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Plan could help to double lung cancer survival


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http://icwales.icnetwork.co.uk/news/wal ... -20061213/

A 12-POINT plan could almost double cancer survival rates, the strategy’s authors claim.

Leading lung cancer experts today unveiled ideas to eradicate inequalities in the disease’s care. The group wants to see greater research funding, the development of screening programmes and earlier diagnosis to ensure patients have the best survival chances.

It also wants lung cancer patients to have access to the full range of specialist practitioners, and would like their care strategy to be implemented wherever possible.

The plan was created by the UK Lung Cancer Coalition (UKLCC), using the country’s leading cancer care experts from the NHS and the Department of Health.

Cancer charities and healthcare companies also had an input into the strategy, which is thought to be the first of its kind for lung cancer care in the UK.

A recent analysis of cancer survival rates showed the UK’s fell below the European average, despite high national spending on health services.

Dr Mick Peake, chair of the UKLCC’s clinical subgroup, said thousands of lives could be saved if the plan was implemented now.

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Is there an equivalent plan that we in the US have? It really helps to have a multi-point breakdown. It gives me a chance to see where I might contribute, where others might hook in as activists. Once I get the list, my inclination is to find out who are the key people working/pushing/advocating on each of the points. Master calendar for activists? both short and long term....it can make a difference to have people with lung cancer at conferences, meetings,....pushing, asking key questions.

In the AIDS activist movement we had working groups focusing on a specific area, specific drug being developed, a clinical trial or group of trials, a specific pharmaceutical company, etc. Overtime, all of us knew who to go to for info, support, strategy and we were working from all over the country via emails, conference calls, 1:1 calls etc. We got "community reps" on all the important decision making bodies....I'm meaning people with AIDS, the docs and researchers and pharmaceuticals were already represented. It the beginning it was a pressure and a push on each committee until they embraced the concept. We also had alternative reps with the acknowledgment that there would be cycles of non participation...because of health,breaks, etc., but that we would work relay style/team style in pushing the agenda(s).

I'm looking for "a point, in a plan" to focus and develop a network. Thanks, Hank

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