Janette Posted July 16, 2008 Share Posted July 16, 2008 Again, I’m concerned about something, what else is new. Initially Onc. Doc had told Mark if tumor had not reduced by another 50% with chemo then he would only get 4 rounds of chemo. When ct scan was done, Onc. Doc told us tumor reduced a little bit and left the last 2 rounds of chemo up to Mark if he was up to it. Well he did 1st half of 5th round and opted after that not to continue. Well he had an appt with his family doc. this a.m. who had update letter from Onc.Doc who states in this letter dated June 16, his last chemo day, that Mark would benefit dramatically from these last 2 rounds! He never once said that to us and now of course Mark is upset that he has made the wrong decision in not taking his last round of chemo. And of course Onc. Doc is not in today to confirm what the heck is up. We see pallative care doc this afternoon, hopefully he can help shed some light. I just don’t get it. Quote Link to comment Share on other sites More sharing options...
Muriel Posted July 16, 2008 Share Posted July 16, 2008 Janette, you're not alone. I don't get it either. Let us know what you learn. Muriel Quote Link to comment Share on other sites More sharing options...
peebygeeby Posted July 17, 2008 Share Posted July 17, 2008 Hi Janette, I understand your confusion. They say doctors are practicing medicine for a reason, they're practicing!!!! Just kidding. But I do think that in many cases it is largely a matter of guesswork. Unfortunately, with diseases like cancer, parkinson's disease and many other serious diseases they just don't have things down to an exact science at this point. We would all love for this not to be the case, and maybe someday it will be an exact science, but for now, we have to rely on those that are the most educated hoping that that education will provide more accurate guesses. My best to you and Mark, Gail Quote Link to comment Share on other sites More sharing options...
Janette Posted July 17, 2008 Author Share Posted July 17, 2008 I absolutely LOVE his pallative doctor, definitely helps make sense of things and takes the time with us. I do believe his family doc jumped the gun a bit. And we booked a trip after our visit with him, take off on the 1st of August, flying to Vancouver and taking the train thru the Rockies. He wants to see the mountains and he will. Definitely don’t want any regrets. Gail, I hope all is well with you, have followed your journey and definitely wish you the very best. Thank you all. Quote Link to comment Share on other sites More sharing options...
SandraL Posted July 22, 2008 Share Posted July 22, 2008 It is all not an exact science Janette..that is for darn sure. Just need to keep on asking questions and options..hear advice and decide for yourself. I hope you guys are doing okay. My positive thoughts and prayers are with you Sandra Quote Link to comment Share on other sites More sharing options...
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