Patti B Posted December 9, 2007 Share Posted December 9, 2007 So tomorrow morning I have another CAT scan. For 13 months, my every 9 week scan was good - either shrinkage or stable up until the one in October that showed some growth while on Avastin. So they started me on Alimta. Now, for the last 1 1/2 months, I feel different. I talked to my onc who moved up my CAT to determine what is going on. I have been having pains (not bad, like sore pains) in my right middle back and its almost like I can "feel" my lung. Hard to explain the feeling. Now, of course, I try to rationalize it that in the last couple of months I have been on a roll - lugging a carpet cleaner up and down the steps cleaning carpets, I painted my master bath, up and down the attic steps with Thanksgiving decorations and now recently up and down the attic steps carrying Christmas boxes. So maybe its pulled muscles?? Or the tumor pressing on a nerve?? Or am I just trying to make excuses to myself and this is progression? I have the scan tomorrow morning and then see my doc for chemo Tuesday am at 8:30. If he is not in the exam room by 8:35 (which we all know he won't be) I will be running up and down the halls of Cleveland Clinic screaming 'DR. MEKHAIL GET YOUR BUTT IN HERE!!!" How can I be so terrified of getting these results and yet want 8:30 am Tuesday to come SO BAD all at the same time?? Unfortunately, I cannot think beyond Tuesday right now. I have always been "freaky" at scan time but this one is really giving me the willies! My son, of course, tells me mom, I know it will be OK and my husband is just so far into denial over this. My friends tell me to just think positively. Well, we all know that sometimes cancer doesn't hear our thoughts!! So that is why I have come here, because you all understand. And it makes me feel better just putting it in writing. Thanks!! Will post on Tuesday one way or another. Thanks again for letting me vent!! Hugs to All Patti B. Quote Link to comment Share on other sites More sharing options...
MsC1210 Posted December 9, 2007 Share Posted December 9, 2007 Patti I wish I was closer to give you a hug and let you know I am with you on this as much as I can be from a distance! Breathe and tryyyyyyyyyyyyyyyy not to worry.. I know that is virtually impossible... You've got a great support system here and we are all pulling for you and for great results! My prayers and positive thoughts are with you and I am here.. just yell~ Love and hugs Chris Quote Link to comment Share on other sites More sharing options...
Patkid Posted December 9, 2007 Share Posted December 9, 2007 Okay, girl, Since you ARE worried and nothing will change that..........(Scans are just plain scarry PERIOD. for all of us who wait and pray) I promise to worry and wait w/ you and to be there when the results are in. Hugs pat Quote Link to comment Share on other sites More sharing options...
Leela Posted December 9, 2007 Share Posted December 9, 2007 Patti, I'll be thinking of and praying for you. I know how hard it is to think positive, but if enough of us do - hopefully it will be loud enough that the cancer is bound to "hear" us! Please keep us posted. Hugs, Lisa Quote Link to comment Share on other sites More sharing options...
carolhg Posted December 9, 2007 Share Posted December 9, 2007 I will certainly pray that you have good results from your scan. Prayers Carol Quote Link to comment Share on other sites More sharing options...
recce101 Posted December 9, 2007 Share Posted December 9, 2007 Hang in there Patti, Tuesday is my results day too! When I checked into the imaging center for my CT/PET Friday I noticed a new brochure explaining their recent expansion, and an item offering "free CDs of your exam" to patients. I inquired and was told I could pick it up 45 minutes after the exam ended. It's been a lot of fun playing with the various color and overlay options, but not very informative. If I had to make a guess I'd say there is still activity in my right lung (no idea whether more or less) but the pleural effusion has decreased. Everything else is a mystery, except my Tarceva fingertips do show up as inflammation hotspots in some of the images. After my doc gives me the written report I'll know how far off base I was. Good luck and Aloha, Ned Quote Link to comment Share on other sites More sharing options...
Maryanne Posted December 10, 2007 Share Posted December 10, 2007 By this time you scan is probably over. I have everything crossed here for good results. I am very aware of that anticipation feeing... hate it!! Prayers sent! Maryanne Quote Link to comment Share on other sites More sharing options...
LolasDaughter Posted December 10, 2007 Share Posted December 10, 2007 Hi Patti - Sending prayers for you now and through tomorrow AM. Praying for peace during the wait. I'll be looking to see how it goes. Nicole Quote Link to comment Share on other sites More sharing options...
