phylsgirl Posted March 21, 2008 Share Posted March 21, 2008 Hi all, I have been reading posts on this site and Onctalk.com as well for for awhile it is time to come out of lurk mode and say hi. My mom, was diagnosed with non-small cell lc with brain mets on 12-17-2007. My grandmother, my mom's mom and my brother are my mom's primary caregivers as I live about 1,000 miles away but I have been home twice since the Dx my last visit was a month ago and I went home a week after her Dx to ring in the New Years' with my family. Needless to say I speak to my mom often on the phone. It was really my grandma that recognized something was wrong with my mom. My grandma is a retired nurse. My grams said to herself, "does my child have a brain tumor?' Yeah, there were some tell tale signs we all picked up on in my mom's behavior and functioning but my grams called it. It was my grandma and my brother that took my mom to the ER and my grams TOLD the doctor what tests she wanted performed on my mom. According to my grams, the doctor said to her. "Well, since you put it that way, how can I say no." and proceeded to run the tests which unfortunately confirmed my grams thought-the brain tumor was diagnosed first and after further testing, the tumor on the lung was found and biospsied. Dec 18 2007 was the night my world changed forever and I was just ripped apart. And yet as my brother was telling me the Dx and the doctors prognosis and I am crying and hyperventalating there is something in me that refuses to accept the doctors' words. Something in me said then and says now, My mom is a warrior and and a survivor. I don't know how my grams does it, but she takes my mom to all her appointments, makes sure my mom eats, takes her meds, whatever it takes. And my brother has grown up so much through all of this, I am so proud of him. I always hated the "c" word even before it affected my family. I saw what it did to others and their families and it is ugly But now I just loathe it, in any form, but especially in the lung. Although my family's battle is just about three months old, it seems like a lifetime and it is not just finding the right medical treatments and doctors, but the maze of insurance, appointments, but there are many bright spots. Our family (aunts, uncles cousins, etc) and for me being at such a distance from my mom, my co-workers have been truly amazing with their support (spiritual especially). One of my co-workers in particular has adopted my mom as her own and they have never met, but they speak on the phone at least once a week and my co-worker has sent my mom a few gifts. I just want to say thank you to Katie for founding this forum and to all the survivors, caregivers and supports systems on this board for all you do. This is really a place for hope. And I shout out to Dr. West at Onctalk.com for imparting medical knowledge to the layman/woman;a powerful ally in this battle. Hope I wasn't too long winded, I do that sometimes Ree Quote Link to comment Share on other sites More sharing options...
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