip it due to the impending schedule for the day. I should have a blood draw, CAT scan, Doctor’s visit, up-to three pints of blood and then Chemo. It could be up to a thirteen hours day just for medical stuff and won’t feel much like trudging the hills tomorrow. The CAT scan and blood draw went like clockwork. Lab Tech, Tia, hit the vein first stab and I didn’t feel a thing. Lab gal got the draw for my blood panels and they got a good CAT shot on the first pass. I was on my feet and out of the room before 8:00. We went straight to the Oncology Clinic where my appointment to see the doc was scheduled for 9:30. Sometimes they take me right in and other times they don’t, so today we decided to just hang around hoping I could get in early. Turned out not to be the best decision we ever made as the doc didn’t get there until late, (Jeez, we coulda’ gone to Wal-Mart). To top that off, the labs had problems delivering my test results. When the blood report did get there they weren’t too bad so the doc decided to give me two pints of blood again today instead of three. But, he/we had to wait to get the CAT results to make the Chemo call. Those results were “not so good”. It appears this crap is progressing, albeit gradually. I have been feeling good recently and this was a shocker, especially for Mabel. She’s been telling me I was kind of puny but I just didn’t feel it. I was figuring on being stable to slightly improved. I’ve had more energy and ambition than in a long time but I guess that’s a false sign, more a reaction to my blood levels than the disease itself. As in the past, this latest progression required another change in recipe for my chemo treatment. I have now gone from Taxol to Abraxane which is the same stuff wrapped in a different carrier. I’m off the Benadryl for now so all the leg kicking and dozing off during treatment are at least temporarily off. Marilyn and the oncology staff will have to find some new entertainment to fill that time slot. As it turned out the new drugs are packaged so I get the same effective dosage in half the volume so, with just two pints of blood and my new whammy we were finished at 3:00. Only seven hours and we didn’t generate any OT charges against my account. We even skipped Wally World and just shot on home. This is now the fourth recipe we’ve tried since June and with the tumor changes, both smaller and larger; we are back at about ground zero for the tumor, (mass) size. We’ll stay on this for three weeks, unless we need a change and then do the blood and scans again and see what happens. I’m still doing Decadron so the chances of me still being awake through Friday morning are worthy of a bet. As Lori has reminded me, it’s not wise for me to post emails during some of these periods. Personally I think it is some of my most creative and expressive time. Sort of reminds me of the past when some folks have asked me how I “really felt”. Thank You All for Your Prayers and Support, John Quote Link to comment Share on other sites More sharing options...
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