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37 yo female with NSCLC adenocarcinoma stage IIIb/IV...three months (six cycles) three drug chemo with six thoracentesis during that time...now pleural effusion stable and on Tarceva 150mg times one month...anybody in this situation and what's longest you've seen survivorship??? :)

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Hi Jody-

Welcome to the forum altho I am sorry for your need to be here. This forum is full of wonderful, caring people.

I am Stage IV and just had my two years anniversary since dx last Monday. Others will come along with much longer survivor stories.

Hoping to get to know you better.

Hugs - Patti B.

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Hi Jody

Welcome to this great site. Members here are very supportive and knowledgeable on this terrible disease. There are lots of good news stories on this site that will certainly give you encouragement. This is a great place to share your own story or just to vent if that will help. Take care and keep us posted.

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Welcome Jody. Sounds like you've had a great team of Doctors. I have several friends that have beat the odds. In December I will celebrate 11 years myself. No one spoke stages to me but I guess I was at least IIB

Donna G

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Hi, Jody, welcome to the group. My diagnosis is also adenocarcinoma stage IIIb (IVa in the new staging system), 4 months (6 cycles) Taxol/Carboplatin/Avastin, then 8 months Avastin alone, then Tarceva for the past 12 months (I'm still on it). Initlally had a huge malignant pleural effusion filling over 2/3 of the right chest, much of it loculated, which has slowly resolved over the past two years. You can read my details in the link below, but I just passed my 2-year anniversary, and based on how I'm feeling now (pretty good) I'm fairly confident I'll be around at least until anniversary number 3.

Give us some more details when you have a chance. Best wishes and Aloha,


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Hi Jody,


I also have adenocarcinoma that was diagnosed 4 1/2 yrs ago at stage IIIa. I had a reoccurence 2 yrs 9 months ago and have been upgraded/downgraded (?) to stage IV.

I have had my left lung removed, radiation to my chest for 28 days, chemo combo of cisplatin/etopiside/taxotere as my first line therapy. I was involved in a maintenance drug trial Iressa for 9 months with no progression. For the past 2 yrs 9 months I have been on Tarceva daily and on/off of Avastin for 12 months at a time.

I have had it come back in 2 spots in my spine, one spot on my pelvis and one spot on my skull base over the last 2.9 yrs. All of these have been treated either with spot radiation (when they were causing pain) and taken care of with the avastin/tarceva combo.

Oh yeah, I was diagnosed at 39 so I know how surprising it can be to get your diagnosis.

Try to keep hope on the horizon, I have seen alot of people survive LC - even when they were told to get thei raffairs in order.

Keep us posted and best of luck on Tarceva, it sure has worked miracles on me.


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Hi Jody. Welcome to this site and all of it's wonderful supportive members. I am a 1 year survivor to date. We have all gone through so much and I personally have benefited greatly from all the support and information on this site. I wish you well and look forward to seeing further updates from you.


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