TracyD Posted January 12, 2008 Share Posted January 12, 2008 I got scan results today after four months off of treatment and the report says... signifiant interval progression. I had scans six weeks ago and much of the increase has occurred during that time. The primary tumor has doubled in size, and the pleural effusion has greatly increased. There are numberous nodules, and they all seem to be growing. My doctors comment...looks like it's time to get back on treatment. The new treatment is a phase 2 clinical trial with Selicicilib, a protein inhibitor. I was supposed to start today, but by the time I saw the doctor it was too late in the day, so I take the first pills tomorrow morning. The regimen calls for three pills, twice a day for three days, every two weeks. I'll get scans again in six weeks. This is a bit scary for me as this is the first time I have experienced any real symptoms. I have occasional SOB and the cough is back. They are all symptoms of the effusion and I am told that if it gets too uncomfortable they can drain it. We are trying to take this one day at a time. I picked up the kids from school just like I always do and I will enjoy our family movie night tonight, although I am saddened that it is no longer a movie with the whole family as the kids are growing up. Samantha is at a school dance and then to a friends house for a sleep over and Joe is at basketball practice with his teammates until 9. So that leaves me and Alex snuggling on the couch and watching Barbie as the Island Princess, seems like heaven to me. Tomorrow I will begin a new adventure in LC, perhaps it will be a long and wonderful ride. Tracy Quote Link to comment Share on other sites More sharing options...
Kasey Posted January 12, 2008 Share Posted January 12, 2008 And I am there with you too watcing movies, Tracy, with Alex and Charlie too. Love you ~ and this is the trial to kick the butt of LC, for sure. Great to chat with you tonight. WE ARE TROUBLE, for LC, Tracy. We ARE!!!!!!!!!!!!!! Love, Aunt Kasey (Uncle Fred too) Quote Link to comment Share on other sites More sharing options...
recce101 Posted January 12, 2008 Share Posted January 12, 2008 Tracy: I Googled up some articles on Seliciclib -- looks very promising. Maybe it will start reversing the effusion pretty soon -- you might be able to tell before scan time. If not, I hope you don't wait too long before getting it drained. Best wishes and Aloha, Ned Quote Link to comment Share on other sites More sharing options...
ursol Posted January 12, 2008 Share Posted January 12, 2008 Tracy, I'll be thinking of you as you start your new treatment. You and your family are in my prayers for great results from this trial. Lilly Quote Link to comment Share on other sites More sharing options...
Ry Posted January 12, 2008 Share Posted January 12, 2008 Tracy- I've been thinking of you and wondering how you are. I am sorry you've had progression. I know how devastating it was for John to have set backs -- but he went on to find the next drug that worked, and then the next drug that kept him stable and when that failed, on to something else. Before we knew it the 3 year old was 8 and we had the older ones driving. I hope this drug is the ticket to see Alex grow up and have her first fender bender. Rochelle Quote Link to comment Share on other sites More sharing options...
wendyr Posted January 12, 2008 Share Posted January 12, 2008 Tracy: hoping and praying the new drug will kick cancer butt. Good Luck & God Bless wendyr Quote Link to comment Share on other sites More sharing options...
nonni Posted January 12, 2008 Share Posted January 12, 2008 Tracy...praying this new treatment will go well for you and you will kick it's butt big time...my thoughts and prayer's are with you hugs..nonni Quote Link to comment Share on other sites More sharing options...
Shar Posted January 12, 2008 Share Posted January 12, 2008 Hi Tracy, Sorry to read of the progression. Have been wondering how you have been doing. I will send every positive thought I can your way. I really do hope this treatment is the one that brings great results. All the best, Sharon Quote Link to comment Share on other sites More sharing options...
shineladysue Posted January 12, 2008 Share Posted January 12, 2008 Tracy, I am sorry to be reading your scan results , but I have a positive feeling about this clinic trial drug. Aren't clinic trials about trying up and coming new things. I'm praying you will give them the miraculous results that will give relief to you and promise to others. Go Tracy . Lots of prayers coming your way. Hugs, Sue Quote Link to comment Share on other sites More sharing options...
