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Febuary 3 2008


rakwel

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I found out I had lung cancer because Ihad bacterial pneumonia.They did a x-ray and then a ct scan which then showed a mass on my right lung.Then the nitemare started.Iwas refferd to a pulmonary lung specialists that was just awful.He did a bronchoscopy during which I remained awake for more then I would like to remeber.The nurse that took me back to my room would just shake his head at the amount of discomfortI was in.Then 2 days later I get a call from this Dr. and all he says is you have lung cancer go seea oncology Dr. my nurse will call you back.I was shocked at how this Dr. just kind of brushed me off.I was wondering if anyone else had this happen to them.I see the oncology Dr. this friday I'am hoping to get more infomation then I have right now.

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Welcome to the place none of us wiis to be. However, I'm very glad we can be here for one another.

Let me first say, not all doctor's have good bedside manners, as you just found out. Sorry you had to go through that. BUT, now you have to put your fighting gloves on and do what that Pulm Doc told you to do or that his Nurse will help you to do.

Did they Mr. No Bedside Doc happen to tell you what KIND of lung cancer you have????? There are different kinds.

First you will want to find out what Kind of LC you have, and then you will want to know what Stage you have. This will determine what kind of treatments and or if they will do sugery or not.

Did this all happen to you Feb 3, 2008? I see you have that date put in the Subject line and I just want to be clear as to what your sharing with us. The MORE information you share with us, the BETTER we can help you.

Please keep us posted and will do our very best to walk through your journey with you. Your NOT alone!

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I put Febuary 3rd as the subject line because that is the day I found out I had a mass on my right lung.So since then after then seeing the pulmonary Dr.and having a brochoscopy that is still all Iknow.I have a mass on my right lung.That why I'am so mad at the way this Dr. treated me.But I'am ready to put the gloves on.It is just not knowing what I have to fight.But I'll know friday God willing. Thanks for the kind words and your encourgment

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Follow everything Connie has said, you need more information, stage,type etc.

I will tell you, you will need a pulmon. so you may want to change before you get to far into the program. I would not go back to the back bedside mannered one, just my opinion. Been there, done that, you know.

If you like your onc. group ask them who they recommend, they may work with a group closely.

Take care and stay positive and I will send prayers up for you.

Kathy

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Welcome to our board. I am sorry about what you've gone through with the pulmonologist. Once you go to the oncologist you will get information and hopefully a treatment plan. You can have you oncologist refer you to a different pulmonologist should you ever have to go back to one. Most oncologists have certain doctors they trust and like to work with and hopefully yours isn't on the list. :P Let us know how the appointment goes.

Rochelle

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Welcome to our group and I'm sorry you had such an awful experience with the Pulm. dr. That was unnecessary! As others have mentioned, when you see the Onc. on Fri. find out the type and stage of your cancer is. Did the Pulm. office refer you to the Onc? Well first of all, don't go back to that Pulmonologist. As someone else said, if you like the Onc. continue with him and, eventually, get a referral to a different Pulm. If not, find another one on Friday afternoon or Monday morning.

Let us know ASAP about your Friday appt.

Muriel

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Welcome to the forum - sorry you found the need to be here but this is a great place to be for strength and knowledge.

This is a scary time for you, I know. It is not a time to have a doc who you don't like. After you see your onc, if you like him, I agree with the others that hopefully he can refer you to a different pulmonologist should you need to ever see one again. If you don't like the oncologist, also, then go get a second opinion. That is your right and you have a right to have a doctor you feel comfortable with.

You might also want to bring paper and pencil with you when you see the onc to write down all the info he gives you. Any questions you have in advance, write them down so you don't forget them. As Connie said, you will need to know your staging and what options you have - radiation, chemo, surgery, or a combination of the above.

Please let us know how your appt. goes. If you have any questions before then, please come here and ask. There is always someone who will have an answer for you.

Hang in there - Patti B.

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Welcome to our family. I'm sorry you have to be here, but I want you to know that you have chosen a wonderful group to join. You will find a lot of support and hope here. I'm so very sorry to read how you were treated by your pulmonologist.. that's not right. I do hope your oncologist will be a lot more compassionate. Be sure to take notes, be sure to ask questions and make sure you understand everything. The beginning can be very scary , but as you learn exactly what you are facing and what the treatment plan is it will all be easier. Hang in there. Look around the forums here. There is a wealth of information for all.

Sue

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Sorry you need to be here, but it's a great place to get information and support. I'm also sorry about your pulm dr. I don't know if you were referred to the specialist by a diagnostic center or a hospital but hopefully it wasn't your primary care doctor. If not and if you're not satisfied with the onc's referral, try your primary care doctor. Mine sent me to a great one.

Judy in Key West

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I, too, began this nightmare with a case of pneumonia. With a questionable follow-up x-ray, my GP sent me for a CT. When the CT results came back, she set me up with a thoracic surgeon for a consult (NO ONE really thought it was lung cancer, we were just going through the motions of what it COULD be).

The biopsy yielded the type of cancer and I was lined up for surgery. I didn't meet with an oncologist until three weeks after surgery.

Best of luck to you, especially in finding a more human doctor.

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I was also told I had lung cancer in a cold and callous manner. I know it sets you back quite a bit because you focus on not only WHAT you were told but HOW you were told. But try to put that part past you and put on your fighting gloves! It is VERY important to find an oncologist that you trust and like - it will make all the difference. Let us know what happens tomorrow. My prayers are with you.

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Sorry you have to be here but this is a great group of people and there is alot of knowledge here. Instead of trying to take notes I would recommend you take a small portable tape recorder if you have one available. That way you have the tape to know exactly what was said. Prayers your way.

Peace out

hawkeye

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