TracyD Posted August 30, 2008 Share Posted August 30, 2008 I got my most recent scan results yesterday, and they showed a bit of progression so I am out of the trial and on the chemotherapy. The nodules in my left lung have all grown millimeters. The issues are all on the right side. The two larger tumors have consolidated, it looks like one big mass. There is more extensive thickening of the pleura, and the cancer has officially spread to my diaphragm, and most likely my abdomen, although at this time they are calling them "possible" mets. I'm not buying that. I have lost a lot of volume in my right lung, to the point that my chest cavity has kind of sunk in, and my right shoulder is pulling forward, I look a bit twisted. This causes some severe back pain which is now being treating with Aleve, which worked well for me last night. So... we are regrouping. I chose to start on taxotere immediately. I didn't want to wait the weekend, so a couple hours after hearing the news I was at the infusion center getting my first dose. We here are so thankful that we were able to have the wonderful summer that we did, I was feeling good and we went nonstop. We are now preparing for a new phase of this fight. I have to say, this one is really scary. It is the worst news we have gotten since the actual diagnosis and it's going to take a bit of time to wrap our brains around it. In the wonderful words of my dear friend Rachel (Fight), we are just going to keep on keepin' on. Tracy Quote Link to comment Share on other sites More sharing options...
recce101 Posted August 30, 2008 Share Posted August 30, 2008 Tracy, you're magnificent. With much Aloha, Ned Quote Link to comment Share on other sites More sharing options...
beatlemike Posted August 30, 2008 Share Posted August 30, 2008 Tracy,Im sorry about your latest news but glad you are getting right after it. Quote Link to comment Share on other sites More sharing options...
SandraL Posted August 30, 2008 Share Posted August 30, 2008 Oh Tracy, I am so sad to hear that. Your words are so courageous. I too dealt with progression (spine mets) after being NED and was taken off a clinical trial. So I do know how you feel somewhat. It absolutely devastated me and took me some time to get back in fight mode and be more positive. The important thing is though that we get there. Good for you for getting right back on the chemo band wagon so quickly. Is radiation also an option or have you already received too much? (sorry I can't recall from your profile) My very best wishes that this chemo stops the progression in it's tracks. I am so glad to hear that you had an awesome summer. Keep up with your attitude, you are an inspiration to me. Sandra Quote Link to comment Share on other sites More sharing options...
Patti B Posted August 30, 2008 Share Posted August 30, 2008 (((Tracey))) I am so sorry that you had have had some progression but I KNOW that you are up to the fight. You CAN do this, you are one tough cookie!! Hugs - Patti B. Quote Link to comment Share on other sites More sharing options...
Kasey Posted August 30, 2008 Share Posted August 30, 2008 Ah (((Tracy))), We've talked and I've posted to your Carepages. All I have left to say is you are truly AWESOME and my hero! We love you. Love, Aunt Kasey and Uncle Fred Quote Link to comment Share on other sites More sharing options...
Don M Posted August 31, 2008 Share Posted August 31, 2008 Yah, it does sound scary. I hope the taxotere puts the brakes on quickly. It seems to be working for me. I have one huge tumor in my upper lobe and many small tumors throughout the rest of my lung that are all stable for now. I am glad you had a nice summer Tracy. Don M Quote Link to comment Share on other sites More sharing options...
Shelley (MLC) Posted August 31, 2008 Share Posted August 31, 2008 Hi Tracy, I am so sorry to hear about the progression and the end of the trial. I wish you the very best with the taxotere. You have an incredible spirit. I KNOW you'll do well. Shelley Quote Link to comment Share on other sites More sharing options...
RandyW Posted August 31, 2008 Share Posted August 31, 2008 I am sorry to hear the bad news on the progression and hope that the taxotere kicks that BOOGERS behind!!! Die Tumour Die!!!! ALSo thank you for doing the trial. THis also takes lots of courage to venture into the unknown like you and so many others have tried. The effort is not in vain so never think it has been!! Prayer and Thanks and Hugs to you and yours always!!! Quote Link to comment Share on other sites More sharing options...
Wendy Posted August 31, 2008 Share Posted August 31, 2008 Tracy, Oh dam!!! I wish you had received better news. I have my fingers and toes crossed that the newest chemo will works its magic for you. Wendy Quote Link to comment Share on other sites More sharing options...
Muriel Posted August 31, 2008 Share Posted August 31, 2008 Tracy, I'm sorry to hear of the progression. Starting chemo immediately, certainly shows a great attitude to fight. Best wishes for success. Muriel Quote Link to comment Share on other sites More sharing options...
tkelley Posted August 31, 2008 Share Posted August 31, 2008 Tracy, Sending lots of hugs your way and hoping the chemo kicks some serious cancer butt!! Thinking of you and your family. Tammy Quote Link to comment Share on other sites More sharing options...