Andrea Posted January 12, 2008 Share Posted January 12, 2008 Tracy, You and your aunt are a strong team and may this trial be THE trial to kick cancer tushy. Sending hugs yoru way Quote Link to comment Share on other sites More sharing options...
beatlemike Posted January 12, 2008 Share Posted January 12, 2008 Tracy I am so sorry about your results.I am praying that this new treatment will do what they are hoping.Mike Quote Link to comment Share on other sites More sharing options...
mary colleen Posted January 12, 2008 Share Posted January 12, 2008 Tracy, I have thought of you as well. This drug sure looks promising in research. I understand the feeling of those kids starting to be busy on their own....all of the sudden the house just starts to be very quiet once in a while. Don;t worry - my experience is that they eventually come back, and bring friends! Take very good care. MC Quote Link to comment Share on other sites More sharing options...
Don M Posted January 12, 2008 Share Posted January 12, 2008 Good luck Tracy don m Quote Link to comment Share on other sites More sharing options...
dchurchi Posted January 12, 2008 Share Posted January 12, 2008 Tracy, I am very sorry to read this news. Sounds like your Drs have a plan of attack to help you fight the beast. Alan and I will keep your in our prayers. Quote Link to comment Share on other sites More sharing options...
Kasey Posted January 12, 2008 Share Posted January 12, 2008 perhaps it will be a long and wonderful ride. AMEN to that, Tracy, I hope it is too!! Love, Aunt Kasey Quote Link to comment Share on other sites More sharing options...
RandyW Posted January 12, 2008 Share Posted January 12, 2008 Ya got me crying again but its ok though. I know you got the info that Kasey sent I am sure and if I can do anything else research wise drop me a note. For Now lots of Big Dryer warm towel hugs and MANY PRAYERS!!!!!!!!!! Thank you for being a PIONEER Not a GUINEAU PIG!! I know so many people think that wqay about clinical trials but I don't. I undersstand and appreciate the fact that you are diving into the unknown with a VERY PRETTY AND BRAVE FACE!!!!!! Quote Link to comment Share on other sites More sharing options...
fillise Posted January 12, 2008 Share Posted January 12, 2008 Tracy, I am so sorry to hear about your progression, but glad you could get on the trial. It sounds like they got you going quickly, which is good. I will be keeping you in my prayers. Susan Quote Link to comment Share on other sites More sharing options...
dadstimeon Posted January 12, 2008 Share Posted January 12, 2008 Prayers for the best Tracy. Rich Quote Link to comment Share on other sites More sharing options...
Suzie Q Posted January 12, 2008 Share Posted January 12, 2008 Doggone it! Sorry the news was not positive, TracI! I have great hopes that this plan will be just the ticket for you. BTW how'd you like the new Barbie movie? ~Karen Quote Link to comment Share on other sites More sharing options...
TracyD Posted January 12, 2008 Author Share Posted January 12, 2008 Hi Suzie, I just loved the movie. Although, I think it had more to do with the fact that my daughter and I were snuggled together under a blanket and she kept hugging and kissing me and telling me she loved me. How is it that children just know when you need a hug? Tracy Quote Link to comment Share on other sites More sharing options...
hopeandstrength Posted January 13, 2008 Share Posted January 13, 2008 Tracey, Just adding my prayers and positive vibes to the rest. Cathy Quote Link to comment Share on other sites More sharing options...
LovesLife Posted January 13, 2008 Share Posted January 13, 2008 (((Tracy))) ... I have read all your posts and have been rooting for you since I started reading this forum over 18 months ago. I am sorry to hear that you have to begin treatment once again; however, I will be sending fervent prayers that your new treatment will put this cancer on the run. Wishing you a most long and wonderful ride and many, many movie nights in your future. Linda Quote Link to comment Share on other sites More sharing options...
Dazy Posted January 13, 2008 Share Posted January 13, 2008 There is no better medicine, huh? BIG HUGS, (((Tracy)))! It will be a long and beautiful ride, indeed! Hang in there!!! Yours in HOPE! (and Barbie movies...) Stacey Quote Link to comment Share on other sites More sharing options...
Leela Posted January 13, 2008 Share Posted January 13, 2008 Adding my prayers too. Hoping your new treatment is successful. Hugs, Lisa Quote Link to comment Share on other sites More sharing options...
gail Posted January 13, 2008 Share Posted January 13, 2008 Of course you got all those hugs and kisses cause you are her special MOM! Each and every moment is special, and we in the cancer world know that. Your older ones, well, we want our kids to do those things--go to dances, be with friends. Sending you warm and fuzzy thoughts gail Quote Link to comment Share on other sites More sharing options...
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