Jump to content

Day after chemo


Recommended Posts

I hate to whine but I felt so good for awhile and then I get another infusion of Avastin. This time I had pain the whole three weeks and hardly slept last night because of pain all through my body. My hands are going to sleep all the time even though I'm not. When I get to NJ my husband will set up my exercise machine and then at least I'll have an excuse for the aching and pain!

It doesn't help that the majority of people on Avastin have little or no problem with it. I'm grateful that I know a couple who have had side effects similar to mine. I just hate hate hate that worry--is it the treatment or is the cancer asserting itself again.

Judy in Orlando

Link to comment
Share on other sites

Judy -

You KNOW you are still NED so I am sure its just the chemo. Remember - you are the optimist and I am the one who is the pessimist around here.

Just from not having chemo for 2 cycles it was like WHOA!!! Forgot about this stuff the other day. Like Monday night I realized that yeah, this is my after-chemo headache and when I was up all night p'ing it was OK, I remember this, its from all the saline. And yesterday I was really very tired and even left chat early to go to bed.

Hang in there, girlfriend. You know you are tough.


Link to comment
Share on other sites


Checking in and I found your post. You signed Judy-in-Orlando instead of Key West. Next time are you going to be Judy-in-New-Jersey? I'm sorry to hear you are aching. I hope you are rewarded for you fortitude. I expect you will get "over the hump" and begin to feel a little better each day.

I saw the doctor today and I'm getting by easy. I told the doctor that I'm spoiled. No treatment today. I don't know when I will have chemo, or what it will be. My energy level is pretty good. If I only work when I feel like it, and I always go out and work a half day or more, then I must be feeling well. In past years I did more physically demanding work and I've given that up.

I have a problem with nerves in my left arm and hand and have to see a specialist. It's not a big bother (yet) but I have to take care of it. My fingers are getting numb. One result is that I had more tests, and the results have been good. The cancer is stable. The problem with my nerves could be collateral damage from cancer and it's treatments, and/or other things.

I guess I judge my health not by what is wrong but what I can do. If I can stay awake, do normal things, work, and not be distracted by pain, then it's a good day. Also if I don't have to spend most of my time going to doctors and treatments. Lately it's mostly been good.

David in Chicago

Link to comment
Share on other sites

Sorry about the confusion in location--but yes, I will be Judy in NJ next. I will keep the location changes for Just for Fun, just because it's fun.

David, I've emailed you. It's so good to hear you're doing well and are listening to your body. I totally agree with that!

Judy in Key West

Link to comment
Share on other sites

Judy from WHERE-EVER and David, Just wanted to chime in and say I'm glad your both doing better.

I'm sitting here whining over a stupid cold that I have and then I read your messages and it ALL brings me back to page one again the beginning of the cancer journey! Hang in there, we're cheering you on!!!

Link to comment
Share on other sites

  • 1 month later...


I am on Avastin too. I don't remember if it's again or the first time but it does give me some concern. I wake up around 4:00 AM the morning after the infusion with serious hiccups that then continue for another day or two. I often get pretty severe intestinal pain along with the hiccups and never know what's going to happen with my bowels.

The hand pain you have has been with me for a few years now. I never am sure whether it's drug induced or comes from me sleeping wrong or inadvertently just pinching some nerves. I haven't actually thought much about the Avastin as being a cause of my aches and pains. I'm at the point now where old age is a major player in the game. I don't think there's any way to beat that. My biggest whine these days is that I'm so run down. I have just about zero energy and the same amount of strength.

It seems like I'm going downhill a whole lot faster than I was going uphill but I'm still going. The real problem I'm having is that I feel great, until I actually have to do something.

I don't know if this is coming across as a pity whine for myself but I don't mean for it to be that. Just sharing what happens along the way and I can guarantee you a lot of our misery does come from the med's.

You just hang in there and if you need a whine now and then, just do it.

My prayers and best wishes are with you,


Link to comment
Share on other sites


No pity whine intended, no pity whine taken. But you know, John, it's o.k. to complain once in awhile. I'm off Avastin now but not long enough to assess my pain level. I am anxious to see how much is old age (soon to be 65) and how much is the chemo. Ned said it took 2 to 3 months for the Avastin related pain to subside. So we'll see.

I know that "feel great, until I actually have to do something" experience too. Repetitive motion appears to be my biggest problem. I just don't think I'm old enough for the level of pain I sometimes experience. I think the chemo could be exacerbating problems like arthritis that I already have.

Time will tell, Judy in Key West

Link to comment
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Reply to this topic...

×   Pasted as rich text.   Restore formatting

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

  • Create New...

Important Information

By using this site, you agree to our Terms of Use.