Patti B Posted December 11, 2007 Author Share Posted December 11, 2007 Hi All- Guess what - GOOD NEWS!!!!!! My onc personally looked at the scan and altho he is waiting to confirm the exact measurements with the radiologist, the scan is the same or MAYBE THERES A TEENY TINY BIT OF IMPROVEMENT over the last one!!! I cannot believe this!! I have been hurting in my lung area for about a month and everythings OK!!! Who would have thought?? I have been so terribly worked up over this and I was almost puking on my way there today!! The doc feels my pain is either muscular in nature or maybe its the way my body is reacting to Alimta with body aches. OR - I am going Thursday for a full body bone scan. When I had my PET a year ago, it had showed not only a met to my spine and rt pelvis, but also a met to one rt rib. That rib met has never showed up again on any CAT or MRI. So he is wondering if that little bugar is bothering me again. He told me not to worry about it if it is, I can go back on Zometa. So now my family can go on with Christmas - this is the greatest present EVER!!! Thank you all so very much for your words of encouragement and prayers - I could not have gotten thru this without all of your support. I really had felt like this was going to go another way and I knew that you would have all been there to help me get thru it. Thanks again - and - Ned - I hope you read this - I know today is your scan result day and I am praying very hard right now for you that you, too, have good news. Please let us know!! Love, hugs and gratitude to you all!! Patti B. Quote Link to comment Share on other sites More sharing options...
MsC1210 Posted December 11, 2007 Share Posted December 11, 2007 HAPPY HAPPY HAPPY HOLIDAYS Patti~ So very glad to hear this wonderful news!!! Love and hugs Chris Quote Link to comment Share on other sites More sharing options...
tiredmom959 Posted December 11, 2007 Share Posted December 11, 2007 GREAT NEWS!!!!!!!!!!! Quote Link to comment Share on other sites More sharing options...
luvmydad Posted December 11, 2007 Share Posted December 11, 2007 Congrats!!! "Bestest news!!!!" Enjoy your holidays!! Teresa p.s. Your Nick sounds like a pretty awesome guy from some of your posts I have read!!!! Not to mention handsome!!! I just read his blog at cancergrief.com. I will pass this along to my son (14) so maybe they can "hang out". Quote Link to comment Share on other sites More sharing options...
Muriel Posted December 11, 2007 Share Posted December 11, 2007 Wonderful! Quote Link to comment Share on other sites More sharing options...
Welthy Posted December 11, 2007 Share Posted December 11, 2007 Patti B --- Your results are workin' for me and I KNOW they are working for you!! High-fives!! Welthy Quote Link to comment Share on other sites More sharing options...
LolasDaughter Posted December 11, 2007 Share Posted December 11, 2007 Patti, Congratulations!!! So glad to hear your good news. Mom is off to the Clinic on Friday for her first CT - our first taste of scanxiety! I am so happy for you! Happy Holidays!!!! Nicole Quote Link to comment Share on other sites More sharing options...
alexan Posted December 11, 2007 Share Posted December 11, 2007 Hang in there, I know is easy to said but...... hope hope for the best. lot of prayers on your way. it will be find. hugs bucky Quote Link to comment Share on other sites More sharing options...
Heather_T Posted December 12, 2007 Share Posted December 12, 2007 That is GREAT news Patti!!! Merry Christmas Quote Link to comment Share on other sites More sharing options...
J.C. Posted December 12, 2007 Share Posted December 12, 2007 Congratulations, well deserved. Have a Merry Christmes. Hugs Jackie Quote Link to comment Share on other sites More sharing options...
Maryanne Posted December 12, 2007 Share Posted December 12, 2007 AMEN!!!! Enjoy the holidays!!! Maryanne Quote Link to comment Share on other sites More sharing options...
fillise Posted December 12, 2007 Share Posted December 12, 2007 Great news Patti! I hope you and your family have a Merry Christmas! Susan Quote Link to comment Share on other sites More sharing options...
recce101 Posted December 13, 2007 Share Posted December 13, 2007 Hi, Patti, congratulations on the good news! I didn't make a separate post for mine, just updated the profile, and it's essentially like yours -- stable. The tumor and pleural nodules still light up, but there's nothing suspicious anywhere else. Even better, the loculated pleural effusion that's been with me for who knows how long is continuing to resolve. The lungs sound good via stethoscope according to my onc, and he did a full tap-tap routine for the benefit of myself and wife. Now there are two almost identical drums, rather than one drum and one bag of wet rags. I had a feeling that was the case, since my energy and endurance have improved recently. I'm not much closer to NED status, but now that I'm getting the Tarceva side effects under reasonable control I'm a happier camper. Happy Holidays and Aloha, Ned Quote Link to comment Share on other sites More sharing options...
Patti B Posted December 13, 2007 Author Share Posted December 13, 2007 Ned - I am so glad to hear your good news. I told myself to wait til tonight since you are in a different time zone but was going to send you a PM if I had not heard from you - I was worried!!! So that makes like what - 5 of us who got good news on the same day?? Lets keep this one rolling!! Hugs to All - Patti B. Quote Link to comment Share on other sites More sharing options...
shineladysue Posted December 13, 2007 Share Posted December 13, 2007 Patti, such wonderful news... Ned, so happy to hear yours is good , as well. Merry Christmas All. Love, Sue Quote Link to comment Share on other sites More sharing options...
carolhg Posted December 13, 2007 Share Posted December 13, 2007 FANTASTIC! Carol Quote Link to comment Share on other sites More sharing options...
Leela Posted December 13, 2007 Share Posted December 13, 2007 Woohoo!!!!!!!!!!!! Great news Patti! Quote Link to comment Share on other sites More sharing options...
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