Guest Lynn48764876 Posted November 14, 2003 Share Posted November 14, 2003 Hi Is there anyone out there who has carcinoid cancer of the lungs? I found out 2 years ago thats what i have. It's just in my lungs. My serotonin level is over 400. It stays elevated. I feel ok on most days but when i get tired thats it, no more energy. I have had chemo, carboplatin and etopside. It didnt help much. Right now i am stable. My e-mail address is brockronald@bellsouth.net please contact me if anyone else has this condition. I am a 41 year old white female, who has never smoked in my life. THANKS Quote Link to comment Share on other sites More sharing options...
john Posted November 14, 2003 Share Posted November 14, 2003 Carcinoids usually will not respond to chemo. Ask about somatostatin or octreotide. Teetlee on this board has a carcinoid and has success with this Quote Link to comment Share on other sites More sharing options...
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