rock44 Posted November 1, 2007 Share Posted November 1, 2007 Hi all.....looking forward to getting to know you and discussing whats happening in our lives.... I’m 42, I was just diagnosed 2 months ago with Non small cell cancer…Adenocarcinoma. I had a Pneumonectomy 3 weeks ago. Next week I am getting stereotactic radio surgery on a small spot on my brain and then Im starting chemo……6 treatments carboplatin/taxotere. I am also a Father.. Quote Link to comment Share on other sites More sharing options...
JB Posted November 1, 2007 Share Posted November 1, 2007 Welcome Rocky glad you found us, sorry you have to be here. Since you are, you'll find lots of helpful people and information. Be sure to update your profile as it helps us track your progress. We are happy you have chosen to let us join you on your journey. Quote Link to comment Share on other sites More sharing options...
Connie B Posted November 1, 2007 Share Posted November 1, 2007 Welcome Rocky, Sorry you had to join us, but I'm glad we are here for you. Please read my profile below. Hope you'll stick around and let us walk the walk with you. Quote Link to comment Share on other sites More sharing options...
rock44 Posted November 1, 2007 Author Share Posted November 1, 2007 Thank you Connie and JB. Im here to walk the walk with all of you too. Although I have a tight network of family and friends I really feel as though I need to be talking to you folks. I also hope to be an inspiration to others. My spirits are high and I dont intend to let this disease beat me in any way, shape or form.....Im doing my profile now Quote Link to comment Share on other sites More sharing options...
Judy-OK Posted November 1, 2007 Share Posted November 1, 2007 Welcome Rocky perhaps you can join us for a chat on Tuesday evening at 8 eastern time. Quote Link to comment Share on other sites More sharing options...
Adrian Posted November 1, 2007 Share Posted November 1, 2007 SRS is easy and effective. It should do the trick on the brain lesion. Though the chempo regimen is totally acceptable, I'm sort of interested to know why doctor is choosing carboplatin/taxotere doublet. Most frequently taxol not taxotere is the standard first line chemo. taxotere is more commonly used in the second line. I'm wondering if your onc thinks carbo/taxotere is more aggressive than carbo/taxol. And if he's trying to be more aggressive, why not cisplatin instead of carboplatin? Also, you might ask him about adding Avastin which is a third medicine added in to your chemo regimen designed to choke off blood vessels that feed tumors. Typically assuming no progression, after the six rounds of chemo and avastin, avastin is continued alone until there is tumor progression. One of our members, Ned, after chemo+avastin was using Avastin only for many months (I think 11 months of avastin only) before swtiching meds. Avastin only, is cancer medicine's "easy street" in terms of side effects as well. Some doctors are reluctant to prescribe avastin when there have been brain mets because of an increased risk of bleeding, but because of your solitary small nodule in the brain, many doctors would feel comfortable adding avastin in. The recent surgery might also be another reason that the doctor wouldnt prescribe avastin, but I would still ask. Also, because you only have one nodule, you should be aware of the concept and overall positive implications of a precocious brain met. http://onctalk.com/2007/04/08/solitary-brain-mets/ best, Adrian Quote Link to comment Share on other sites More sharing options...
Shelley (MLC) Posted November 1, 2007 Share Posted November 1, 2007 Hi Rocky and welcome. You sound like you have a great attitude and have already made great strides in fighting this disease. We're all here for you, let us know how we can help. Shelley Quote Link to comment Share on other sites More sharing options...
rock44 Posted November 1, 2007 Author Share Posted November 1, 2007 I'll be there Judy!! Tuesday at 8pmEST Adrian....thank you so much for that info!!!!! I will ask these questions that you advised.I'lllet you know what she says. Quote Link to comment Share on other sites More sharing options...
Dollfinn Posted November 1, 2007 Share Posted November 1, 2007 Rocky~ I really need to type.Yo! Rocky! Your a fighter, right? I know its corny and you've heard it your whole life. Make it happen now, were here, we'll help. This group got me through, they'll do it for you too! Go get 'em! Mary Quote Link to comment Share on other sites More sharing options...
beatlemike Posted November 1, 2007 Share Posted November 1, 2007 Welcome Rocky,Im hoping and praying the best for you. Quote Link to comment Share on other sites More sharing options...
ernrol Posted November 1, 2007 Share Posted November 1, 2007 Rocky, Welcome to the site. I see you allready have got a lot of advice. Keep us posted. Stay positive, Ernie Quote Link to comment Share on other sites More sharing options...
recce101 Posted November 2, 2007 Share Posted November 2, 2007 Hi, Rocky, welcome to the group! As someone else implied, it's wonderful to have supportive family and friends, but nothing can compare with talking to people who have BEEN THERE and can tell you what the various treatments and conditions feel like from the INSIDE. That's what we do, and more, and so can you when you're an old-timer (which you'll become very quickly indeed)! I read Adrian's comments on Avastin -- I'm the guy he was talking about, the one that everybody thought was on Genenetech's payroll since I was such an advocate for the drug. Still am, but it was starting to lose its steam after a year (4 months in combination with Taxol and Carboplatin, 8 months Avastin alone), and I've now switched to Tarceva. Won't know how that's doing for about a month, when I'll get another scan (CT/PET). Any questions you have, ask away. Also, you should check out Dr. West's website at onctalk.com -- questions of a technical nature or requiring the knowledge and perspective of a lung cancer expert are best posted there. I'm continually amazed that we have such a valuable resource at hand. Aloha, Ned Quote Link to comment Share on other sites More sharing options...
Don M Posted November 2, 2007 Share Posted November 2, 2007 Welcome Rocky don M Quote Link to comment Share on other sites More sharing options...
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