SandraL Posted October 9, 2008 Share Posted October 9, 2008 Well I am at home from work today as am freaking out over a few things. So am a busy girl on this site...just think if I didn't work! Anyhow, I am astounded at how out of the blue and fast my side effects to Tarceva have appeared. Including my worry over blood in urine. I can just about see my "rash" grow from hour to hour and I am not kidding! I feel like I need to crawl out of my face and scalp and it is all over my chest area and growing! Please please send me any of your miracle cream ideas. I have moisturized with high quality expensive face cream and vaseline intensive care but that does not seem to help much. I only started taking Tarceva last Friday. I just finally (as I am writing this note) got a call back from a nurse at the clinic who finally pinned a med onc down. Mine is away and that is very unfortunate. The message was to go OFF TARCEVA and that's it!!!! I said to the nurse that I was not at all happy with that advice and she agreed that she wasn't either. So I am marching myself on down there (and she agreed) to be seen. And you had better believe I am more than a bit ticked. Anyhow, what I really wanted to ask was what dose of tarceva are other patients on. When I first discussed Tarceva with my doc she said she would try to manage the dose down to manage the severity of side effects. I am currently on a 150 mg tablet per day and I believe that is the highest dose. When I finally get to see a med onc in person today that is what I want to discuss...adjusting the dosage. So what doses are some of you guys on and how long have you been at that level? Quote Link to comment Share on other sites More sharing options...
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