ernrol Posted March 11, 2008 Share Posted March 11, 2008 Anyone had this combo? This is just a short note to let everyone know what’s going on with my chemo. The chemo has not been easy. Some of it is cumulative. At the present time I get a steroid, Alimta, Gemzar and Avastin every two weeks and the side effects are tough. SOB is a big problem. My first chemo I had no side effects, what a difference Tomorrow I get the results of the latest scans and another session of chemo. All prayers appreciated. I want to get back to being more active, but have not felt up to it. Maybe this time I will have the right meds to take care of more of the side effects. Stay positive, Ernie Quote Link to comment Share on other sites More sharing options...
wondermom Posted March 11, 2008 Share Posted March 11, 2008 Hi Ernie, Good to hear from you. I wish you were feeling better. That sounds like an interesting combo you are getting. Hopefully you will be getting some good scan results and those nasty side effects will be worth it. I also hope they can get those under control for you. Prayers coming your way! Jill Quote Link to comment Share on other sites More sharing options...
Robbi Posted March 11, 2008 Share Posted March 11, 2008 What does SOB stand for? I've tried to figure it out and just can't. Thank you, Robbi Quote Link to comment Share on other sites More sharing options...
Kasey Posted March 11, 2008 Share Posted March 11, 2008 ERNIE!!!!!!!!!! You've got my most fervent prayers, friend! I cannot answer your question about your tx, but can answer the call to arms for prayer and positive vibes. So sorry it's difficult to keep up with the board right now. Hopefully you'll be feeling better as time goes on and you'll be BACK as good as ever. I KNOW you work hard on keeping positive! Best of luck and hope tomorrow goes well. Kasey PS to Robbi......SOB = Short of Breath Quote Link to comment Share on other sites More sharing options...
Ry Posted March 12, 2008 Share Posted March 12, 2008 Ernie- Alimta alone is a hard chemo, so I imagine that all three of these would be hard to tolerate. Ask for a break if you need one, don't get run down. Sorry it's tough going right now. Rochelle Quote Link to comment Share on other sites More sharing options...
Connie B Posted March 12, 2008 Share Posted March 12, 2008 Hey Ernie, it sure is good to see you posting. I'm sorry to hear your having such a tough go of it. I think we have a few members here that are taking the same chemo's. I too have heard that Alimta is a hard one to tolerate. I also remember hearing that Avastin is also a toughy. Gemzar for the most part is somewhat mild. If you can call chemo mild! Rest when you need to, and don't push it. Take care, it's just so good to see you posting. Quote Link to comment Share on other sites More sharing options...
Patti B Posted March 12, 2008 Share Posted March 12, 2008 Ernie- You have my prayers for good scan results. Hang in there!! Avastin was a cake walk for me but I am now on Alimta and it does cause a lot of fatigue and SOB. Never could figure out why they give a lung cancer patient something that makes you have trouble breathing!!!! Doc gave me an inhaler and that helps a lot - stairs are the worse!! Good luck and keep us posted. Hugs - Patti B. Quote Link to comment Share on other sites More sharing options...
beatlemike Posted March 12, 2008 Share Posted March 12, 2008 Hi Ernie,sorry about the hard time your going thru but Im praying that you get good results tomorrow.Hopefully all the chemo side effects will be worth the results.Lets hope for the best. Quote Link to comment Share on other sites More sharing options...
Leela Posted March 12, 2008 Share Posted March 12, 2008 Ernie, So glad to see you posted, but sorry you are not feeling well. My mom is on Alimta only, but has similar side effects that Patti described, plus a dull headache for a few days after treatment. I will be praying for great scan results tomorrow and that you will get some relief from your side effects. Hugs, Lisa Quote Link to comment Share on other sites More sharing options...
Don M Posted March 12, 2008 Share Posted March 12, 2008 Hi Ernie : it is good to hear from you. I had a lot of fatigue and some sob from alimta. I thought it was harder than carboplatin/gemzar. I hope and pray you get stellar results. don M Quote Link to comment Share on other sites More sharing options...
Muriel Posted March 12, 2008 Share Posted March 12, 2008 Good to hear from you, Ernie. Sorry you're having trouble with the chemo this time. Hope things get better. Muriel Quote Link to comment Share on other sites More sharing options...
recce101 Posted March 12, 2008 Share Posted March 12, 2008 Hi, Ernie, looking forward to a good scan report and getting those side effects under control. Aloha, Ned Quote Link to comment Share on other sites More sharing options...
carolhg Posted March 12, 2008 Share Posted March 12, 2008 Ernie, It is so good to hear from you. Please know that I am praying to God for you. Carol Quote Link to comment Share on other sites More sharing options...
ErinC1973 Posted March 12, 2008 Share Posted March 12, 2008 Ernie, I am praying for great results today!!! Quote Link to comment Share on other sites More sharing options...
Maryanne Posted March 12, 2008 Share Posted March 12, 2008 Hi Ernie, So good to see your face! We were really worried about you here. Please check in from time to time just so we know that you are okay. Okay? I'm sorry to hear all that you are going through. That seems like a really tough combination. No wonder you are knocked on your a*s. I pray for positive(meaning in a good way) results of your tests. You're a very strong person, you may not feel that way physically right now but from the inside with your determination you are a rock. I just know you will be running again. One day at a time. That's what it is with this disease when you are going through treatment. We are all here supporting you and missing you. Fingers crossed here for good resu;ts. Maryanne Quote Link to comment Share on other sites More sharing options...
J.C. Posted March 12, 2008 Share Posted March 12, 2008 We were wondering about you. Sorry you are having a tough time, prayers will be there for you. Keep us posted on the results of the scans, please. Jackie Quote Link to comment Share on other sites More sharing options...
wendyr Posted March 13, 2008 Share Posted March 13, 2008 Hi Ernie, so sorry to hear you're having a rough go of it. Hope the treatment works and you come back and tell us you've had a great scan. God Bless wendyr Quote Link to comment Share on other sites More sharing options...
shineladysue Posted March 13, 2008 Share Posted March 13, 2008 Ernie, My husband had pneumonitis as a result of Alimta. He grew progressively short of breath and then it got severe, but it showed on CT scan as a ground glass opacity. He had to undergo prednisone therapy in large doses over a long period of time. This doesn't happen to everyone, but I think that patients who are treated with Alimta should be aware of the possiblity . Good Luck Ernie. You have my prayers. Sue Quote Link to comment Share on other sites More sharing options...
trish2418 Posted March 14, 2008 Share Posted March 14, 2008 Hi Ernie, I have no experience with the combo you're inquiring about, but I hope it does the trick for you. Hang in there and stay positive. Trish Quote Link to comment Share on other sites More sharing options...
CLB Posted March 14, 2008 Share Posted March 14, 2008 Hi Ernie - you are in our thoughts and prayers!!! Keep fighting!!!! Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.