Joe B Posted June 19, 2008 Posted June 19, 2008 Hi All, Just wanted to update everyone on my latest tests. The CT of the lungs shows it looks like the tarceva has stopped working and there was some progression of the bi-lateral lung nodules. So....... we are working with my oncologist at the University of Michigan to determine next steps. Most likely I will start Alimta. We They would scan again after 2 or 3 cycles (6 or 9 weeks) to see if it's knocking things back or returning stability. We are also researching clinical trials and seeking second opinions on options from (Karmanos here in Detroit) Any thoughts on Alimta or other options is appreciated. Joe B Quote
Patti B Posted June 19, 2008 Posted June 19, 2008 Joe - I have just had my 13th cycle of Alimta and so far stable. I have recently had some swelling in my feet that they "think" is caused by the Alimta. The main side effects of Alimta are fatugue and SOB. The SOB mostly affects me when doing steps and I am still out working the garden, etc. so it hasn't slowed me down that much. Hope that either Alimta or a clinical trial is your magic bullet!!! Good luck and please keep us posted as to what you decide on. Feel free to PM me if you need any more info on Alimta. Hugs - Patti B. Quote
fillise Posted June 19, 2008 Posted June 19, 2008 Not the results you were hoping for, I'm sure, but it sounds like you are actively looking for new treatments that will work. I'm confident you will find it. Susan Quote
SandraL Posted June 19, 2008 Posted June 19, 2008 Hi Joe. I am saddened to hear your not so great news. I have just started on alitma. I don't really have any advice on it though. I hope you get another plan in place real soon and get back on track. My positive thoughts are with you Sandra Quote
LovesLife Posted June 19, 2008 Posted June 19, 2008 Joe - I am really sorry to hear that the Tarceva has stopped working. Good luck with planning the next course of action and know that I will be keeping you in my thoughts. Linda Quote
Dave Posted June 19, 2008 Posted June 19, 2008 hey joe..sorry the Tarceva stopped worling......hope your next line will start knocking it bsck Quote
Ry Posted June 19, 2008 Posted June 19, 2008 Rats. It's hard when you 've had success to go to a new drug. I hope that Alimta does the trick. Rochelle Quote
Muriel Posted June 20, 2008 Posted June 20, 2008 I'm sorry about this, too. Hoping that alimta will work for you. Muriel Quote
barbvh Posted June 20, 2008 Posted June 20, 2008 Joe, I am sorry to hear about the progression. My prayers are with you as you sort out what your best next line of treamtent will be. Blessings, Barb VH Quote
Shar Posted June 20, 2008 Posted June 20, 2008 HI Joe, I have just been dealt the same hand as you. After 3 successive years on Tarceva it has stopped working and I just had my first infusion of Alimta. It seems to agree with me because I haven't felt ill or tired from it. From all I could research this seemed to be the best option for me. I could have gone on a clinical trial but it was placebo based and with progression I just wouldn't risk it. All the best to you, Sharon Quote
Jyoung20 Posted June 20, 2008 Posted June 20, 2008 Joe, I am sorry to hear that Tarceva has stopped working. But, it seems you have your plan of action together. Stay on top of it Joe!!! Your strength and positive attitude amazes and inspires me!!! God Bless You!! Jamie Quote
CaroleHammett Posted June 22, 2008 Posted June 22, 2008 Hi, Joe. Sorry the Tarceva's not working, but it is common for oncologists to recommend Alimta as the next choice for a 2nd line treatment, as it has been found in research studies (including several presented at the June 2008 ASCO conference) to have good response rates for both adenocarcinoma and BAC (see also Dr. West's recent posts on this subject at cancergrace.org). My best to you and your family. Carole Quote
carolhg Posted June 22, 2008 Posted June 22, 2008 Joe, I sincerely hope and pray that the Alimta will work and put a stop to the progression. Prayers. Carol Quote
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