mariannebreathes Posted May 20, 2008 Posted May 20, 2008 Hello everyone, I am so glad I found this site. I actually have tears of happiness in my eyes! The advice I had gotten from oncologists was to not do too much research and to focus on support and treatments. And I totally agreed with them after taking a few peeks and few google searches. I was actually shocked at most of the info I found- because physically I felt very good and emotionally I felt almost euphoric ( for the limited stage I was given). This is the only truly positive support site I have found. I knew I was sick since Jan 11. 2008 but they didn't find anything wrong with me until I went to Er 4.13.08 and I was biopsied and diagnosed within 12 hours. I am 41 years old and have a 5 year old daughter and truly feel blessed most days- but I have these little anxiety spells and moments when I truly get scared and I am afraid to let my family see this weakness in me. I hope to get to know all of you better as I read your stories and posts. Marianne PS. was a smoker for at least 15 years - up until a week before diagnosis Quote
Bruce u Posted May 20, 2008 Posted May 20, 2008 Hi Maryanne Welcome to this site. You will find the members here very supportive with a lot of knowledge. P.S. I was a smoker until I went in through the hospital doors for my operation. Quote
recce101 Posted May 20, 2008 Posted May 20, 2008 Hi, Marianne, welcome! We have a good number of members who are doing very well with limited SCLC, and you've apparently read some of their profiles already. Please let us know what treatment is being planned for you. I suggest you also visit cancergrace.org (the previous onctalk.com has been folded into GRACE, Global Resource for Advancing Cancer Education). There's a wealth of information there, especially on lung cancer, constantly updated by a Seattle oncologist who is an internationally-recognized expert on lung cancer and who gives high priority to promptly answering questions from people like you and me. A lot of us have "dual citizenship" so to speak, and have the same usernames there as here. Aloha, Ned Quote
SandraL Posted May 20, 2008 Posted May 20, 2008 Welcome Marianne. You have come to the right place for on-line support. Lots of good folks here and lots of good info. Sorry you had to join us. I am a mom too. Quote
Flyman35 Posted May 20, 2008 Posted May 20, 2008 Welcome to the site Marianne. You will find lots of hope and suppport here. Denise Quote
Patti B Posted May 20, 2008 Posted May 20, 2008 Welcome Marrianne- So glad you found us. Lots of really good folks here. You will receive a lot of information and support. Let us know how we can help you. Hope to get to know you better. Hugs - Patti B. Quote
Donna G Posted May 20, 2008 Posted May 20, 2008 I know lots of people who were diagnosed with SCLC years and years ago and are still NED -no evidence of disease. They had chemo and preventative brain radiation. Keep us posted on how you are doing. Donna G Quote
mariannebreathes Posted May 21, 2008 Author Posted May 21, 2008 Thank you everyone for the wonderful welcome! I have 6 more radiation treatments (of 28) and 4 chemos left. And I will post more detail of treatment when I find the appropriate board. Best wishes to you all!!![/img] Quote
RandyW Posted May 21, 2008 Posted May 21, 2008 If you click on the profile button at top you can put your profile in your signature. It helps us when you have specific questions. THis is a wonderful place to be under the circumstances!! Quote
LolasDaughter Posted May 21, 2008 Posted May 21, 2008 Welcome, Marianne! So glad you found the site - it is a wonderful resource. I've found that even when I think I have some oddball question (my mom has SCLC), there are usually a handful here that have experience with it and advice to offer! Prayers & best wishes for a successful treatment, Nicole Quote
simplyklb Posted May 21, 2008 Posted May 21, 2008 Welcome, Marianne! You willk find a lot of support here! My dad was just diagnosed with SCLC - extensive disease. His cancer has has spread to his liver and bones. Kristi Quote
bev Posted May 21, 2008 Posted May 21, 2008 Marianne, welcome to the best support group you could hope for. My wife, Bev, was diagnosed with SCLC-Limited in Sept./04. She is doing very well right now. It is scary, but you can get through it and carry on. I hope you can take some solace in the success stories of the awesome fighters on this board. Best Wishes, Kim Quote
shellit74 Posted May 21, 2008 Posted May 21, 2008 Welcome Marianne! Youhave found a great spot to ask questions and to let it all out if need be! My father battled sclc for 3 years before passing 3 1/2 weeks ago. I wish I would of know about this site earlier... it is such a gold mine of information and support!! Shelli Quote
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