Vesuri Posted September 7, 2010 Author Share Posted September 7, 2010 Hi all I think I've had 8, 9 maybe 10 cycles of taxotere and I've had very mild side effects. What I've read and understood, this medicine could hit hard some people. Basically low blood count and loosing hair (which is grown back) were the biggest effects, oh and loosing taste for food for week or two after infusion but it comes back slowly before next infusion. Strange... Try to stay positive and enjoy life, even if both "tasks" feel hard sometimes. Jussi Quote Link to comment Share on other sites More sharing options...
jaminkw Posted September 8, 2010 Share Posted September 8, 2010 Hi Jussi. Sorry the gene test didn't turn out the way you'd like. I'm glad you're doing relatively well on the Taxotere. It's tuff being on chemo for years on end. I know. My side effects are relatively mild too and also changeable from infusion to infusion. But hey, we do what we have to do to stay on the upside of the garden. Take care. Judy in KW Quote Link to comment Share on other sites More sharing options...
Vesuri Posted September 21, 2010 Author Share Posted September 21, 2010 Good people!! Today is 3 years since being diagnosed... Maybe a cake? All the best Jussi Quote Link to comment Share on other sites More sharing options...
jaminkw Posted September 21, 2010 Share Posted September 21, 2010 YEEAAAHHHH Jussi! A cake at least! Judy in KW Quote Link to comment Share on other sites More sharing options...
fillise Posted September 21, 2010 Share Posted September 21, 2010 Jussi--Congratulations on this wonderful milestone! I think you deserve a big cake to celebrate!!!! Susan Quote Link to comment Share on other sites More sharing options...
barbvh Posted September 22, 2010 Share Posted September 22, 2010 Congratulations Jussi! Hope you had cake and more:) If we all weren't a ocean apart we would be there with lots of cakes:) Quote Link to comment Share on other sites More sharing options...
Vesuri Posted September 30, 2010 Author Share Posted September 30, 2010 Good people! Time for an update. I have doc's appointment in local hospital 10 am today and after that I'm going to call Docrates clinic in Helsinki that I'm coming to the oncolytic virus treatment next monday/tuesday. I visited them on Tuesday and, although it is experimental treatment (with quite promising results), I give it a go. This is the treatment that I've been talking about before... check www.docrates.com for additional info... and www.oncos.com All the best! Jussi Quote Link to comment Share on other sites More sharing options...
Bud Baker Posted October 1, 2010 Share Posted October 1, 2010 It looks like a very interesting trial. Good luck, Jussi! Quote Link to comment Share on other sites More sharing options...
jaminkw Posted October 2, 2010 Share Posted October 2, 2010 Good luck in the trial. We're wishing for the best outcome for you Jussi. Keep us posted. Judy in KW Quote Link to comment Share on other sites More sharing options...
barbvh Posted October 2, 2010 Share Posted October 2, 2010 Good Lucl Jussi. Praying for a good outcome for you. Quote Link to comment Share on other sites More sharing options...
Vesuri Posted October 8, 2010 Author Share Posted October 8, 2010 Hello good peoples Thought I'd post little update. This Tuesday (10/5) I went to the clinic for the oncolytic virus treatment... After draining 6.1 litres (1.61 US gallons) ascites they injected the virus. I think it was total 4-5 injections. 1 in the abdomen through the ascites tube, 1 in IV and couple directly to liver. Next day I was released from hospital only suffering from fever since that is normal body reaction to the virus. Of course they took lot of bloodtests and today I visited there for some nurse "interview" checkup. Fingers & all body parts crossed that viruses kill cancer! All the best people! Stay positive!! Jussi Quote Link to comment Share on other sites More sharing options...
barbvh Posted October 8, 2010 Share Posted October 8, 2010 Hi Jussi, Thanks for keeping us updated. I look like a pretzel with everything I can crossed that the virus does the trick and kills the cancer. Throwing in some prayers as well:) All the best to you, BarbVH Quote Link to comment Share on other sites More sharing options...
jaminkw Posted October 9, 2010 Share Posted October 9, 2010 Jussi, sounds like quite an ordeal. Are the injections once and done or repeated? If repeated, how many times? We are always so grateful for you folk who put yourself out there for trials. Keep us posted on how you are doing. Judy in KW Quote Link to comment Share on other sites More sharing options...
LovesLife Posted October 9, 2010 Share Posted October 9, 2010 Jussi - it is so great to hear from you! Praying very hard that this virus will kill that *$#*$ cancer quick! Look forward to hearing some good news very soon Jussi. Warm regards, Linda Quote Link to comment Share on other sites More sharing options...
Vesuri Posted October 27, 2010 Author Share Posted October 27, 2010 Good people! Yesterday was second virus treatment. I got home today and have mild fever. Otherwise pretty ok. They took about 1 litre of ascites before injected the virus. The ascites gives terrible heartburn.... Stay good -Jussi Quote Link to comment Share on other sites More sharing options...
jaminkw Posted October 27, 2010 Share Posted October 27, 2010 Hang in there Jussi. Hope it doesn't get too tough on you. Judy in KW Quote Link to comment Share on other sites More sharing options...
LovesLife Posted October 27, 2010 Share Posted October 27, 2010 As Judy says ... hang in there and I hope the side effects are mild. Take care. Linda Quote Link to comment Share on other sites More sharing options...
barbvh Posted October 27, 2010 Share Posted October 27, 2010 Hope things go well for you:) Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.