barbvh Posted March 5, 2008 Share Posted March 5, 2008 Hi Everyone, I don't post very often, but do read a lot about you all and am very inspired by your strength and courage. I had a CT & PET last Thursday. They were watching 2 new nodules & a lymph node found on my 12/20/07 CT. Not good news. In 10 weeks they have grown in size from 6 & 8mm to over 2.8 cm, and there are more new nodules as well. Some lite up on the PET as did a lymph node. I am scheduled for a fine needle biopsy on Thursday to be sure of what they are dealing with. To say I am surprised is putting it mildly. Ten months ago I was told I had a 90 some percent chance of a cure and now it looks like it is metastatic disease. On March 13 I will find out what they restage it to and what treatment is recommended. From what I have read it looks like it may be restaged to stage 3. No one wants chemo, but I am extrememly sensitive to medications and this worries me. I deal with an anxiety disorder and I want to keep that in check as well. Will let you know what I hear next week. I know I am going to need advice. Thanks! Quote Link to comment Share on other sites More sharing options...
Leela Posted March 5, 2008 Share Posted March 5, 2008 Barb, Wishing you the best of luck! Keep us posted. Hugs and prayers, Lisa Quote Link to comment Share on other sites More sharing options...
cjolaw Posted March 5, 2008 Share Posted March 5, 2008 Always know that you have support here! Quote Link to comment Share on other sites More sharing options...
MsC1210 Posted March 5, 2008 Share Posted March 5, 2008 Barb I am sorry to read this update. Please keep us updated and lean on us as you need to. We are here for you. Will be thinking of you and sending tons of prayers and positive thoughts Christine Quote Link to comment Share on other sites More sharing options...
Welthy Posted March 5, 2008 Share Posted March 5, 2008 Good luck Barb. We're here for you and so wish that you didn't have to "go there" again. Welthy Quote Link to comment Share on other sites More sharing options...
shineladysue Posted March 5, 2008 Share Posted March 5, 2008 Barb, Sorry you are having to go through all of this . Please keep us updated and let us know what you and the doctors decide is your best treatment. We will be here for you. God Bless, Sue Quote Link to comment Share on other sites More sharing options...
Ry Posted March 5, 2008 Share Posted March 5, 2008 Barb- I am sorry you've had a set back. I hope they can find a drug that will work for you and kill those buggers that have cropped up. There are many chemos now that seem to be kinder to the system. I hope all goes well. Quote Link to comment Share on other sites More sharing options...
Muriel Posted March 5, 2008 Share Posted March 5, 2008 This isn't really good news. I'm so sorry. Let us know what is recommended for treatment. If it's chemo, remember that it affects everyone differently. And, for most, it's unpleasant, but they make it through ok. Good luck. Muriel Quote Link to comment Share on other sites More sharing options...
Patti B Posted March 5, 2008 Share Posted March 5, 2008 ((((((Barb)))))) I am so sorry you got bad news. I wish I could do more for you to help you. Please, please keep us updated on your progress and know that prayers are being said for you. Hugs - Patti B. Quote Link to comment Share on other sites More sharing options...
tkelley Posted March 5, 2008 Share Posted March 5, 2008 Sorry the news is not what you hoped for. There are lots of "experts" around here as far as treatments go so once you find out what the protocol is, I am sure there are people around here who can share their experiences. Quote Link to comment Share on other sites More sharing options...
beatlemike Posted March 6, 2008 Share Posted March 6, 2008 Sorry about your news Barb. Ask your doc about some anti anxiety med. I am on lexapro and it has helped me alot. Your in my prayers at this difficult time.Dont lose hope. Quote Link to comment Share on other sites More sharing options...
Don M Posted March 6, 2008 Share Posted March 6, 2008 I am sorry to read of your bad news Barb. I have been dealing with anxiety too. I keep a stash of xanax on hand now for the rough spots. I also am on lexapro and it seems to be working. I have 8 nodules that they are watching plus a big arse tumor. Don m Quote Link to comment Share on other sites More sharing options...
fillise Posted March 6, 2008 Share Posted March 6, 2008 Barb, we will be here to answer any questions you may have. I'm sorry the news wasn't better. Susan Quote Link to comment Share on other sites More sharing options...
barbvh Posted March 7, 2008 Author Share Posted March 7, 2008 Thanks to everyone for all your support, prayers and words of encouragment. I had my needle biopsy today. The radiologist was a walking angel. She spent a lot of time getting as much information from me about my lungs as she could. She went in and got 5 (ouch) good samples and said that preliminary slides show no evidence of malignancy. YEAH!!! I will get the final report on Thursday. I am much relieved, though I realize they may still recommend treatment because of the other nodules and nodes. For now, I will relax a bit and give Thanks to God for some good news. Quote Link to comment Share on other sites More sharing options...
fillise Posted March 7, 2008 Share Posted March 7, 2008 That for the update--it sure sounds encouraging!!! Relax and enjoy the weekend--you've sure earned it! Susan Quote Link to comment Share on other sites More sharing options...
Maryanne Posted March 7, 2008 Share Posted March 7, 2008 Barb this is so encouraging... Good Luck, will be waiting for the good news!! Maryanne Quote Link to comment Share on other sites More sharing options...
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