Flyman35 Posted August 31, 2008 Share Posted August 31, 2008 Tracy I am so sorry to hear this news. It looks like you have that fighting spirit going so you just keep on keepin' on. Denise Quote Link to comment Share on other sites More sharing options...
sharonjo Posted August 31, 2008 Share Posted August 31, 2008 Ahh Tracy, I am sorry to hear about the progression. That just sucks! But I am glad to see you getting right back on chemo, Taxotere held me stable for almost a year. Hopefully it will do the same for you or better. I'll be looking for your post saying that it's working! Good Luck! Stay Strong! God Bless, Sharon Quote Link to comment Share on other sites More sharing options...
Andrea Posted August 31, 2008 Share Posted August 31, 2008 I am sorry to hear the news. You are a true fighter though and an AMAZING person. We are all cheering you on! Quote Link to comment Share on other sites More sharing options...
shineladysue Posted August 31, 2008 Share Posted August 31, 2008 Tracy, I'm so sorry to hear the lastest results, but totally confident that you will give this next "phase of the fight" your all. You are so very courageous and a truly inspiring and wonderful person. Keep on keeping on.. is a good way to go... In my prayers.. God Bless, Sue Quote Link to comment Share on other sites More sharing options...
fillise Posted August 31, 2008 Share Posted August 31, 2008 Tracy--I'm sorry to hear about the progression. I'm glad you aren't waiting and are going right after it. I read your account of your summer and it sounds like it was fabulous enough to make you strong mentally, physically and emotionally for the new treatment regine. The cancer doesn't stand a chance! Susan Quote Link to comment Share on other sites More sharing options...
Jyoung20 Posted August 31, 2008 Share Posted August 31, 2008 ((Tracy)) I am so sorry to hear this but YOU can do it!!! Keep on keeping on and keep the faith. xoxo Jamie God Bless You! Quote Link to comment Share on other sites More sharing options...
barbvh Posted August 31, 2008 Share Posted August 31, 2008 Tracy, I too am so sorry to hear news of progression. Again you show us your amazing spirit and courage. Many prayers that the taxotere stops it in it's tracks. Quote Link to comment Share on other sites More sharing options...
Joe B Posted September 4, 2008 Share Posted September 4, 2008 Hang in there Tracy. I am praying for you .... Joe B Quote Link to comment Share on other sites More sharing options...
Sis Posted September 8, 2008 Share Posted September 8, 2008 Tracy, I'm so sorry to read your update. But we all love to hear your fighing spirit continue. You have a very large cheering section and an even larger prayer chain. We're all with you!!! Ellie Quote Link to comment Share on other sites More sharing options...
carolhg Posted September 9, 2008 Share Posted September 9, 2008 Praying for you Tracy and sending positive thoughts your way. Carol Quote Link to comment Share on other sites More sharing options...
jaminkw Posted September 10, 2008 Share Posted September 10, 2008 Tracy, Sorry to be coming in so late to say I'm sorry about the progression. I've been following you in your trial and posting on the Care Pages and couldn't get to the last one (traveling with unreliable internet) and caught up with you here. You obviously jumped right back into the fight. I hope your family is hanging in there too. It's got to be difficult. It sounds like you all had a fabulous summer. I'm sure you are grateful for it but it doesn't make this setback any easier. Keep on hanging in there. Obviously you have a large rooting section here to add to the people in your more immediate life. Sending positive thoughts and energy your way, Judy in Key West (currently in New Jersey) Quote Link to comment Share on other sites More sharing options...
jaminkw Posted September 10, 2008 Share Posted September 10, 2008 Tracy, Sorry to be coming in so late to say I'm sorry about the progression. I've been following you in your trial and posting on the Care Pages and couldn't get to the last one (traveling with unreliable internet) and caught up with you here. You obviously jumped right back into the fight. I hope your family is hanging in there too. It's got to be difficult. It sounds like you all had a fabulous summer. I'm sure you are grateful for it but it doesn't make this setback any easier. Keep on hanging in there. Obviously you have a large rooting section here to add to the people in your more immediate life. Sending positive thoughts and energy your way, Judy in Key West (currently in New Jersey) Quote Link to comment Share on other sites More sharing options...
Vesuri Posted September 11, 2008 Share Posted September 11, 2008 Tracy, I'm exactly in the same situation as you. Today I heard I'm off the Nexavar trial - progression in liver and in lung + spine met (that's a new one). Despite the new, bad, news, I'm doing great and doc tries to get bone (gamma) scan asap to start the radiation. Also new line of chemo will be started. We also enjoyed a full summer and at times my thoughts were totally cancer free! All the best Tracy!!! Jussi Quote Link to comment Share on other sites More sharing options...
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