Dollfinn Posted August 6, 2008 Posted August 6, 2008 Hello All~ Here I am at CTCA Cancer Camp, kicking butt. I am in a state of elated shock. The only thing that hurts is my face from smiling. My CEA is now down to 157 after just 3 Tx's. I started at 395 6/17/08!!! Funnier note, I wear my cotton head cover for my 6 hour drip. I arrived in the height of fashion in my wicker hat, with the wide brim, broken in to perfection. Just as the plumber arrived ( my chemo nurse) I went to switch from my wicker hat to my cotton head cover, but instead grabbed my backup pair of underwear! Gotta love your caregivers. Thank goodness for my Jerry. Lets get a hea yeah to our caregivers! Mary Quote
Patti B Posted August 6, 2008 Posted August 6, 2008 Mary- SOOOOO glad that CTCA is helping you!!!! Sounds like they have you under control!!! Just wish you would have taken a pic of you with your underwear on your head. Could have given us all a good laugh!!! Tell Jerry he IS da bomb!! Continued good luck!!! Hugs - Patti B. Quote
Maryanne Posted August 6, 2008 Posted August 6, 2008 What a GREAT sense of humor!!! I love this post. I pray things keep going well for him. Keep the good news coming!!! When he is done, we can make the pub into Margaritaville!!! Free Margaritas for everyone!!! Maryanne Quote
CaroleHammett Posted August 7, 2008 Posted August 7, 2008 GREAT NEWS, Mary! And three cheers for Jerry, too! Affectionately, Carole Quote
jaminkw Posted August 7, 2008 Posted August 7, 2008 O.k. Mary, I love the underwear part but where is CTCA Cancer Camp? Where are your treatments? I missed your earlier posts. Congratulations on the numbers. We're all waiting to hear from others about tracking these numbers. Judy in Key West Quote
Dollfinn Posted August 7, 2008 Author Posted August 7, 2008 Judy~ We found "Cancer Camp" after MSKCC in NYC told me I had exhausted all treatment options and my cancer had advanced from IIIB. The one thing that stuck out from all the others (M.D. Anderson in Huston ; Johns Hopkins in Baltimore ect) is that it is not a research center but a TREATMENT CENTER. Cancer Treatment Centers of America, located through out the country. The newest in Az. where my son lives. I go to Philly, PA. A 2 hr. commute but well worth the ride. you can google them. CTCA is the acronym. I recieve all therapies they offer, not just chemo. I also cant wait to hear to hear from anyone also tracking CEA numbers as Sloan does not track them either, but it gives me hope every 3 weeks when that tumor drops down A y port in a storm at this point! Mary Quote
jaminkw Posted August 7, 2008 Posted August 7, 2008 Mary, Thanks for triggering my faulty recall. Now I do remember your earlier post. Sorry about how you had to find CTCA but glad to did. I remember their website when I first started looking. I wound up at MDACC because of my PCP's familiarity with it. Three hours is certainly doable; I've made eight each way doable. I'm watching everyone I can because you never know when you're going to wind up where they are. Judy in Key West Quote
neilb Posted August 10, 2008 Posted August 10, 2008 Dollfinn--Please share. What treatments are you getting? Whatever they are, I'm glad they're working.--Neil Quote
Dollfinn Posted August 10, 2008 Author Posted August 10, 2008 Neil~ As many here know, I am Irish, hence long winded ( HeHe) guess thats a good thing 2 yrs later! I will PM you with the CTCA details and will post if anyone else has not heard of their approach. Mary Quote
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