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Got Our Appt @ Johns Hopkins


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We are going to Johns Hopkins on 1/29 to meet with Dr Geschwind and on 2/8 she is getting Chemoembolization!!! This is the greatest news. All I can say is that if anyone is unhappy with their Dr's or treatment or feel they are not getting everything they deserve to be getting to help keep them alive-do not take NO for an answer! This was just a matter of me email'g and making some phone calls and knowing what I was talking about. I truly believe when you are competent and know what you are talking about with these Dr's they take you serious. As we all know you have to be your own Advocate in this fight for your life!!


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Great news Dar. My dad also has been going to John Hopkins. He has been very pleased with them there and is grateful they are monitoring his tx's here at home. We hope to be back up there sometime next month talking....dare I say it....surgery!!!

I hope you guys experience good news there as well and have great success.


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